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Cystic Fibrosis Ireland

@cfireland

Cystic Fibrosis Ireland is the national charity advocating for people with Cystic Fibrosis in Ireland. Registered Charity Number 20011376

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19.11.2024
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Latest posts by Cystic Fibrosis Ireland @cfireland

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Our Parents Connect group meet again on the 11th March at 7.30pm.

This is a safe, online space for parents of children with CF to connect, chat and learn from each other. If you would like more information, or would like to join the next call, visit www.cfireland.ie/support-reso...

06.03.2026 09:19 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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In 2025, we were honoured to receive funding from the Toy Show Appeal to support our young people in accessing counselling services and exercise grants. This funding will soon be coming to an end. If you haven't yet availed of this support, contact a member of the Services Team.

02.03.2026 12:01 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The Cost of Breathing - 2026 | Cystic Fibrosis Cystic Fibrosis Irelandย ย in collaboration withย Trevor O'Donoghue Photography, are delighted to bring you 'The Cost of Breathing'ย - a photo...


"๐˜ˆ๐˜ฎ๐˜ข๐˜ป๐˜ช๐˜ฏ๐˜จ ๐˜ฆ๐˜น๐˜ฉ๐˜ช๐˜ฃ๐˜ช๐˜ต๐˜ช๐˜ฐ๐˜ฏ, ๐˜บ๐˜ฐ๐˜ถ'๐˜ณ๐˜ฆ ๐˜ด๐˜ฐ ๐˜ฃ๐˜ณ๐˜ข๐˜ท๐˜ฆ ๐˜ง๐˜ฐ๐˜ณ ๐˜ฑ๐˜ถ๐˜ต๐˜ต๐˜ช๐˜ฏ๐˜จ ๐˜บ๐˜ฐ๐˜ถ๐˜ณ๐˜ด๐˜ฆ๐˜ญ๐˜ง ๐˜ฐ๐˜ถ๐˜ต ๐˜ต๐˜ฉ๐˜ฆ๐˜ณ๐˜ฆ. ๐˜๐˜ฆ๐˜ณ๐˜บ ๐˜ฆ๐˜ฅ๐˜ถ๐˜ค๐˜ข๐˜ต๐˜ช๐˜ฐ๐˜ฏ๐˜ข๐˜ญ."

The exhibition is currently in Galway, why not drop in to see it there, or at one of the upcoming locations: www.cfireland.ie/support-reso...

28.02.2026 20:05 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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What an amazing first few weeks of the 'Cost of Breathing' photography exhibition by Trevor O'Donoghue in collaboration with CFI. Here are just some of our visitors comments so far:
"๐˜—๐˜ฐ๐˜ธ๐˜ฆ๐˜ณ๐˜ง๐˜ถ๐˜ญ. ๐˜™๐˜ฆ๐˜ข๐˜ญ๐˜ญ๐˜บ ๐˜ฃ๐˜ณ๐˜ช๐˜ญ๐˜ญ๐˜ช๐˜ข๐˜ฏ๐˜ต."
"๐˜‰๐˜ฆ๐˜ข๐˜ถ๐˜ต๐˜ช๐˜ง๐˜ถ๐˜ญ, ๐˜ฐ๐˜ถ๐˜ต๐˜ด๐˜ต๐˜ข๐˜ฏ๐˜ฅ๐˜ช๐˜ฏ๐˜จ ๐˜ช๐˜ฎ๐˜ข๐˜จ๐˜ฆ๐˜ด. ๐˜š๐˜ฐ ๐˜ช๐˜ฏ๐˜ด๐˜ช๐˜จ๐˜ฉ๐˜ต๐˜ง๐˜ถ๐˜ญ ๐˜ต๐˜ฐ ๐˜ด๐˜ฆ๐˜ฆ ๐˜ช๐˜ฏ๐˜ต๐˜ฐ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ธ๐˜ฐ๐˜ณ๐˜ญ๐˜ฅ ๐˜ฐ๐˜ง ๐˜Š๐˜."

28.02.2026 20:05 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Pregnancy, Support and Advocacy Group (PSAG) Tuesday dates for your diary!

๐Ÿ‘‰๏ธ 3rdย March at 8pm
๐Ÿ‘‰๏ธ 21stย April at 8pm
๐Ÿ‘‰๏ธ 19th May at 8pm
๐Ÿ‘‰๏ธ 16thย June at 8pm,
๐Ÿ‘‰๏ธ July & August - no meeting July and August,
๐Ÿ‘‰๏ธ 16thย September at 8pm

Visit buff.ly/rRlfdD2

26.02.2026 20:02 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Our Parents Connect group meet again on the 11th March at 7.30pm.

This is a safe, online space for parents of children with CF to connect, chat and learn from each other. If you would like more information, or would like to join the next call, visit www.cfireland.ie/support-reso...

26.02.2026 12:01 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The Cost of Breathing - 2026 | Cystic Fibrosis Cystic Fibrosis Irelandย ย in collaboration withย Trevor O'Donoghue Photography, are delighted to bring you 'The Cost of Breathing'ย - a photo...


You can also download the brochure and visit the virtual gallery on our website. Visit www.cfireland.ie/support-reso...

24.02.2026 13:00 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The Cost of Breathing - 2026 | Cystic Fibrosis Cystic Fibrosis Irelandย ย in collaboration withย Trevor O'Donoghue Photography, are delighted to bring you 'The Cost of Breathing'ย - a photo...

Trevor, a professional photographer and person with CF, takes us on a journey through the emotions of living with a lifelong condition, asking what it feels like to survive in a world that often overlooks your needs, where everything has a cost, even the breath in your lungs.

24.02.2026 13:00 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Many thanks to Kerry Libraries, nd the team at Killarney for launching the Cost of Breathing Exhibition. CFI and Trevor Oโ€™Donoghue of Radharc, are now proud to bring this powerful, insightful exhibition to Westside Library Galway from now until the 8th March.

24.02.2026 13:00 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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๐—ง๐—ผ๐—บ๐—ผ๐—ฟ๐—ฟ๐—ผ๐˜„.
๐‚๐…๐ˆ ๐‚๐จ๐ฆ๐ฆ๐ฎ๐ง๐ข๐ญ๐ฒ ๐‚๐จ๐ง๐Ÿ๐ž๐ซ๐ž๐ง๐œ๐ž ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”.
๐‹๐ข๐ฆ๐ž๐ซ๐ข๐œ๐ค ๐’๐ญ๐ซ๐š๐ง๐ ๐‡๐จ๐ญ๐ž๐ฅ.
We can't wait to see you!!

06.02.2026 12:02 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Just one week to go until the CFI Community Conference! If you haven't booked, have no fear! Our online conference is open for registration! Visit www.cfireland.ie/support-reso... for more info!

31.01.2026 10:01 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ‘€ See anyone you know in this photo?? ๐Ÿ‘€

We can't wait to tune in to @RTEOne tonight at 9.35pm for a look at what #AnyGivenDay can bring at the CF Unit in @cork_university_hospital ๐Ÿ“บ

www.rte.ie/player/serie...

28.01.2026 15:05 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Are you joining us at the CFI Conference 2026?
Whether online or in person, we have a choice of workshops for you to attend!
Lee Daly will be chatting to our members about having difficult conversations and we would love to see you there. Sign up here buff.ly/lelbsOy

27.01.2026 14:30 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Are you coming to the CFI Community Conference 2026?
Joining us is Barry Mooney, Certified Financial Planner.
Barry will host a dedicated members Lunch & Learn event on Financial Planning.
To join us at the conference, register today!
www.cfireland.ie/support-resources/cfi-annual-conference

22.01.2026 10:33 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Cystic Fibrosis Irelandโ€™s exercise grant funds access to sports, recreational play supports and physio related activities for children with CF in Ireland.

Apply today by visiting www.cfireland.ie/support-reso...

21.01.2026 20:00 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The CFI Community Conference is just 3 weeks away! If you canโ€™t join in person, join us online by registering at www.cfireland.ie/support-resources/cfi-annual-conference
The agenda is available too so take a look and get in touch!

20.01.2026 18:17 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The PSAG (Pregnancy Support and Advocacy Group) is back for 2026 - with the first meeting taking place on Thursday 22nd January at 8pm. If you are a women with CF on any stage of your fertility journey, please get in touch to join. Details available at buff.ly/qB7uvoW

19.01.2026 16:40 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

๐™’๐™๐™ค ๐™ž๐™จ ๐™ฉ๐™๐™ž๐™จ ๐™ฌ๐™ค๐™ง๐™ ๐™จ๐™๐™ค๐™ฅ ๐™›๐™ค๐™ง
6 young members aged 8 years plus

๐™’๐™๐™–๐™ฉ ๐™ฉ๐™ค ๐™š๐™ญ๐™ฅ๐™š๐™˜๐™ฉ
โœ๏ธ A fun, online doodle session celebrating each childโ€™s imagination
๐ŸŽจ Creative techniques to spark confidence and curiosity
๐Ÿ“š Your very own Doodle drawing kit!

15.01.2026 18:00 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐ŸŒŸ๐˜พ๐™–๐™ก๐™ก๐™ž๐™ฃ๐™œ ๐™–๐™ก๐™ก ๐™ฎ๐™ค๐™ช๐™ฃ๐™œ ๐™˜๐™ง๐™š๐™–๐™ฉ๐™ž๐™ซ๐™š๐™จ ๐ŸŒŸ
What will you be when you grow up? Letโ€™s find your doodle and draw your dreams!
As part of 65 Roses Day 2026 CFI and Bob_Narrow are bringing our younger members a Doodle workshop 28 Jan@4pm
Register www.cfireland.ie/support-reso...

15.01.2026 18:00 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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CF Ambassadors | Cystic Fibrosis CFIย are currently looking for CF Ambassadors and representatives from the CF Community to share their stories allowing Cystic Fibrosis Irelandย to raise awarenes...

If you have a CF story that others could learn from, or feel inspired by, weโ€™d love to hear from you.

Workshops and supports are provided - for more information, visit www.cfireland.ie/get-involved...

10.01.2026 18:00 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐ŸŒŸ ๐™’๐™šโ€™๐™ง๐™š ๐™ก๐™ค๐™ค๐™ ๐™ž๐™ฃ๐™œ ๐™›๐™ค๐™ง ๐™–๐™ข๐™—๐™–๐™จ๐™จ๐™–๐™™๐™ค๐™ง๐™จ ๐™ฌ๐™ž๐™ฉ๐™ ๐™– ๐™จ๐™ฉ๐™ค๐™ง๐™ฎ ๐™ฉ๐™ค ๐™จ๐™๐™–๐™ง๐™š ๐ŸŒŸ

Your voice has power โ€” real power โ€” and every year CFI work with a community of people who want to use their experiences to spark awareness, connection, and change.

10.01.2026 18:00 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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The CFI Community Conference is happening in just one month!
For an insightful event with workshops, dinner, dancing and community awards, don't miss your chance to go! Book now at www.cfireland.ie/support-reso...

07.01.2026 13:02 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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โ€ผ๏ธ๐˜Š๐˜ข๐˜ญ๐˜ญ๐˜ช๐˜ฏ๐˜จ ๐˜ข๐˜ญ๐˜ญ ๐˜Š๐˜๐˜ ๐˜”๐˜ฆ๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ดโ€ผ๏ธ

The early bird accommodation rate for the CFI Community Conference ends today โ€ผ๏ธ

Don't miss out - click this link to book.

www.cfireland.ie/support-reso...

05.01.2026 15:07 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Have you booked your place for the CFI Community Conference yet?
Don't delay - book today!

Visit www.cfireland.ie/support-reso...

03.01.2026 12:01 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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New year, new you?
New year, new grants.
Get in touch now to apply for a CFI Exercise Grant - member applications for 2026 now open ๐ŸŽ‰
www.cfireland.ie/support-reso...

02.01.2026 12:01 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐™Ž๐™ฅ๐™š๐™˜๐™ฉ๐™ง๐™ช๐™ข ๐™๐™–๐™จ ๐™ก๐™–๐™ฃ๐™™๐™š๐™™!

If you have already signed up to receive Spectrum, it will be in your inbox, ready to read ๐ŸŽ‰
If not, you can find it here: www.cfireland.ie//support-res...

Grab a cuppa, settle in and enjoy the read!

30.12.2025 16:01 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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At the end of 2025, CFI are proud to have supported our members and their families in many different ways. We look forward to 2026 and another productive year working with, and providing valuable services to, the CF Community in Ireland. To find out more www.cfireland.ie

28.12.2025 12:00 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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โ€ผ๏ธ ๐‘ฏ๐’–๐’“๐’“๐’š โ€ผ๏ธ

Just four days left to book your discounted accommodation for the 2026 Community Conference.
Don't miss out! Book today* by visiting www.cfireland.ie

*Limited rooms available. Cross Infection guidelines apply.

27.12.2025 12:00 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Wishing every in the CF Community, a very happy Christmas and a peaceful New Year.

24.12.2025 12:02 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Have you registered for the CFI Community Conference yet?
We have an interesting, insightful and inspiring line up for you! The agenda is coming soon but book your accommodation before the end of December to get the accommodation discount! Visit buff.ly/Sm9bDAc

16.12.2025 12:02 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0