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Miikka Vikkula

@mvikkula

Vascular anomalist

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23.01.2025
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Latest posts by Miikka Vikkula @mvikkula

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It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC

24.02.2026 11:59 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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The VAS European Book on Angiology/Vascular Medicine
(ISBN: 978-3-031-82232-2) is now published accessible in print and online ! #VASCAPA #HEVAS #CMTC #VASCERN #EURORDIS

11.02.2026 11:42 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Laurence and I were honoured to participate in the vascular anomaly session at the French Academy of Medicine on 2 February 2026, organised by Prof. Anne Dompmartin. Our presentations were dedicated to our late Mentor, Dr John B. Mulliken.

06.02.2026 16:38 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

#PIK3R1 and PIK3CA mutations with Capillary Malformation with #DilatedVeins (CMDV) lnkd.in/e2UAUKJr JID cover video lnkd.in/eUSWXYFN features #MRI with #hyperintense slow-flowing blood in dilated veins. A great collaboration within our #VACure and #Leducq networks. #VASCAPA #HEVAS #CMTC #VASCERN

22.01.2026 17:29 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Congratulations Emmanuel on showing how #sirolimus treatment can be adapted. #patients with #slow-#flow #vascular #malformations have #symptom reduction even with #intermittent dosing. A big step forward in the #multimodal management of VAs. #VASCERN #VASCAPA #CMTC #HEVAS #ISSVA #EVDays #Lymph

17.12.2025 07:25 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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The virtual #European #Angiology Days (EADays) 2025 are just over. Great presentations and discussions. And easy access - no travel !! Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCAPA #HEVAS #CMTC #ISSVA #NAVBO #EVBO

15.12.2025 13:41 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Congratulations to all 3 young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days 2025 Dr #Annegret Holm, Dr J Mangulabnan, and Dr Anne Miralles-Amora. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC

15.12.2025 13:38 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Congratulations Peyman for the identification of associations between #variants in #spliceosomal genes and the occurrence of #cleft #lip and #palate. A #complex disease and #heterogeneous underlying pathophysiology. #Radiorg #eurordis #CLP #WELRI onlinelibrary.wiley.com/journal/humu/

15.12.2025 12:33 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Great 2 days at #French Society of #Lymphology in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #lymph #LM

05.12.2025 17:16 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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What a great session at the #BRAIN 2025 in London on fast-flow vascular malformations in the brain. Intense discussions and data sharing. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg

04.12.2025 12:50 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Great two sessions this morning at the mammouth size 2025 #AHA on various aspects of lymphatic and vascular situations of interest to cardiologists. Naturally I was addressing the #genetic basis and pathophysiology of #primary #lymphedema. #vascern #eshg #hevas #cmtc #welbio #theralymp #lymph

07.11.2025 18:08 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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So happy to have been able to teach about genetics and theragnostics on vascular anomalies at the 18th European Course in Neuroradiology. An extensive, high level course for all those interested in specialising in the field. Humbling to be part of the faculty.

02.11.2025 18:19 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Learning of complex regulatory affairs in rare disease field at World Orphan Drug Congress Amsterdam. Great to see #EMA discussing with clinicians, patients and industry. But a lot to be done to accelerate development of drugs for orphan diseases. #vascapa #welbio #hevas #cmtc #eshg #vascern #esl

29.10.2025 09:46 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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It was a great International Society of Lymphology conference in Antalya. Thank you for the great organisation Pinar. Lots of news ideas and new collaborations 🀩

19.10.2025 17:59 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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What a Great visit to the Mendel museum this afternoon. Atbthe the roots of Mendelian genetics.

03.10.2025 21:49 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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So happy to be part of the Annual Pediatric Hématome -Oncology meeting of Czechia and Slovakia in Brno, the birth place of Mendelian Genetics 🀩

03.10.2025 10:25 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Happy to be part of the annual pediatric hemato-Oncology meeting of Czechia and Slovakia. #vascern #vascapa #hevas #cmtc #issva

03.10.2025 10:18 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

It was indeed a great ReVAMP LEDUCQ meeting in Orford. We have a great network.

10.09.2025 06:59 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Are you working to advance research in rare diseases or rare cancers? This is for you! Apply to ERDERA’s Networking Support Scheme by 7 Oct 2025 ⏰ πŸ”— Find more information on applying here: https://loom.ly/CwIvcvM
#ERDERA #ResearchFunding

09.09.2025 23:05 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Thank you to everyone who joined the #WRISymposium for a day of exciting #VascularBiology research and great discussionsβ€”see you next year!

11.06.2025 04:02 πŸ‘ 7 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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It was again a great Lymphatic Forum, this time in Chicago. From basic lymphatic endothelial cell biology to clinical trials on lymphatic diseases. Looking forward to the 2027 one.

15.06.2025 20:07 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

It was great to be able to add a small human bit to the story. # VASCAPA #vascern #cmtc #Hevas #vascapa #evbo #navbo

25.05.2025 18:01 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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If you are interested in the clinical aspects of lymphatic diseases, don't miss the 30th ISL World Congress of Lymphology. #lymph @vascern.bsky.social
#issva #theralymph

09.05.2025 12:00 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Join us! Abstract submissions due in one week

10.03.2025 20:54 πŸ‘ 8 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0

It was absolutely fantastic Li-Kun. Great organisation. And thought provoking discussions. Thank you for all.

22.04.2025 10:02 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN

10.04.2025 18:19 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Great First European #Lymphatic Forum in Toulouse by #theralymph. Active participation by our group as well. Looking forward to the second edition in 2027 in #Budapest. #vascern #lymph #hevas #cmtc #le&rn #ESL #ISL #welbio

26.04.2025 10:50 πŸ‘ 5 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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#VASCERN participating in discussions on lymphatic diseases at the biannual Polish Lymphatic Meeting in Wroclaw. VASCERN has been referred to by several Polish speakers as well. 🀩 #vascapa #hevas #lymph #cmtc

26.04.2025 10:39 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing

26.04.2025 11:00 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing

26.04.2025 11:00 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0