Long Covid Lad

Urgent Action Needed to Save Millie: Help Us Demand Proper Treatment for Severe ME I have set up this petition on behalf of  Millie, who is 18 years old and has very Severe Myalgic Encephalomyelitis (ME/CFS). She is currently in The Royal Lancaster Infirmary part of the University H...

chng.it/nYCzQ5z2wk

NIH’s new “study” describing ME/CFS patients as having "Altered Effort Preference" is such bullshit. Would you resist if you were pushed next to a cliff with a long drop? Is that "Effort Preference"? Or are you reacting to something that would hurt you? It’s that simple. #NIH #MECFS

Yellow MTA sign with people wearing masks, wearing masks incorrectly, or wearing no mask at all. Text reads: Masks are encouraged, but optional. Under someone wearing a mask incorrectly, text reads: You do you

@nycHealthy Flu, COVID-19 and RSV are all currently spreading in NYC. Wearing a mask in public indoor spaces and crowded places can help protect you and also protect others if you’re sick. High-quality masks, such as N95s, KN95s and KF94s provide the best protection [picture of snowman wearing an N95 mask with text saying "mask up"]

In one year, New York City's messaging went from "you do you" to "mask up with an N95."

This didn't happen by chance. Advocates & groups like @covidadvocacyny.bsky.social organized to take down the MTA signs & attended every NYC council hearing on COVID to push for better messaging. Advocacy works!

“Compared to two independent historical control cohorts, patients with post‑COVID exertion intolerance had fewer capillaries, thicker capillary basement membranes and increased numbers of CD169 + macrophages.”

#LongCovid #PwLC #postcovid #PostCovidSyndrome #LC #PASC

👀

covid19.public-inquiry.uk/documents/in...

St Patrick

Some of the evidence emerging in the #CovidEnquiry is really casting questions on the ‘ring of protection’ rhetoric. Utterly appalling.

Donated

David Tuller DrPH has shown he has a:
-good skill set for this type of work

-good knowledge base from following the field closely for many years

-an appetite as it can be very draining

Proponents of exercise/psychologicalisation/etc are still around
#MEcfs #PwME #CFS #FND #LongCovid #MUS

Popping in to say that patients are testing positive for #COVID19 in clinic.

So many. Sore throat, headache, cough, fever.

Don’t be the cause of a newborn, toddler, senior, pregnant person, essential worker, HCW, others ending up sick.

#MaskUp, test, isolate, get your booster.

+ BERLIN BUYERS CLUB + I miss listening I miss seeing I miss working I miss walking I miss dancing I miss thinking I miss feeling I miss myself I have ME/CFS

I miss self-determination
I miss spontaneousness
I miss freedom
I miss being able to take care for others
I miss nature
I miss light-heartedness
I have #MECFS

Just about to make the same mistake with tax cuts and inflation. Does he get excited and suffer premature administration?

Selfie of woman wearing a black FFP3 mask on a train with a train window in the background.

#LoneMasker on the train heading to work this morning. Lots of uncovered wet coughing around me. Two coworkers currently out sick with COVID. Not a fan of this new normal. #CovidIsNotOver #MaskUp

Kids KN95 Masks For Sale - Best Kids KN95 Face Masks In stock and shipping now! Green Supply has the best kids KN95 masks that are specially designed a child's head, helping protect them at the same level as standard adult sized KN95 face masks.

I finally found kids KN95 masks that actually fit, come in fun colors, and have all the certifications! Passing it on since I know lots of families that have been looking. All their testing info is linked on the product pages!
greensupply.com/collections/...

If you know anyone with, #mecfs or #LongCovid pls ask them to take part in #DecodeME
It's easy to participate in, filling in a questionnaire & then providing a spit sample if requested to, all from 🏠.
It's a once in a lifetime opportunity to take part in v. imp. research into M.E.

shorturl.at/bmxAX

Dear fellow #pwME #MECFS #ME #MyalgicEncephalomyelitis #LongCovid, one of the most powerful/informative vids I know is now available on Youtube. @dialoguesmecfs.bsky.social created this extraordinary documentary on the history of #ME #MECFS. Essential info for advocates and researchers in our field.

Sense 😂 I meant makes makes more sense. 🧠 not ✅ today.

And it’s not even lunchtime.

The 💰 insurers saved by having the BPS model deny the medical reality of #ME/CFS is going to turn out to be a fraction of what #longcovid will cost them because the BPS lobby stalled actual research. Will we see a change in tone about covid risk generally once their financial results show this? 🤔

Symptoms of long Covid explained as almost two million people suffer in the UK Condition has more than 200 debilitating symptoms, reveals study

Is it starting to get to the point where it makes more to invest in a cure than try and ignore it.

@remissionbiome.bsky.social @drt.bsky.social @tessfalor.bsky.social

This neuroinflammation study with PET scans is still recruiting. Might be worth seeing if we could get some before and after images for local participants?

Thanks. Is this still open now?

This summary might be helpful. The hopeful bit is smart people seem to be looking in the right areas, finding clear evidence of some of what is going wrong, and proposing trials to treat it.

Link to a playback of Polybio Fall Symposium covering a lot of the latest cutting edge long covid research.

4.5 hours long but talks are 10 to 20 minutes each so digestible over a period of time is spoons are limited.

Very interesting and hopeful stuff here.

youtube.com/watch?v=278v...

And this is only the folk who actually get support…

Hell's Bells and Mast Cells Tips and humor about life with MCAS, EDS, and dysautonomia

This should do it…

Why You Should Rest—a Lot—If You Have COVID-19 It could help prevent Long COVID

So many folks are sick again so I share this with love: you must rest. Rest won’t guarantee you don’t get long covid but it’s a huge mitigator. Even if you have an accute mild case. Even if you don’t feel it at all. Send this to your boss. Make your partner clean or use disposable dishes etc.

Lecture slide with quotes claiming that migraines are caused by psychiatric issues

Lecture slide showing information on stomach ulcers and how they are not caused by stress

Lecture slide with quotes claiming that AIDS was caused by psychological factors, with original article in which these quotes appeared

Lecture slide with quotes claiming that multiple sclerosis is caused by early childhood trauma and lack of positive bonding experiences, with original source (from 2002)

It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).

Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"

Tropes now recycled for #MECFS & #LongCovid

You might have heard that Boris Johnson scrawled an expletive onto a document describing #LongCovid when managing the pandemic as UK prime minister.

He also scrawled "Gulf War Syndrome stuff", another dismissive slur aimed at post-viral illness sufferers

This is the picture (cf shorturl.at/npY28 )

Yesterday’s covid minimisation BBC article makes sense if you consider it in light of election positioning for the Tory party.

They messed up Covid, badly, and the covid inquiry will lay that bare.

They can’t / won’t change that.

So their only option is to make people think covid isn’t important