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APS Foundation of America

@apsfaorg

APS Foundation of America (#APSFA) is the only US org spreading #Antiphospholipid Syndrome #APS & #Lupus #Awareness! #DVT #PE #Stroke #APS #miscarriage

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02.12.2024
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Latest posts by APS Foundation of America @apsfaorg

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06.03.2026 14:30 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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We have finally joined TikTok! Join our feed. We look forward to seeing your feed as we grow.

We have stumbled into doctors and other patients already and shared them out.

See you there.

03.03.2026 00:44 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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As always, the goal is to prevent blood clots as much as possible.

#BCAM26 #APSFA #WTD26 #thrombosis #thrombosisawareness #thrombosisuk #thrombosisprevention #ThrombosisAwareness #ThrombosisAwareness #thrombosisday

02.03.2026 17:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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March is recognized as Blood Clot Awareness Month, dedicated to educating the public on the risks, symptoms, and prevention of blood clots (venous thromboembolism, or VTE), which affect 900,000 Americans annually.

01.03.2026 15:30 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Credit to @lupuschickofficial For the same task, we need much more energy πŸ’”

28.02.2026 19:39 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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On behalf of the APS Foundation of America, Inc. (APSFA), we stand in solidarity with the millions of individuals and families worldwide observing Rare Disease Day.

#ShowYourStripes #RareDiseaseAwarenessMonth #AntiphospholipidSyndrome

28.02.2026 16:17 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Donate Today

Support the 1 in 2000 Americans living with Antiphospholipid Syndrome, a rare autoimmune clotting disorder.

You can donate at apsfa.org/donate. We need to find a better treatments or a cure.

#ShowYourStripes #AntiphospholipidSyndrome #RareDiseaseAwarenessMonth

27.02.2026 16:09 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Did you know?

More than 95% of rare diseases are without an FDA-approved treatment.

#ShowYourStripes ##RareDiseaseAwarenessMonth

25.02.2026 17:46 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Did you know?

Rare disease affect an estimated 350 million individuals worldwide.

#ShowYourStripes ##RareDiseaseAwarenessMonth

22.02.2026 18:57 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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NEW EPISODE! πŸŽ™οΈ Antiphospholipid syndrome (APS) is complex, frustrating, & easy to misunderstand. Yu (Ray) Zuo, MD, MS, joins the podcast to explain APS clearly, share the case that changed his thinking, & explore where the science is heading. LISTEN β†’ acr.tw/4qoRpGk

21.02.2026 01:46 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Did you know?

Currently, there are more than 10,000 rare diseases identified.

#ShowYourStripes #RareDiseaseAwarenessMonth

18.02.2026 22:36 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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14.02.2026 16:22 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Did you know?

Any disease affecting fewer than 200,000 people in the US is considered rare.

#ShowYourStripes #RareDiseaseAwarenessMonth

11.02.2026 16:05 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Did you know 1 in 2000 Americans have Antiphospholipid Syndrome (APS) a #rare, #autoimmune clotting disorder.

This month we celebrate ##RareDiseaseAwarenessMonth and want you to #ShowYourStripes

07.02.2026 17:15 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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More than 30 Million Americans live with a rare disease. That's 1 in 10 of us.

#ShowYourStipes #rarediseaseawarenessmonth

04.02.2026 00:20 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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01.02.2026 16:49 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Please scan the flyer's QR code for more information and to complete a one-time online survey. You do not have to use tobacco or nicotine yourself to participate! At the end of the survey, there is a link to the CDC’s information page on the health effects of smoking/vaping and nicotine use.

21.01.2026 23:19 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

for Special Surgery (HSS) in New York, is focusing on this topic. Dr. Lisa Mandl is the Principal Investigator for the study. If you (or your child) are 15-22 years old and have been seen by a pediatric rheumatology provider in the past 5 years, you (or your child) are eligible to participate!

21.01.2026 23:19 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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There has been little research on smoking/vaping and nicotine use in patients seen in pediatric rheumatology practices. However, a new research study by Dr. Patricia Hoffman, a pediatric rheumatology fellow at Hospital

21.01.2026 23:19 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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26.12.2025 20:47 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Your support fuels our success. Thank you for an incredible year; wishing you and your loved ones a wonderful holiday season and a happy healthy New Year!

22.12.2025 16:33 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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08.08.2025 00:36 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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05.08.2025 20:20 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Credit to @apsfa APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...

26.07.2025 22:25 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus - Nature Reviews Rheumatology Withdrawing immunosuppressive treatment in systemic lupus erythematosus offers reduced toxicity and improved quality of life for patients in remission but carries a risk of disease reactivation. Emerg...

✨ August Issue✨| Comment article on the risks and benefits of immunosuppressant withdrawal in systemic lupus erythematosus

bit.ly/45kkdIK

#Rheumsky #Medsky

25.07.2025 08:53 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Truth.

25.07.2025 15:39 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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24.07.2025 19:58 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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APS Magnet

Yes, FB cropped the picture.

100% of the proceeds go to the APSFA. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: www.paypal.com/ncp/payment/...

17.07.2025 19:30 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS

01.07.2025 11:11 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

make a difference and bring more attention and awareness to #APS!!

Also, a HUGE shout out to the #APSFA volunteers!!
You all are awesome! Please share...one more time...today's!

Thank You for sharing on all social media platforms with our hashtags.

01.07.2025 11:11 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0