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Karen Cheng

@karencheng

#Myositis patient and advocate; Medical Affairs and Drug Development executive; Retired Clinician; Private Pilot; Scuba Diver; All views are my own

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24.01.2025
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Latest posts by Karen Cheng @karencheng

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🌍✨ Raquel Marques, Chair of the Local Organizing Committee for GCOM 2026, is excited to welcome the global myositis community to Lisbon! Join us for the 6th Global Conference on Myositis.
Early-bird registration open until 7 Jan 2026. πŸ‡΅πŸ‡ΉπŸ’™
gcom.imyos.org

#Myositis #GCOM #iMyoS

03.01.2026 18:05 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Giulia Quiring, 3rd-year PhD student at the University of Strasbourg, is attending for the first time.πŸš€
Her research focuses on anti-HMGCR immune-mediated necrotizing myopathy (IMNM).✨
Meet her at GCOM26 in Lisbon!
πŸ‘‰ gcom.imyos.org

#GCOM2026 #Myositis #iMyoS #RareDisease

04.01.2026 16:04 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸŽ₯ Meet Ingrid de Groot πŸ‡³πŸ‡±
From The Netherlands, Ingrid has lived with myositis for 20 years. A dedicated myositis patient research partner, she believes patients, researchers & clinicians together can drive faster diagnosis & better treatments.
πŸ‘‰ gcom.imyos.org
#GCOM2026 #Myositis #RareDisease

05.01.2026 19:30 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸ“£ Meet Prof. Marianne de Visser, an adult neurologist from the Netherlands. A leading NMD expert. She led the AMC Amsterdam neuromuscular group, built a renowned #myositis center & remains active as professor emeritus supporting research, mentorship & the patient perspective.
πŸ”— gcom.imyos.org
#GCOM

12.01.2026 18:38 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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🌍 Excited for GCOM next month!
Dr. Marie Hudson (McGill University, Montreal) looks forward to learning more about muscle ultrasound in myositis and moderating a workshop on epidemiology and classification.
Join the global myositis community in Lisbon
πŸ‘‰ gcom.imyos.org
#GCOM26 #Myositis #RareDisease

18.02.2026 18:36 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Choon Guan Chua, Consultant Rheumatologist at Tan Tock Seng Hospital in Singapore, will be coming to the GCOM 2026!
He is connecting with the global myositis communityβ€” to exchange research findings & ideas and explore multi-omic approaches.
πŸ‘‰ gcom.imyos.org
#GCOM26 #Myositis #IIM #iMyoS

18.02.2026 18:50 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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✨️MIHRA Membership✨️ is cost-free and strives for diverse and global inclusion. If you haven’t already registered for MIHRA membership, you are welcome to either follow the QR below or click this link for the MIHRA membership form:
forms.gle/HmYbFxtPZFFu27…
which takes about 5 minutes!

15.03.2025 01:26 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Today is Rare Disease Awareness Day!

🀝At #EULAR, we stand with everyone living with rare rheumatic diseases β€” conditions that are often overlooked, underdiagnosed, and misunderstood.

Together, let’s raise awareness to promote earlier diagnosis and better access to care.

#RareDiseaseDay

28.02.2026 07:59 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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🌍 Our 2026 #WORDDay2026 webinar brings the theme: β€œChildren Are Not Small Adults: Why Young People Need Dedicated Paediatric Rheumatology Care”.

We are pleased to have Caroline Kirsten from EULAR Young PARE as one of our speakers. Join us πŸ‘‰https://pulse.ly/3npd35i5ur

#eularPARE #eularPAED

26.02.2026 17:00 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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πŸ“’ EULAR is soon to launch the #EULARGlobalEquityFund, a new global initiative dedicated to reducing inequities in rheumatology care, education, and research worldwide.

πŸ“… Call opens from 6 March 2026 to 10 April 2026

Stay tuned and get ready to apply πŸ‘‰ https://pulse.ly/ptxyfusrx5

#HealthEquity

17.02.2026 10:59 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸ“£ CLINICAL CASES WORKSHOPS
We are pleased to invite submissions for the Clinical Cases Workshop, an innovative educational activity of the Global Conference on Myositis (GCOM) 2026.

🚨Deadline: 13. February 2026
πŸ”— gcom.imyos.org/submit-for-t...

#GCOM #iMyoS #Lisbon #Myositis

04.02.2026 10:08 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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🀝 Onβ€―#WorldCancerDay, our hearts go out to everyone affected by cancer.

Did you know that people living with RA may have a slightly higher risk of certain cancers?

Awareness, regular screenings, and effective RA management are key toward prevention.β€―Let’sβ€―take it together!

04.02.2026 06:59 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Want to find out about the latest advances in #CARTCell therapy?πŸ©ΈπŸ’‰

Register for the EBMT-EHA 8th European CAR T-cell Meeting taking place next month, and stay tuned for our exclusive coverage of this fantastic event!πŸŽ₯

Click here to register:
πŸ‘‰ buff.ly/kVxJ8jg.. πŸ‘ˆ

#CART26 @theebmt.bsky.social

19.01.2026 12:02 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸ‘‰ Register by 7 January to benefit from Early Bird rates‼️
gcom.imyos.org

#imyos #gcom #myositis

23.12.2025 17:43 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Prof. Ingrid Lundberg from the Karolinska Institute was the chair of the first GCOM held in Stockholm, Sweden in 2015.
She tells us why the GCOM is a great meeting for anyone who is working in the area of inflammatory myopathies (myositis).
gcom.imyos.org

#myositis #gcom #imyos #Lisbon2026

31.12.2025 13:14 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Helene Alexanderson is an Associate Prof. of Physiotherapy at the Karolinska Institute in Stockholm & a global leader in exercise research for myositis. Through pioneering research, she has helped establish exercise as a safe, evidence-based way to improve health & quality of life. πŸ’ͺ
gcom.imyos.org

30.12.2025 16:29 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Meet Quentin Toumazeau, a 1st-year PhD student exploring molecular mechanisms behind exercise-& myositis-related muscle damage. Combining sports science & molecular biology, he works at the intersection of medicine & care & looks forward to connecting with the myositis GCOM community.
gcom.imyos.org

29.12.2025 10:06 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Olga DrΓ‘palovΓ‘ is Chair of the Czech Myositis Working Group & brings lived experience as a myositis patient.πŸ’ͺ
At the 6th GCOM in Lisbon, she is excited to see patient voices represented, shaping discussions & driving impact at the heart of progress.
gcom.imyos.org
#myositis #gcom #imyos #patients

28.12.2025 16:10 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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We’re excited to spotlight Daniel C. Andersson, Associate Prof. of Physiology at Karolinska Institute.He is also a consultant cardiologist & part of the multidisciplinary myositis care team & looks forward to contributing to global discussions at GCOM26.
πŸ‘‰ gcom.imyos.org
#GCOM2026 #Myositis #iMyoS

03.01.2026 13:21 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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We’re excited to introduce Dr. Fulden Sari, Assistant Professor at BingΓΆl University, Turkey, and Postdoctoral Researcher at Karolinska Institute, Sweden. She is heading to GCOM 2026 in Lisbon to connect with experts & foster new collaborations in myositis research.
πŸ‘‰ gcom.imyos.org

#Myositis #GCOM

01.01.2026 15:41 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Karen Cheng lives an extraordinary & purposeful life, despite a diagnosis of myositis in 2006. She is deeply committed to the global myositis community & looks forward to GCOM 2026, to learn, share & advance care for people with this rare disease.
GCOM 2026:
gcom.imyos.org
#GCOM26 #Myositis #iMyoS

02.01.2026 12:11 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Prof. Jens Schmidt, former chair of iMyoS, shares why he's eagerly anticipating the Global Conference on Myositis (GCOM).
Join us in Lisbon in March 2026, when the global myositis community comes together.
gcom.imyos.org

#myositis #imyos #gcom

21.12.2025 18:07 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Prof. Olivier Boyer, Immunologist at UniversitΓ© de Rouen Normandie, France, tells us why the GCOM is the unique place to learn and network with people from all over the world who are involved in myositis.
Join the 6th GCOM and register now:
gcom.imyos.org

#Myositis #iMyoS #GCOM #Lisbon2026

22.12.2025 18:11 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Anneli Dihkan is the Chair of the Myositis Working Group in Sweden.
She tells us, why it is so important for patients to attend the GCOM in Lisbon 23-26 March 2026.

Join the GCOM in Lisbon:
gcom.imyos.org

#Myositis #iMyoS #GCOM

24.12.2025 10:42 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Eduardo Dourado, rheumatologist in Portugal, is looking forward to welcoming the global myositis community to a truly special event: the 6th Global Conference on Myositis!

Take this special opportunity and join us in Lisbon‼️
23-26 March 2026
gcom.imyos.org

#Myositis #iMyoS #GCOM #Lisbon2026

24.12.2025 15:32 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Alain Meyer is a rheumatologist & researcher at the University of Strasbourg. A leading expert in myositis, passionately dedicated to advancing knowledge & improving care for patients with IIM.
He is very much looking forward to the GCOM. gcom.imyos.org

#Myositis #GCOM #iMyoS #Lisbon2026

25.12.2025 18:22 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Eleni Tiniakou is a rheumatologist & Associate Prof. of Medicine at UTHealth Houston & she co- leads the multidisciplinary program on IIM, with her colleague from Neurology, Suur Biliciler. She is looking forward to the insightful discussions & connections to be made at GCOM26
gcom.imyos.org

#gcom

26.12.2025 16:13 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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We’re excited to highlight Margherita Giannini, rheumatologist & researcher at the Univ. of Strasbourg! Together with her colleagues,she is advancing innovative research in myositis. Next March,she’ll join the GCOM to present new findings & connect with the global myositis community.
gcom.imyos.org

27.12.2025 15:32 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Meet Lorenzo Cavagna, Rheumatologist at IRCCS Policlinico S. Matteo Foundation of Pavia & Associate Prof. at the Univ. of Pavia! πŸš€
He will share insights from the CLASS Project β€” Classification Criteria for Anti-Synthetase Syndrome β€” advancing research. Join us at GCOM26!

#Myositis #GCOM26 #iMyoS

27.12.2025 19:05 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0