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Em🫧

@autisticems

She/her β€’ 27 β€’ Scotland 🏴󠁧󠁒󠁳󠁣󠁴󠁿 β€’ mad, learning disabled, Autistic and non-speaking β€’ Makaton and AAC user🌈

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07.12.2024
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Latest posts by Em🫧 @autisticems

Every mad friend is precious, every single one of you is irreplaceable, no one could slip quietly out the side exit of life without us all being worse off for your absence. I'm not big on suicide prevention: I believe in your autonomy over your life, but you all matter a great deal.

12.03.2026 18:16 πŸ‘ 15 πŸ” 2 πŸ’¬ 4 πŸ“Œ 0

Thank you❀️ it seems to be common for a lot of people unfortunately. Professionals that are paid to care don’t seem to care at all

13.03.2026 02:57 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thank you❀️ at this point I’m not even surprised. I’m trying not to get upset by the things they’ve written but it’s so hard. I wish they would care even a little bit about what happens to me

13.03.2026 02:54 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thank you so much for your kindness❀️ I wish professionals would think about the importance of their words and who might read them one day. The mad community has helped and understood more than they ever could

13.03.2026 02:50 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

I really wouldn’t recommend it. Some of the things they wrote don’t even feel like it’s me. They are awful

13.03.2026 02:45 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

β€œWe accept that there is a high risk of death by misadventure but it is a risk we are happy to live with.” MH services and social work genuinely do not care and I’m fed up of them

12.03.2026 16:40 πŸ‘ 7 πŸ” 0 πŸ’¬ 5 πŸ“Œ 0

Doing a SAR request for your notes is a huge mistake if you’re already struggling

12.03.2026 16:40 πŸ‘ 7 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0

That’s so bad im sorry

12.03.2026 16:28 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Your knitting is so neat! I can’t wait to see it all done

11.03.2026 16:13 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I’m so tired of fighting against a system that does not care if I die

10.03.2026 16:19 πŸ‘ 6 πŸ” 0 πŸ’¬ 3 πŸ“Œ 0

I’m so sorry. Sending hugs❀️

09.03.2026 22:02 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

That is confusing

09.03.2026 20:14 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Find & apply for financial support | Lightning Reach Lightning Reach is a support portal that makes it easy for people to find and apply for a wide range financial support in one place. Get your personalised list of support, from charitable grants, loca...

I applied for help with my heating earlier in the year through a website called lightning reach and I got so many free things from it. I got draft excluders, lightbulbs, hot water bottles, a flask, a huge electric blanket and loads more. I thought I’d share incase anyone else wants to apply

09.03.2026 19:49 πŸ‘ 10 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Your garden is always so beautiful 🌼

09.03.2026 06:40 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

It feels like the system sets us up to fail on purpose sometimes

08.03.2026 13:16 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
An image of Cathy Wassell, CEO of Autistic Girls Network and The haven. Overlaid text reads - β€œYou cannot talk about empowering women if autistic girls are still being overlooked.”

An image of Cathy Wassell, CEO of Autistic Girls Network and The haven. Overlaid text reads - β€œYou cannot talk about empowering women if autistic girls are still being overlooked.”

This International Women’s Day, we celebrate autistic girls and women. We celebrate their voices, their identity, and a future where autistic girls and women are recognised, supported and empowered.Β 

#IWD2026

08.03.2026 08:03 πŸ‘ 17 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0

I’m so sorry. I wish social work would help you. It’s so bad you’ve had to go through all this then end up with no help

07.03.2026 11:00 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

It is :(

07.03.2026 10:57 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Got detained yesterday for not taking my meds even though I can’t take them without carers? I ended up spending the whole day and night in a&e to only get 1 dose of my medication and then sent home. Back to no meds and I’m now too scared to ask anyone about it incase this happens again

07.03.2026 09:49 πŸ‘ 10 πŸ” 0 πŸ’¬ 3 πŸ“Œ 0
Black fluffy cat with big round eyes peeking from green hills, holding a small white flower, under a colorful textured sky with the text: β€œStay hopeful, even now. Especially now.”

Black fluffy cat with big round eyes peeking from green hills, holding a small white flower, under a colorful textured sky with the text: β€œStay hopeful, even now. Especially now.”

A tiny flower of hope for you πŸˆβ€β¬›πŸŒΌ

03.03.2026 17:51 πŸ‘ 892 πŸ” 284 πŸ’¬ 8 πŸ“Œ 16

I’m sorry you still don’t have care. It’s awful and not fair what’s happened to you

05.03.2026 19:39 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Old carers stocked me up on banana milkshakes that should last a while. No idea what to do about meds. I cant function without them and last time I ended up in hospital because of having none. I think I’ll email my social worker about respite care to see if that’s an option

02.03.2026 11:06 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Dismissal, Retaliation, and Institutional Betrayal: A Qualitative, Survivor-Led Study Exploring the Systemic Failures of NHS Mental Health Complaints Systems A Qualitative, Survivor-Led Study Exploring the Systemic Failures of NHS Mental Health Complaints Systems

🧡 CW: Suicide, iatrogenic harm

In January 2024 I shared a questionnaire on twitter, asking people about their experiences of making a complaint to NHS mental health services. Its taken me a while to write up, but its finally published here.

1/15

www.psychiatryisdrivingmemad.co.uk/post/dismiss...

01.03.2026 15:11 πŸ‘ 13 πŸ” 7 πŸ’¬ 1 πŸ“Œ 2

It’s really not. My old carers really tried to get my social worker to put something in place but she said she wouldn’t try calling the emergency carers till Monday! It’s too late by then

28.02.2026 17:01 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I don’t want police to be here and it’s not a police job but pressing my alarm is the only way for me to get help. It’s just a rubbish situation

28.02.2026 16:58 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

They are and it’s shit :(

28.02.2026 16:56 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

She said she’ll call the emergency carers to see if they’ll come back but she didn’t think they would. Old carers told her I will have to press my community alarm which means police will come. Social worker didn’t like that and told me not to. But what other choice do I have?

27.02.2026 17:06 πŸ‘ 5 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0

The meeting was frustrating. No care will be in place because none can be found. I get that but it’s still not ok. Social worker told me to β€œmanage through it” so I asked her if she had ever been in meds withdrawal or been left in so much pain you can’t move. She didn’t have an answer to that

27.02.2026 17:06 πŸ‘ 6 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0

Re: "profound autism"

The reason we stopped using functioning levels in autism years ago is not because all autistic people are the same and need the same support.

It's because the labels severe/mild/high/low are simplistic to the point of being meaningless, given the diversity of autistic people.

27.02.2026 10:34 πŸ‘ 36 πŸ” 9 πŸ’¬ 1 πŸ“Œ 0

It’s crap :( I hope this social worker listens to them and actually puts something in place. I’ll see what happens at the meeting though

27.02.2026 01:42 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0