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Jo Dainow

@joda

Trustee at Long Covid Support longcovid.org #LongCovid #TreatLongCovid Happy when in nature. Mason Bee Guardian.

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Latest posts by Jo Dainow @joda

Yellow background with a large white circle inside of which is the text Support us through easy fundraising. Below is our Long Covid Support logo. There are piles of presents in bottom right and left corners of the image.

Yellow background with a large white circle inside of which is the text Support us through easy fundraising. Below is our Long Covid Support logo. There are piles of presents in bottom right and left corners of the image.

๐ŸŽ„๐ŸŽ If youโ€™re shopping online, why not raise funds for our charity & help us continue vital work - it costs you nothing!!

Easy Fundraising partners with 8,000+ brands who donate part of what you spend to a cause of your choice.

โžก๏ธ Take a look: www.easyfundraising.org.uk/causes/longc...

#LongCovid

10.12.2024 10:41 ๐Ÿ‘ 9 ๐Ÿ” 8 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 1

๐Ÿ“ฃ We are proud to be selected as the Secretariat for the APPG on #LongCovid. We take with us the voices from the Long Covid community, ensuring focus remains on Long Covid & what is needed to progress Prevention, Awareness, Support & Treatment of this life alteringย illness.

10.12.2024 16:01 ๐Ÿ‘ 69 ๐Ÿ” 25 ๐Ÿ’ฌ 10 ๐Ÿ“Œ 3

Really looking forward to this Binita - thank you ๐Ÿ’™

07.12.2024 11:31 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Looking forward to this one! Dr Dempsey is a leading authority on MCAS.
Join us 7pm GMT on Wednesday evening โฌ‡๏ธ

07.12.2024 11:23 ๐Ÿ‘ 37 ๐Ÿ” 14 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0

โ€œGlobally, accepted estimates have suggested between 65m & 200m people have #LongCovidโ€ฆ between 19.5m & 60m people face years of impairmentโ€

Letโ€™s compare with recent global figures from the WHO:

๐ŸŸ  Dementia: 55m+
๐ŸŸ  Rheumatoid arthritis: 18m
๐ŸŸ  Parkinsonโ€™s disease: 8.5m+
๐ŸŸ  MS: 1.8m+

#CureLongCovid

15.11.2024 06:39 ๐Ÿ‘ 61 ๐Ÿ” 24 ๐Ÿ’ฌ 3 ๐Ÿ“Œ 2
Image with blue background and header in white reading Follow us on Social Media. There are images of our accounts on Bluesky, Facebook, Instagram, LinkedIn, Threads and X. 
At the bottom is our Long Covid Support logo and website address www.longcovid.org.

Image with blue background and header in white reading Follow us on Social Media. There are images of our accounts on Bluesky, Facebook, Instagram, LinkedIn, Threads and X. At the bottom is our Long Covid Support logo and website address www.longcovid.org.

We continue to raise #LongCovidAwareness across various social media platforms - Take a look! โฌ‡๏ธ

#LongCovid

linktr.ee/longcovidsup...

15.11.2024 15:08 ๐Ÿ‘ 37 ๐Ÿ” 12 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
Preview
Long covid: where are we, what does it say about our pandemic response, and where next? The UK Office for National Statistics (ONS) Infection Survey was the best estimate that we had on the number of people experiencing long covid. When it ended in March 2023, there were an estimated 1.7...

New from Danny Altmann & me in BMJ on Long Covid: where we are, where we should be (loads more trials for treatments!) and where we should have been (factoring in Long Covid from the very start of the pandemic).

www.bmj.com/content/383/...

19.12.2023 23:16 ๐Ÿ‘ 71 ๐Ÿ” 42 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 2
NEW: COVID19 variant of interest JN.1 with update for health workers

๐ŸšจFrom the World Health Organization:

โ€œFor health workers and health facilities, WHO advises:

-Universal masking in health facilitiesโ€

#LongCovid
#LongCovidRuinsLives
#ItCouldHappenToYou

worldhealthorganizationdepartmentofcommunications.cmail20.com/t/d-e-vkkjyu...

20.12.2023 07:40 ๐Ÿ‘ 11 ๐Ÿ” 9 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Poster with text saying There is no cure for Long Covid. Support our letter to number ten by signing the petition and writing to your M P. Fund and Research and Treat Long Covid. longcovidgroups.org

Poster with text saying There is no cure for Long Covid. Support our letter to number ten by signing the petition and writing to your M P. Fund and Research and Treat Long Covid. longcovidgroups.org

๐Ÿ“ฃJoin the movement!

Write to your MP to urge them to support our campaign calling for a 5-step road map for #LongCovid.

Let them know why their support matters!!

โžก๏ธ Letter template: www.longcovidgroups.org/it-could-hap...

#LongCovidAwareness

15.12.2023 18:10 ๐Ÿ‘ 8 ๐Ÿ” 4 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Just goes to show that anyone can get #LongCovid, even the most fit out of all of us.
Thank you @oonaghcousins.bsky.social for being a fantastic advocate!

10.12.2023 21:41 ๐Ÿ‘ 8 ๐Ÿ” 4 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Long Covid Support Advisor Dr Ziyad Al-Aly talked last week in Melbourne about #LongCovid:

โ€œIt affects nearly every organ system, the kidneys, and the heart, and the brain, and can lead to diabetes, and blood clotting disordersโ€ฆ they deserve treatment yesterdayโ€

www1.racgp.org.au/newsgp/clini...

11.12.2023 08:14 ๐Ÿ‘ 10 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐ŸšจAt #covidinquiryuk PM Rishi Sunak apologises:

โ€œI wanted to start by saying how deeply sorry I am to all those who lost loved ones and also all those who suffered in the various ways as a result of the actions were takenโ€

Weโ€™re still suffering lad, itโ€™s not over!!

#LongCovid
#ItCouldHappenToYou

11.12.2023 11:02 ๐Ÿ‘ 11 ๐Ÿ” 4 ๐Ÿ’ฌ 3 ๐Ÿ“Œ 1
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๐ŸšจMore from the UK Covid Inquiry - Sunak is asked about #LongCovid:

Q. Do you recall at what time Long Covid presented itself on the Exchequerโ€™s horizon?

A. I donโ€™t specifically. I recall in the May plan having a conversation with the CMO about consideration of other health impacts.

May! May!!

11.12.2023 13:04 ๐Ÿ‘ 6 ๐Ÿ” 1 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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๐Ÿ“ฃ Weโ€™re back at the #CovidInquiryUK today!

๐Ÿ”ด Fund ๐ŸŸ  Research ๐Ÿ”ต Treat
#LongCovid!

There is currently NO CURE!!

1.9m of us in the UK are experiencing vastly debilitating effects, including our future workforce of 62,000 children!

@RishiSunak
#ItCouldHappenToYou

11.12.2023 13:30 ๐Ÿ‘ 6 ๐Ÿ” 3 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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๐Ÿ’š At #CovidInquiryUK the #LongCovidGroups push for answers, along with our fantastic legal team!

Thank you to all attending in person & working away behind the scenes (including on social media! ๐Ÿ˜‰) โค๏ธ

Exhausted we may be but we will not stop!

#LongCovid
#ItCouldHappenToYou

11.12.2023 14:52 ๐Ÿ‘ 6 ๐Ÿ” 2 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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1/2 โ™ฅ๏ธ Another busy day at the #CovidInquiry, we are all shattered!

Closing statement for the #LongCovidGroups due later this week. We will come together again & will continue to push for:

๐Ÿ”ด Dedicated research funding

๐Ÿ”ต Treatment trials

๐ŸŸข #LongCovid awareness campaigns

11.12.2023 19:34 ๐Ÿ‘ 10 ๐Ÿ” 2 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 1
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๐Ÿ“ฃOur amazing Ambassador Oonagh Cousins on BBC5Live:
โ€œI was a professional athlete selected for the Olympics. Caught Covid, developed into serious #LongCovid. For months life revolved around trying to get through basic daily tasks. After 3yrs I decided to retireโ€
โžก๏ธLink: www.bbc.co.uk/sounds/play/...

10.12.2023 19:13 ๐Ÿ‘ 15 ๐Ÿ” 4 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 1
Preview
Urgent Investment for Long Covid: Call to Action for Prime Minister... Our collective appeal is centred around the urgent need for a clear road map on targeted investment in biomedical and health research. We propose a comprehensive 5-step strategy that...

๐Ÿšจ๐Ÿ“ฉTodayโ€™s the day we hand-deliver our letter to No.10!

We need:

โ™ฆ๏ธDedicated research funding

โ™ฆ๏ธTreatment trials

โ™ฆ๏ธPublic #LongCovid awareness campaigns

Help us reach 3000 signatures!

โžก๏ธ โœ๏ธSign here: bit.ly/46Hjjn1

#LongCovidGroups
#ItCouldHappenToYou

06.12.2023 06:47 ๐Ÿ‘ 6 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ“ฃAs Former PM Boris Johnson gives evidence at the UK Covid Inquiry:

Our Founding Trustee Natalie Rogers gives a statement on behalf of the #LongCovidGroups:

โ€œEvidence heard confirmed #LongCovid has been Sidelined, Disbelieved and Ignoredโ€

@longcovidkids.bsky.social
@longcovidsos.bsky.social

06.12.2023 12:17 ๐Ÿ‘ 14 ๐Ÿ” 8 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ“ฃ At UK Covid Inquiry our Ambassador Oonagh Cousins is interviewed with @sammiemc.bsky.social (@longcovidkids.bsky.social) by BBC News on Boris Johnson:

โ€œLooking after the health of the Nation is the primary responsibility of our Leaders & he continuously put his ego & self-interest ahead of thatโ€

06.12.2023 12:46 ๐Ÿ‘ 6 ๐Ÿ” 4 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ“ฃ๐Ÿšจ Let us know if you #SpotTheVan!!

Our #LongCovidGroupsโ€™ digi-van is in central London raising public awareness on #LongCovid.

๐ŸคณTake a photo if you see it and tag us!

#ItCouldHappenToYou
#covidinquiryUK
@longcovidkids.bsky.social @longcovidsos.bsky.social

06.12.2023 14:27 ๐Ÿ‘ 9 ๐Ÿ” 3 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ“ฃ๐Ÿšจ***DELIVERED!!!***๐Ÿšจ
The #LongCovidGroupsโ€™s letter has been delivered to No. 10 Downing Street!!!

We will keep pushing for:

โ™ฆ๏ธ Dedicated research funding

โ™ฆ๏ธ Treatment trials

โ™ฆ๏ธ Public #LongCovid awareness campaigns

โžก๏ธ Read more: you.38degrees.org.uk/petitions/ur...

06.12.2023 15:44 ๐Ÿ‘ 10 ๐Ÿ” 1 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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๐Ÿ’š Wow, what a day!๐Ÿ’™
We are shattered but Boris Johnson is back at #covidinquiryUK tomorrow and we will not stop until there is appropriate care, research and support for #LongCovid!
Here are a few photos of today, with fantastic charities/organisations working together.

06.12.2023 21:24 ๐Ÿ‘ 11 ๐Ÿ” 2 ๐Ÿ’ฌ 2 ๐Ÿ“Œ 1
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๐Ÿ’š At #covidinquiryUK today - this photo says it all.

#LongCovid
#ItCouldHappenToYou
#ResearchLongCovid

07.12.2023 13:29 ๐Ÿ‘ 9 ๐Ÿ” 3 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ’šAnother exhausting day with the #covidinquiryUK but again the #LongCovidGroups and other organisations make a stand!
A few photos from todayโ€ฆ

#LongCovid
#ItCouldHappenToYou
#BorisTheLiar
@longcovidkids.bsky.social
@longcovidsos.bsky.social

07.12.2023 21:14 ๐Ÿ‘ 13 ๐Ÿ” 3 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Graphic saying Long Covid, Lives Ruined, We need answers.

Graphic saying Long Covid, Lives Ruined, We need answers.

We've arrived on Bluesky! Please bear with us while we get up and running on here.
If you have suggestions on who to follow on here from the Long Covid and wider chronic illness communities please let us know!

16.10.2023 10:11 ๐Ÿ‘ 77 ๐Ÿ” 26 ๐Ÿ’ฌ 8 ๐Ÿ“Œ 6

People think of the pandemic as having been going on for nearly 4 years.
Yes, it has.

But the mass repeat infection experiment has only really been going for 1ยพ years.

And its effects are only just starting to truly show.

19.09.2023 13:34 ๐Ÿ‘ 167 ๐Ÿ” 36 ๐Ÿ’ฌ 4 ๐Ÿ“Œ 0

We are bringing our call for Covid Action (Now!) to Bluesky!

19.09.2023 17:59 ๐Ÿ‘ 15 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Clinically Vulnerable Families has just made it to BlueSky.

Please follow and share if you are interested in staying safe from Covid.

19.09.2023 17:21 ๐Ÿ‘ 26 ๐Ÿ” 5 ๐Ÿ’ฌ 6 ๐Ÿ“Œ 0