Gerry Nesbitt @ CLIRINX Clinical Research IT

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The University of Melbourne has recently launched what may become the largest genetic epilepsy natural history study ever conducted, powered by the CLIRINX system! #RareDiseases #NaturalHistoryStudy #Genetics #Epilepsy

After 12 years focusing on the US rare disease market, CLIRINX is expanding in Ireland & the EU. We've deployed AWS infrastructure in Dublin to support local patient registries, natural history studies & clinical trial readiness. #RareDiseases #Ireland #GDPR

CLIRINX is committed to keeping CRID operational because it plays a critical role in advancing rare disease research. The platform remains highly active and continues to provide invaluable support to researchers, patients, and non-profit organizations in the rare disease community.

Since 2014, CLIRINX has been delivering comprehensive IT solutions to support Natural History Studies on rare diseases. Let CLIRINX handle IT. #rarediseases #epilepsy #genetics #edc #crid #rddr

CRID - Clinical Research ID. A unique patient identifier for rare disease folks. #raredisease #uniquepatientid

CRID can now supply a bulk list of anonymous CRID IDs for rare disease research. These CRIDs are not associated with an email address or a person's name/sex/DoB.
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com

Nugget of info: The CLIRINX platform uses Zulip RESTful API for app messaging. We also use Zulip for team messaging. A not so well known alternative to Slack. 💡

👋 epilepsy and rare disease research IT

Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation

Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation

Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation

Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation