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Robin Baumeister

@quoththerobin

she/her | MS, MHS | autism/neurodiversity & health research, research assistant @ JHU | serial hobbyist; helicopter cat parent; polite menace | πŸŒˆβ™ΎοΈπŸ¦‹πŸŒ± views my own.

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03.12.2024
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Latest posts by Robin Baumeister @quoththerobin

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In this meta-analysis of 40 studies incl 5,619,584 participants we found that #autistic individuals are more than 2X likely to have had at least 1 adverse childhood experience, incl all types of abuse, neglect, violence, bullying etc., than a non-autistic person.
journals.sagepub.com/doi/full/10....

04.02.2025 23:24 πŸ‘ 39 πŸ” 22 πŸ’¬ 2 πŸ“Œ 0

me, reading all of you on bluesky: the american experiment is over. we know not what hell we enter over the coming years

me, writing an email: Hi! I hope this finds you well.

05.02.2025 21:33 πŸ‘ 2194 πŸ” 284 πŸ’¬ 19 πŸ“Œ 6

7) Use the phrase "might as well" to call when you have time. Doesn't have to be a big deal / planned scheduled thing. On a lunch break? call yr reps. Taking the dog out? Call yr reps. Smoke break? Plz consider quitting but also call your reps.

8) Validate your anxiety. It's ok to be nervous!

05.02.2025 20:36 πŸ‘ 15 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0

4) Walk around & PACE if that helps you. Keep your mind focused on moving your body so it isn't overthinking the call

5) If you get nervous & hang up that's ok. You're helping by lighting up those phone lines.

6) The busy signal is a sound of VICTORY, not a clue your call is a bother. Keep it up!

05.02.2025 20:36 πŸ‘ 14 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0

Tips for Autistics to shake phone anxiety & call reps:

1) Body double, live or virtual. Have a friend call!

2) Have a written script! it's ok to sound like you're reading directly from it. You don't need to mask, but you DO need to be clear

3) Have 1-3 SPECIFIC issues to address. Ex: DOE & RFK!

05.02.2025 20:36 πŸ‘ 115 πŸ” 28 πŸ’¬ 8 πŸ“Œ 6
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Let’s talk burnout #actuallyautistic #autism #burnout

04.02.2025 12:36 πŸ‘ 49 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0

hate it when i stand up too quickly and i get dizzy and society collapses

21.01.2025 21:28 πŸ‘ 1525 πŸ” 292 πŸ’¬ 12 πŸ“Œ 3
This is the front page of a fraudulent research article that purported to show a link between vaccines and autism. The word "RETRACTED" is written across it in large red letters. 

Wikipedia: On 28th February 1998, a fraudulent research paper by physician Andrew Wakefield and twelve coauthors, titled "Ileal-Lymphoid-Nodular Hyperplasia, Non-Specific Colitis, and Pervasive Developmental Disorder in Children", was published in the British medical journal The Lancet.[1] The paper falsely claimed causative links between the measles, mumps, and rubella (MMR) vaccine and colitis and between colitis and autism. The fraud involved data selection, data manipulation, and two undisclosed conflicts of interest.

This is the front page of a fraudulent research article that purported to show a link between vaccines and autism. The word "RETRACTED" is written across it in large red letters. Wikipedia: On 28th February 1998, a fraudulent research paper by physician Andrew Wakefield and twelve coauthors, titled "Ileal-Lymphoid-Nodular Hyperplasia, Non-Specific Colitis, and Pervasive Developmental Disorder in Children", was published in the British medical journal The Lancet.[1] The paper falsely claimed causative links between the measles, mumps, and rubella (MMR) vaccine and colitis and between colitis and autism. The fraud involved data selection, data manipulation, and two undisclosed conflicts of interest.

Today is Retraction Day, when we observe the anniversary of the retraction (Feb. 2, 2010) of the fraudulent paper that purported to show a link between vaccines and autism. πŸ§ͺ#medsky

02.02.2025 14:25 πŸ‘ 3989 πŸ” 1711 πŸ’¬ 45 πŸ“Œ 74

wow just logged off and there are problems there too

04.02.2025 18:17 πŸ‘ 5400 πŸ” 561 πŸ’¬ 56 πŸ“Œ 13

Whenever this comes up I think about how the first person diagnosed with autism was alive until 2023

04.02.2025 15:36 πŸ‘ 169 πŸ” 17 πŸ’¬ 2 πŸ“Œ 0

I went to my Congressman's local office today. First off, they were surprised that I was there. They said they had been getting phone calls, but I was the first walk-in. That said, the phones were not ringing off the hook. If the DC phone lines are busy, try calling the local office.

04.02.2025 02:36 πŸ‘ 25005 πŸ” 5938 πŸ’¬ 434 πŸ“Œ 250
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β€œI Would Not Be Here Without Trans Girls”: Chappell Roan on the Grammys 2025 Red Carpet The Midwest Princess made a powerful statement of trans solidarity ahead of the ceremony.

β€œThey will never, no matter what happens, take trans joy away.”

Our resilience is in our joy. No politician can take that from us.

03.02.2025 19:19 πŸ‘ 1379 πŸ” 189 πŸ’¬ 7 πŸ“Œ 4

I hope you will all join me in expressing your thanks to the NIH and NSF staff who are working in an impossibly difficult and chaotic environment to keep science going in our country.

03.02.2025 01:45 πŸ‘ 1666 πŸ” 276 πŸ’¬ 13 πŸ“Œ 19
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Neurozesty neurodeviant learns to love neurofruity neuroheretical brain A neurowiggly little neurobabe has finally learned to accept her neuroquirks, neurotraits and general neurowhimsy, according to sources. Avery Mann, 38, fell into a deep despair after being diagnosed ...

Satire: I dream of a world where every neurocutie can recognise our unique strengths, & realise autism doesn’t have to hold us back! If we all just had the right support & Β£10K from our parents, we’d be free to be our neurosquiggly selves. @thedailytism.bsky.social:

thedailytism.com/neurozesty-n...

02.02.2025 17:44 πŸ‘ 97 πŸ” 15 πŸ’¬ 3 πŸ“Œ 2

Autistic Lexicon

Autism Community vs. Autistic Community.

The *Autistic* Community is inclusive of anyone who is Autistic (with a diagnosis of ASD or not)

The *Autism* Community is arguably anyone/anything that has any connection to Autism and is a much larger.

11.01.2025 22:57 πŸ‘ 139 πŸ” 24 πŸ’¬ 4 πŸ“Œ 2
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This is what the government did with 120K+ Japanese Americans in 1942.

I know. I was there in those camps.

31.01.2025 19:11 πŸ‘ 99480 πŸ” 31808 πŸ’¬ 3477 πŸ“Œ 1533
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RFK Jr. wants evidence that vaccines do not cause autism.

The evidence is there. He refuses to see it.

30.01.2025 20:16 πŸ‘ 5037 πŸ” 515 πŸ’¬ 195 πŸ“Œ 51
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What it’s like watching RFK Jr.’s hearing with his biggest fans as an autistic person Analysis: Robert F. Kennedy has earned a strong cult following. Eric Garcia spent Kennedy’s confirmation hearing with his faithful flock

I've spent the last decade chronicling how the lies of people like RFK Jr. has actively harmed #ActuallyAutistic people and their loved ones. I spent Kennedy's confirmation with his biggest fans as they repeated his lies.
www.independent.co.uk/news/world/a...

30.01.2025 03:23 πŸ‘ 137 πŸ” 41 πŸ’¬ 2 πŸ“Œ 4
An illustration of a tiger protecting cubs colored in Trans and nonbinary flag colors. Says: "protect trans & nonbinary kids!"

An illustration of a tiger protecting cubs colored in Trans and nonbinary flag colors. Says: "protect trans & nonbinary kids!"

We're going to make it through this πŸ©·πŸ’™
Let's turn our fear and rage into community action.

21.01.2025 15:25 πŸ‘ 33830 πŸ” 14284 πŸ’¬ 95 πŸ“Œ 76

if it wasn't they wouldnt try so hard to take it from you everyday

29.01.2025 14:54 πŸ‘ 737 πŸ” 179 πŸ’¬ 6 πŸ“Œ 1
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This is my favorite picture of Stonewall.

They knew they were getting arrested just for being LGBTQ+.

Yet... they're still here, standing outside of the boarded up Stonewall Inn, smiling as the world was at a fever pitch of hatred against them.

I think about it a lot in moments like this.

29.01.2025 03:18 πŸ‘ 37567 πŸ” 6533 πŸ’¬ 370 πŸ“Œ 217
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Autism community fears RFK Jr. would set back decades of progress Advocates worry that as HHS secretary, Robert F. Kennedy Jr. could undermine years of work to unlink autism and vaccines and divert precious research dollars to a discredited theory.

Autism advocates say they are fearful that if RFK Jr. is confirmed, it could undermine years of progress in unlinking autism and vaccines, while potentially diverting research dollars to a theory already discredited by hundreds of studies worldwide.

29.01.2025 03:46 πŸ‘ 538 πŸ” 125 πŸ’¬ 45 πŸ“Œ 15

You don’t always have to try your best, sometimes you can even try your worst just as a little treat

29.01.2025 14:50 πŸ‘ 523 πŸ” 39 πŸ’¬ 11 πŸ“Œ 6

many people are saying www.congress.gov/contact-us

29.01.2025 03:08 πŸ‘ 74 πŸ” 22 πŸ’¬ 1 πŸ“Œ 2

Can’t even begin to imagine the pain of that, but thank you for being a voice for us right now

29.01.2025 16:20 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Civic Engagement Toolbox For Self-Advocates - Autistic Self Advocacy Network Right now, many people are getting involved in political advocacy for the first time. People are going to town hall meetings and making phone calls to their members of Congress. They're writing…

Want to get through to your elected officials, but not sure how? Check out our toolkit all about civic engagement!

29.01.2025 00:00 πŸ‘ 11 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0
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So Trump's shutting down of the entire government's funding system for American projects is literally so he can go line by line and target transgender people and other minorities.

When we said transphobia affects cis people too, well... here you go.

28.01.2025 18:39 πŸ‘ 3462 πŸ” 982 πŸ’¬ 60 πŸ“Œ 58
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we could sit together and do nothing all dayβ€” i'd still be the happiest

25.01.2025 13:06 πŸ‘ 4698 πŸ” 1092 πŸ’¬ 35 πŸ“Œ 10

Please share our FREE support group guide for anyone wanting to create affirming spaces for autistic transgender and gender diverse young adults. Thank you! #AutRes #Autism #LGBT

27.01.2025 17:38 πŸ‘ 16 πŸ” 11 πŸ’¬ 0 πŸ“Œ 0
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Oppose Robert F. Kennedy Jr. for Secretary of Health and Human Services - Senate Hearing on 1/29 β­‘ 5 Calls The US Department of Health and Human Services (HHS) is the United States’ principal federal health agency and the world’s largest public health …

Take action to #StopRFK! His long record of spreading misinformation about autism in particular and public health in general makes him a disastrous choice for HHS Secretary.

27.01.2025 22:00 πŸ‘ 54 πŸ” 34 πŸ’¬ 0 πŸ“Œ 0