phaware®

The Untold Struggles of PH Patients. Beyond test results and procedures, PH patients fight silent battles every day. Dr. Khushboo Goel discusses how support groups are changing how she treats the disease. phaware® podcast ep 563 #phawareMD Cedars-Sinai Health Sciences University

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I’m Aware That I’m Rare: Khushboo Goel, MD (563) the phaware® interview

The Untold Struggles of PH Patients. Beyond test results and procedures, PH patients fight silent battles every day. Dr. Khushboo Goel discusses how support groups are changing how she treats the disease. @phaware.bsky.social podcast ep 563 #phawareMD @CedarsSinai medium.com/p/im-aware-t...

TBX4 holds clues to life-threatening lung disease starting before birth. Ripla Arora, PhD explains how her foundational research is shaping a worldwide push to understand and prevent pulmonary hypertension. 🌍 phaware® podcast ep 562 @TBX4_Life @PHatStanford Michigan State University

I’m Aware That I’m Rare: Ripla Arora, PhD (562) the phaware® interview

TBX4 holds clues to life-threatening lung disease starting before birth. Ripla Arora PhD's foundational research is shaping a worldwide push to understand and prevent pulmonary hypertension. @phaware.bsky.social podcast ep 562 @TBX4_Life @PHatStanford @michiganstateu medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jeffery Whitsett, MD (561) the phaware® interview

Cracking the Code: How Genetics Is Rewriting Neonatal Medicine. Dr. Jeffrey Whitsett reflects on 50 years in neonatal care and how TBX4 and other rare genes are transforming lung development research. @phaware.bsky.social podcast ep 561 @TBX4_Life medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Luke Stockdale (560) the phaware® interview

From Knee Pain to Gene Discovery 🦵➡️🧬 Luke Stockdale shares how a routine family knee issue led to a TBX4 mutation diagnosis and its link to PAH. A story of genetics, advocacy, and hope. @phaware.bsky.social podcast ep 560 @TBX4_Life medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Matina Prapa, MD, PhD and Olivier Danhaive, MD (559) the phaware® interview

How a Global Team Is Rewriting the TBX4 Playbook: Drs. Matina Prapa and Olivier Danhaive on how @TBX4_Life is connecting rare disease experts worldwide to drive newborn screening, genetic testing & real-time change for patients. 🌍 @phaware.bsky.social podcast ep 559 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Anton Morkin (558) the phaware® interview

One Dad’s Mission to Cure His Son’s Genetic Disease: Anton Morkin shares his fight, hope, and vision for the future of PH and rare disease care. It's an inspiring story of advocacy and resilience. 🎧 @phaware.bsky.social podcast ep 558 @TBX4_Life medium.com/p/im-aware-t...

I'm Aware That I'm Rare: the phaware® podcast: Episode 557 - Gaurav Choudhary, MD How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn’t require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-w...

Portable. Affordable. AI-powered. Dr. Gaurav Choudhary discusses how next-gen stethoscopes could revolutionize PH screening in under-resourced regions and how it could transform global healthcare @phaware.bsky.social podcast ep 557 @brownmedicine.bsky.social phawarepodcast.libsyn.com/site/episode...

I’m Aware That I’m Rare: Lenise Whitley (556) the phaware® interview

After years of being dismissed, Lenise Whitley shares her raw journey to a pulmonary hypertension diagnosis: loss, faith, advocacy, and finding community when no one listened. 🎧 @phaware.bsky.social podcast ep 556 @teamphhope.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Nicole Fitzgerald (555) the phaware® interview

Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move -- until breathlessness and fatigue nearly took her life. Hear how she faced pulmonary hypertension head-on and redefined her purpose. @phaware.bsky.social podcast ep 555 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jean Elwing, MD (554) the phaware® interview

Telehealth is reshaping pulmonary hypertension care—but its future is uncertain. Dr. Jean Elwing on access, equity, and what’s at stake as funding sunsets. @phaware.bsky.social podcast ep 554 @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jasmine Wells (553) the phaware® interview

You Can Grieve and Still Fight: Love, Loss, and Living with PAH. PAH patient, Jasmine Wells discusses navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. @phaware.bsky.social podcast ep 553 #phaware medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Kevin Allen (552) the phaware® interview

Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. @phaware.bsky.social podcast ep 552 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Russell Hirsch, MD (551) the phaware® interview

Dr. Russel Hirsch on the core pillars of the PPHNet and why the next chapter in pediatric pulmonary hypertension care must be written with families through a PHriends family-led committee. @phaware.bsky.social podcast ep 551 #phawareMD #PPHNet @PPHNet @CincyChildrens medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jennifer Keeley, DPN and Mary Whittenhall, MSN (550) the phaware® interview

Nurse Practitioners, Jennifer Keeley and Mary Whittenhall, discuss the management of cough in patients receiving inhaled therapies for PH and ILD. @phaware.bsky.social podcast ep 550 @gossamerbio.bsky.social #phild #cough #pah @teamphhope.bsky.social #GossamerBioPartner medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Ashlee Gambino (549) the phaware® interview

FIGHTER TO SURVIVOR: ASHLEE GAMBINO’S BATTLE BEYOND THE RING. Ashlee "The Mobwife" Gambino turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter and a battle for her life. @phaware.bsky.social podcast ep 549 @teamphhope.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Sophia Esteves (548) the phaware® interview

Scars and Survival: Rebuilding Life After a Devastating Diagnosis. After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live -- and it wasn’t just for herself. @phaware podcast ep 548 medium.com/p/im-aware-t...

phaware global association® presents a RooandKanga production: Aware I’m Rare. A BREATHTAKING SHORT FILM ABOUT PULMONARY HYPERTENSION.
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social

I’m Aware That I’m Rare: Richard Channick, MD (547) the phaware® interview

The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything. Dr. Richard Channick discusses the cutting-edge interventions in the treatment of pulmonary embolism. @phaware.bsky.social podcast ep 547 #CTEPH @uclahealth.org @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jenny Yang, MD (546) the phaware® interview

Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. Learn why ruling out #CTEPH should be step one for any PH diagnosis. @phaware.bsky.social podcast 546 @ucsdhealth.bsky.social #phawareMD medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Victor Test, MD, FCCP (545) the phaware® interview

Despite better tools and more awareness, people with pulmonary hypertension are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today @phaware.bsky.social podcast ep 545 #phawareMD @accpchest.bsky.social @redraiderpulmcc medium.com/p/im-aware-t...

I’m Aware That I’m Rare: LaRae Hacker (544) the phaware® interview

How TBX4Life Is Fueling a Global Collaboration. LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. @phaware.bsky.social podcast ep 544 @TBX4_Life phaware.medium.com/im-aware-tha...

I’m Aware That I’m Rare: Anthony Carrasco (543) the phaware® interview

How He Survived Meth Addiction, Lung Failure, and Found Purpose. Anthony Carrasco was a meth addict by 15, and nearly dead by 35. But a double lung transplant and a deep surrender to recovery transformed everything. @phaware.bsky.social podcast ep 543 @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Brandon Jakubowski, MD (542) the phaware® interview

Treating Meth-Associated PAH Without Judgment. Dr. Brandon Jakubowski takes us into the under-recognized world of stimulant-induced pulmonary arterial hypertension. @phaware.bsky.social podcast ep 542 #Methamphetamine @JNJInnovMed #phawareMD @UTSWMedCenter medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Nicholas Kolaitis, MD (541) the phaware® interview

The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...

I’m Aware That I’m Rare: Peter Leary, MD (540) the phaware® interview

How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Vinicio de Jesus Perez, MD (539) the phaware® interview

Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...

Episode 538 - John Kingrey, MD Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses ...

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...