It was thanks largely to the work of your charity that I was able to get a diagnosis for a family member after about 2 years rather than the average of 20 (!) years mentioned in this research. Thanks for pioneering the connections and always sharing the research that backs it up.
Thanks it sounds like not severe enough but worth mentioning and keeping an eye on.
It is so hard. My husband commented that “one person can’t have this many things wrong”. We seem to be always at the doctor. I will check about the possible gastroparesis next time thank you.
Often complains of tummy pain, feels full easily even if favourite food. Gets constipated.
Yes and very hypermobile
Then you start to wonder if it is deliberate?
I guess it is to do with connective tissue. I think my daughter may possibly have it or similar.
Yes sometimes I agree that people are new to the topic and trying their best to understand and support. Other times it is accidental as we can easily repeat mistakes we hear. I find it disappointing though when educators don’t understand that an individual can’t be diverse (plural).
I’m not sure I can spell it but Gastropareisis ?
Connecting the issues related to connective tissue?
False! 9/9 Beington and tons of issues but no dislocations here.
What an absolutely brilliant conference- thank you! It filled me with hope to see such a multidisciplinary approach - educators, researchers, doctors, physios, psychiatrists and patients all working together.
I can’t read the article without subscription but it would be helpful to look at the work of @sedsconnective.org especially Chair and former headteacher/autism lead to understand the often overlooked links between physical health/attendance issues and neurodivergence.
thank you for including the link!
This is so sad, for the individuals who have lost their jobs and for the school and the children. I’m aware of school librarians who purchase second hand book with their own money to keep the libraries stocked.
Oh wow!
Please screen for commonly co-occurring conditions as each one is often a struggle to be believed and it is exhausting to go around multiple specialists.
So looking forward to this conference …
Exciting news - I am launching a YouTube Channel. Please subscribe and spread the word far and wide youtube.com/@bendybraindrj…
#hypermobilty #eds #neurodivergence #fibromyalgia #mecfs #anxiety #allthethings
📢 Brain, Body, Burnout
The invisible impact of COVID19 on hypermobility & neurodivergence: how our bodies, brains & burnout are affected.
July 11th Royal Society of Medicine
#Autism #ADHD #EDS #hEDS #HSD #Covid #dysautonomia #gastro #fibro #ChronicFatigue
www.rsm.ac.uk/events/rheum...
I think so
Lack of empathy maybe? Peoole don’t find it easy to believe we feel things differently eg something that hurts for one but not another. Sometimes prejudice making people discount what we say.
What do young people think about universal school mental health interventions?
A social worker who works in a high school:
Debate: Where to next for universal school-basedmental health interventions? Time to move towardsmore effective alternativesJack L. Andrews & Lucy FoulkesDepartment of Experimental Psychology, University of Oxford, Oxford, UKThere is an urgent need to improve mental health outcomes among young people. One approach taken toaddress this problem has been the design and delivery of universal school-based prevention, based on thera-peutic models such as CBT and mindfulness. Such interventions are delivered to groups of young people, irre-spective of risk or need. However, in this commentary, we argue that the initial appeal of universalinterventions has not been supported by the evidence: universal school-based prevention is less effective thantargeted approaches, often leads to null or unsustained positive effects, has the potential to elicit negativeeffects and is not well liked by young people themselves. In addition, many young people in each classroomalready meet the criteria for a mental disorder, meaning that prevention approaches may not be appropriateor effective for this group. In this commentary, we respond to Birrell et al.’s (2025) paper by arguing that thefield should move away from universal prevention and instead invest our limited resources in the refinementand dissemination of interventions with a stronger evidence base, such as one-to-one, targeted and indirectapproaches.
For me, these new findings are exceptionally useful for suggesting we should stop universal MH interventions in schools, and focus on one-to-one, targeted and directed interventions instead. @jackandrews.bsky.social and I argue this is more detail below
doi.org/10.1111/camh...
And EVEN IF some autistic people are unable to pay tax, hold a job, play sports, be creative, go on dates, and will need high levels of support for their whole lives, you know what?
They still deserve that support, love, and understanding so they can live fulfilling lives full of happiness and joy.
❤️🌏💫
A very fair point. Perhaps instead of "autism awareness” activities there could be training for all on accepting and understanding both neurotypical and neurodivergent social expectations.
Especially with autistic girls there’s a tendency to attribute everything to anxiety, especially all the co-occurring physical health issues such as symptomatic hypermobilty. @sedsconnective.org
A digital graphic from SEDS Connective promoting Autism Acceptance Day on Wednesday, April 2, 2025. The background is gold with colorful stars and glitter effects. The SEDS Connective logo, featuring an infinity symbol with multicolored segments, is at the top. The text encourages people to wear gold, red, or multiple colors for autism acceptance, aiming to create a society that acknowledges diverse health differences. The website “www.sedsconnective.org” is included for more information.
Today is Autism Acceptance Day! 🌟 The autistic community values acceptance over awareness. Check out our blog by our chair and founder @jgjanegreenmbe.bsky.social ♾️🦓🙏 sedsconnective.org/post/autism-aw… #Autism #acceptance #neurodivergent
We are proud our Chair was keynote speaker the Global Learning conference on ADHD Autism Dyspraxia + and hypermobility (EDS HSD) with the @ehlersdanlos.bsky.social @jgjanegreenmbe.bsky.social
