@lymenews
The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
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Growing evidence suggests that Alzheimer’s disease may be shaped not only by age and genetics, but by the immune system’s long-term memory of previous infections.
READ MORE
www.lymedisease.org/infections-m...
If you want to watch a replay of the HHS Lyme Roundtable meeting, read a summary, or browse the transcript, we've got you covered.
READ MORE: www.lymedisease.org/summary-tran...
HHS Secretary RFK Jr. shared a reality this community has long known: research has been underfunded and misunderstood for decades, leaving families without answers.
"Patients wait day after day, year after year."
READ MORE www.lymedisease.org/lyme-roundta...
HHS Secretary Robert F. Kennedy Jr. convened a long‑awaited roundtable on Lyme disease.
The event brought together patients, clinicians, and researchers in Washington, D.C., while a national (and international) audience tuned in live via YouTube.
READ MORE www.lymedisease.org/hhs-roundtab...
A New Hampshire family’s battle with tick‑borne illness inspired this young woman to use her platform to spotlight prevention and education.
READ MORE www.lymedisease.org/sophia-sarge...
For decades, patients with neurological Lyme symptoms have been told their struggles were “stress” or “anxiety.”
Now, groundbreaking research reveals how Bartonella can infiltrate the brain’s own immune cells.
This disrupts hundreds of genes.
READ MORE www.lymedisease.org/bartonella-b...
An amendment from New Jersey Congressman Chris Smith has cleared the House as part of the Fiscal Year 2026 defense bill.
It directs the US GAO to investigate whether Cold War‑era military bioweapons programs used ticks to spread Lyme disease.
READ MORE www.lymedisease.org/lyme-bioweap...
A session entitled Invisible Illness — Leading the Way with Lyme Disease will discuss federal priorities for Lyme disease and related chronic conditions.
You can watch it live on YouTube via HHS Gov
READ MORE www.lymedisease.org/hhs-lyme-rou...
Many Lyme patients complete rigorous treatment yet remain unable to heal.
In this podcast, naturopath and author Dr. Melanie Stein explains why this can happen--and what to do about it.
READ MORE www.lymedisease.org/why-lyme-rec...
Cognitive decline, mood changes, memory loss.
Nicole Bell’s powerful story reveals how hidden infections and toxic exposures can shape devastating neurological conditions.
READ MORE www.lymedisease.org/pathobiome-h...
A team from Georgia used CRISPR technology to design new ways to detect and treat Lyme.
Their breakthrough earned honors at an international competition and a spotlight on 60 Minutes.
READ MORE www.lymedisease.org/georgia-teen...
Brain fog isn’t just frustrating. It may hold clues...
In this interview, Dr. Sean Miller discusses how infections like COVID‑19 and Lyme disease can accelerate Alzheimer’s‑like damage, and how the retina could provide a window into early detection.
READ MORE www.lymedisease.org/do-eyes-hold...
This year, we’re rallying support for MyLymeData, one of the largest patient-driven Lyme research projects in the world.
If MyLymeData has helped you—or if you believe in the power of patient-centered research—please consider supporting us on #GivingTuesday
DONATE: www.lymedisease.org/donate-2/
On Thanksgiving we pause with gratitude for the incredible strength, resilience, and compassion within the Lyme community. Whether you are a patient, caregiver, advocate, researcher, or supporter, you are the heart of this movement. 💚
The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences.
This milestone report distills 10 years of patient-led research into powerful visuals and key findings.
LEARN MORE www.lymedisease.org/mylymedata-2...
The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences.
This milestone report distills 10 years of patient-led research into powerful visuals and key findings.
LEARN MORE www.lymedisease.org/mylymedata-2...
What does chronic Lyme really feel like? For many, it’s confusion, disbelief, and a level of illness that defies explanation.
That’s why Lyme survivor and advocate Jesse Ruben wrote “Monster”—a raw anthem born in the middle of his own crisis.
READ MORE www.lymedisease.org/podcast-does...
In this interview, Dr. Brian Balin discusses how microbes like Lyme, Bartonella, and Chlamydia pneumoniae have been found in Alzheimer’s brain tissue—and what this means for millions living with chronic illness.
READ MORE www.lymedisease.org/lyme-may-tri...
After 41 years of caring for patients, Dr. Richard Horowitz is closing his clinical practice.
More than 22 advocacy groups across the U.S. recently came together to honor Dr. Horowitz with a Lifetime Achievement Award.
READ MORE: www.lymedisease.org/advocates-ho...
A tick bite when she was six set off a chain of symptoms that went misunderstood for years. This eventually led to neurological and psychiatric struggles that nearly cost her everything.
In her book Revival, she talks about the long road to recovery.
READ MORE www.lymedisease.org/kaitlyn-olei...
A new study found that 92% of youth diagnosed with bipolar disorder in a Lyme-endemic area showed signs of tick-borne infections.
These findings raise urgent questions about how we diagnose and treat psychiatric symptoms.
READ MORE www.lymedisease.org/child-psychi...
Dr. Melanie Stein’s journey from sudden paralysis to lasting recovery led her to uncover a deeper root cause of chronic illness—and a new path to healing.
Here she shares the approach that helped her reclaim her health when nothing else worked.
READ MORE www.lymedisease.org/morning-i-co...
PATHOBIOME PERSPECTIVES: New interview series, hosted by patient advocate Ali Moresco, premiers Tuesday, Nov. 11.
LEARN MORE: www.lymedisease.org/pathobiome-p...
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The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences.
This milestone report distills 10 years of patient-led research into powerful visuals and key findings.
LEARN MORE: www.lymedisease.org/mylymedata-2...
For Isabel Rose, what began as a carefree childhood leap into a leaf pile became the start of a medical nightmare.
Read her account of how a tick bite at age 8 led to decades of misdiagnosis and chronic illness.
READ MORE www.lymedisease.org/a-mothers-st...
Looking for connection, understanding, or just someone who gets it?
Our online patient support group is a welcoming space where Lyme patients can share experiences, ask questions, and find encouragement from others who truly understand the journey.
READ MORE www.lymedisease.org/lyme-disease...