ALS affects more than just health — it affects daily life, family, and the future.
Our Support Services Team is here to listen, guide, and connect you to the resources you need — from clinical education to financial assistance and end-of-life planning.
Please email supportservices@lesturnerals.org
Tissue donation is one of the most powerful contributions a person living with ALS can make.
Join us Thursday, March 26, at 12:00 p.m., CT to learn more about the process and its impact on research.
Register: us02web.zoom.us/webinar/regi...
ALS can impact mobility in different ways over time. Planning ahead can help you stay independent and safe at home and in your community.
Our ALS & Mobility Guide provides information on durable medical equipment (DME) and other tools designed to support movement: lesturnerals.org/als-mobility...
A Nat’l ALS Registry study showed that people with ALS were more likely to have engaged in vigorous physical activity from the ages of 15-44 than other adults of the same age. This data helps researchers understand the relationship between physical activity and ALS. cdc.gov/als
#ALSRegistry #ALS
Through shared memories, we celebrate the lives that continue to shape us. Submit a Celebration of Life in honor of someone lost to ALS.
Celebration of Life form: lesturnerals.org/get-involved...
Diane Rutledge led her community for decades.
After her ALS diagnosis, she found new ways to stay connected through assistive communication technology and compassionate care.
Her story is one of strength, adaptation, and community.
Read more: lesturnerals.org/faces-of-als...
In a world of automated emails, a handwritten note still means something.
Our Gratitude Group volunteers personally welcome and thank new donors with handwritten messages — often sharing their own stories and connection to ALS.
Join the Gratitude Group: lesturnerals.org/get-involved...
Breathing changes can happen with ALS.
The My ALS Decision Tool™: Breathing Support explains non-invasive ventilation (NIV) and helps you understand your options — now or in the future.
Learn more and talk with your care team: lesturnerals.org/respiratory/...
Join us on April 11 for the 38th Annual Hope Through Caring Gala at the Radisson Blu Aqua Hotel in Chicago. Our annual fundraiser advances ALS care, research, and advocacy.
Event details: e.givesmart.com/events/JKw/
Join us February 28 from 10:30–11:30 AM CT for Navigating ALS Together — an ongoing support group for people and families living with ALS. Facilitated by Rochelle Walwer, LCSW.
RSVP: Email supportgroup@lesturnerals.org
When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als
#ALSRegistry #ALSBiorepository #ALS
Join us for the 38th Annual Hope Through Caring Gala, the Les Turner ALS Foundation’s signature fundraiser uniting leaders in ALS research, philanthropy, and people living with ALS.
For more information:
lesturnerals.org/events/hope-...
Smart home modifications can support mobility, comfort, and care.
Explore practical guidance in our ALS & Home Modifications Guide: lesturnerals.org/als-home-mod...
Learn what hospice care really is, when it may be appropriate, and how it supports people living with ALS, families and care partners.
Join us Thursday, February 12 at 12:00 p.m. CT
Register: us02web.zoom.us/webinar/regi...
The ALS Better Care Act has been reintroduced in the U.S. House and Senate.
Thank you to Reps. Jan Schakowsky, Brian Fitzpatrick, Jason Crow, and Mike Quigley, and Sens. Chris Coons and Lisa Murkowski for introducing this bipartisan legislation.
Learn more: lesturnerals.org/get-involved...
Federal funding plays a critical role in advancing ALS research and care.
The budget includes investments across NIH, ACT for ALS, DoD research programs, ARPA-H, and the National ALS Registry. Thank you to our ALS advocates for helping drive this progress.
Read: lesturnerals.org/congress-app...
ALS researchers and scientists are working to better understand the causes of the disease. When more people living with ALS sign up for the National ALS Registry, the more accurate the picture will be. Let’s do more and end ALS. cdc.gov/als/ALSJoinALSRegistry.html
#ALS #ALSRegistry #endALS
Research led by Vladimir Gelfand, PhD, at the Les Turner ALS Center shows that a mutation in Ataxin-2 (ATXN2) disrupts microtubule stability, affecting neuron growth and function and advancing understanding of microtubule dynamics in ALS.
Read full story: lesturnerals.org/discovering-...
Meet Katie Lord, RN, BSN, Hospice Nurse and Education Coordinator at ILHPCO. Join her Thursday, February 12 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
ALS Awareness Night with the Chicago Blackhawks was one to remember.
Grateful to Dan Payne, his family, and the ALS community for showing up strong at the United Center — and to Diane Duffy and Response Management Services for making this night possible.
Join us Thursday, February 12 at 12:00 p.m. CT for a live webinar on hospice care and how it supports people living with ALS, families and care partners.
Register: us02web.zoom.us/webinar/regi...
Access to the right equipment matters. We offer equipment loans—like ramps, wheelchairs, and communication devices—for needs not covered by insurance.
Questions? supportservices@lesturnerals.org
Northwestern Medicine researchers have identified a protein involved in how cells manage misfolded proteins — a process disrupted in ALS and other neurodegenerative diseases.
Read more: lesturnerals.org/targeting-ke...
Learn how palliative care can support people living with ALS and their families. Join us Thursday, January 29, at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
Looking for a way to make a difference? Volunteer with us at events like the ALS Walk for Life or community fundraisers. No special skills needed—just a willingness to help.
Learn more: lesturnerals.org/get-involved...
Meet Dr. Kara Bischoff, a palliative care expert at UCSF, specializing in ALS care. Join her Thursday, January 29, at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
#ALS #PalliativeCare #LesTurnerALS
Turn what you love into impact - From birthdays to races to community events, 'Fundraise Your Way' helps support people living with ALS.
Learn more: lesturnerals.org/get-involved...
“To all the people living with ALS, I don’t care what happens, never give up, never quit.”
Watch more of Brad Dusek’s inspiring ALS story and why he joined the National ALS Registry. youtube.com/watch?v=m8NOodx7GYg
#ALS #BradDusek #ALSRegistry
Memories shared by loved ones become lasting tributes. To honor someone special who was lost to ALS, we invite you to submit a Celebration of Life.
Celebration of Life form: lesturnerals.org/get-involved...
Eating and drinking can become more difficult with ALS. My ALS Decision Tool™ can help you understand feeding tube options and plan for your care — on your terms.
Learn more: lesturnerals.org/nutrition/ab...
