Absolute beaut!! 👊🏼 I wish I could still run, my intention is to try and start again this year. #PrayForScott 😂🤣
12.03.2026 09:23
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Absolute beaut!! 👊🏼 I wish I could still run, my intention is to try and start again this year. #PrayForScott 😂🤣
You have such a way with words! 😂😊 I glad the cold benefits your symptoms. -1C is like hell for me, I need 25C to be comfortable. It's incredible to me how unique we are all with this car crash of a disease 🤦🏻♂️
Step 2 of aHSCT planning/implementation in the diary. New immune system please 🙏🏼 #MS #AHSCT
Dr Gretchen Hawley, MSCS and PT in the US, promotes increasing neuroplasticity repair through her #MSing link book/program. It's brilliant.
Representing #MS at the Paralympics! 👊🏼
Meet GB's first female Paralympic snowboarder www.bbc.co.uk/sport/articl...
🎉 🥳 🎈 🍻 🥂 🥃
So good to hear. We have a very thin wire to tread and having a professional we get on with reduces the burden on everyone, for short bursts at least.
Brain Stem compromise. Vagus nerve involvement. Bollocks.
#MS #MultipleSclerosis #CranialNerve10 #CNX
Same. My neuro has been a 'mate' for 21 years for me. I call him by his first name, like he does me! 🤣 Glad you have that place to feel safe and content, no matter how the World is burning around you.
B cell targeted CAR-T therapy for autoimmune diseases
www.eurekalert.org/news-release...
Ordered it this morning too, arriving Friday hopefully 🙏🏼
This is an incredible read. What a woman. With everything she has been through she still shows up. There are no words. #MS #Cancer #Survivor #NeverGiveUp
#MS_Selfie Spring news - good news
Fenebrutinib pulverises teriflunomide in relapsing multiple sclerosis gavingiovannoni.substack.com/p/spring-new...
Energy management is medical, not optional.
More at livewithms.com
#MSFacts #LiveWithMS #MSFatigue
Lucid-MS Phase 2 Trial imminent. Reduce myelin loss and promote myelin repair. Two phrases I like the sound of a lot!
multiplesclerosisnewstoday.com/news-posts/2...
Yes it's #dysphonia, yes that's a term (in plain English) used for trouble with speaking. Yes, I have weak vocal chords!! What of it? What's it to you?! 🤣 Vocal physio is now the order of the day. I'll be a baritone before you know! 😂🤣
Christina Applegate has long been admired for her candour, but her recent reflections on living with multiple sclerosis offer an especially stark window into the realities faced by many people with chronic neurological illness...Read more👇 #news #Hollywood #MS
www.allangles.co.uk/2026/02/chri...
You are allowed to grieve who you were —
without giving up on who you can become.
Confidence after diagnosis is not denial.
It’s integration.
More at livewithms.com
#MultipleSclerosis #LiveWithMS #ChronicIllnessJourney
Had MRI's for aHSCT prep almost 4 weeks ago now. Heard nowt. I'll contact Radiology next week for the scans to make my own assessment. It's usually yearly for me, but had 12 in 2024 🤦🏻♂️and 4 in 2025. Lucky me.
It's gone! 😂
Sorry to hear of your plight. I hope you recover as quickly as possible
It's taking 4 days so far to recover. 4 days of watching the Olympics and no work! Could be worse 😂 Totally worth it to see my wife graduate. 100%
Crushed by #MS #fatigue today. Full day at the wife's MSc graduation ceremony has put me on my ass all day. Love the delayed onset of it all. Love it I do!! 🤬🤬😩
Strong response of, does a bear shit in the woods?! 😂🤣
Just got home after spending the day attending my wife's MSc graduation event! It's been an awesome (but exhausting) day! 😊
Hope yours has been decent too!
I wish you well, I really do.
PALS where I am were very helpful with me a week or so back, I hope they're forward leaning with you where you are too 🙏🏼
That is bullshit! My friend got taken off Tysabri, after 14years, and put on Tyruko (the biosimilar) with no conversation, notification or choice. She was just put on it. Her quality of life deteriorated badly. Such poor decisions by those who control our health. Hoping you get to a better place.
Not a truer word spoken 🙏🏼
I'm currently on 48hr rest to try and get my walking ability back. MS sucks! 🤬😭😩
Living with MS means:
Planning carefully.
Canceling unexpectedly.
Adapting constantly.
That’s not inconsistency.
That’s awareness.
Voice and breathing complaints are more than likely because of #MS brainstem lesions in the pons and medulla oblongata. 11th cranial nerve involvement. That's why ENT don't care. Nowt to do with them! All Neurology's deal! 🤦🏻♂️🤬
