@accsupportuk
Providing information resources, support services, and advocacy for the UK adrenocortical cancer (ACC) community at www.accsupport.org.uk. Follow our sister accounts @amenduk.bsky.social and @phaeoparasupportuk.bsky.social. #endosky
Our ACC Support UK account will be deleted shortly as we centralise our social media accounts under the AMEND account. ACC-related posts will be found on the AMEND account along with those related to MEN and PPGL syndromes. Follow AMEND!
Wishing everyone a very merry Christmas and a happy new year. AMEND is now closed until Thursday 2nd January 2025
What's it like to live with adrenocortical cancer? Who better to explain than patients themselves. Listen to what they have to say in our video 'Living with ACC'.
youtu.be/Me83Z_j59k4
#ACC #adrenocorticalcancer #adrenalcancer
Our patient community is ready and waiting. New drugs and therapies are desperately needed. In our community, mitotane treatment side effects is one of the biggest causes of negative impact on emotional wellbeing.
Registrations open for the #SIMBA #Adrenal educational event 2025! Endorsed by @esendocrinology.bsky.social @socendocrinology.bsky.social with global experts & patient associations @accsupportuk.bsky.social @amenduk.bsky.social #AddisonUK
sites.google.com/view/simbasimu… #EndoSky #MedSky
A physician’s personal story of his battle vs Adrenal Cancer published in #EndocrinePractice via Adrenocortical Carcinoma and the Mitotane Morass: A Physician/Patient Perspective #endosky www.endocrinepractice.org/article/S153...
Vu leur rareté on parle rarement des cancers de la surrénale dans les média. Une actrice courageuse fait état de sa maladie, le message clé comme pour toute maladie rare est d'avoir une prise en charge guidée par des centres experts.
www.20minutes.fr/sante/412660...
Helps us too!
Honoured to have presented our work on #liquidbiopsy #ccfDNA for prognostication and monitoring of #adrenal #cancer at the amazing @a5-adrenal.bsky.social @mdanderson.bsky.social Int’l Adrenal Cancer Symposium @amenduk.bsky.social @accsupportuk.bsky.social #adrenalcancer #adrenocorticalcarcinoma
My first post here!
🚨 Excited to present at the upcoming International Adrenal Cancer Symposium at MD Anderson Cancer Center in Houston, Texas. I will talk about the role of #liquidbiopsy #ccfDNA in #adrenalcancer #ACC.
Stay tuned for updates! #EndoSky #MedSky
Ho bloody ho T-shirt
Piste again hoodie
Seasonal sustainable clothing on side of AMEND available to buy now including two new skiwear designs!
amend.teemill.com
#charityshop
#charitystore
Dual Aldosterone- and Cortisol-Secreting Adrenal Cortical Carcinoma: Pre- and Perioperative Evaluation and Management
academic.oup.com/jcemcr/artic... #ACC #adrenocortical cancer @accsupportuk.bsky.social
Join AMEND for free including a welcome pack, event, news and a counselling service
AMEND is a UK charity (reg 1153890) providing information resources and support services to the multiple endocrine neoplasia communities. Visit our website for comprehensive information on diagnosis, treatment, and life with an #MENSyndrome
www.amend.org.uk
#MEN1 #MEN2 #MEN3 #MEN2A #MEN2B
Join ACC Support UK for free resources and support for adrenocortical cancer including free member pack, events, new and a counselling service
ACC Support UK is part of the patient group charity, @amenduk.bsky.social (reg 1153890). Visit our website for more information on diagnosis, treatment and life with #ACC, and how we help to support patients and their loved ones
www.accsupport.org.uk
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#adrenocorticalcancer #adrenalcancer