This is a wrap! The 5th International Scientific Congress on SMA has come to an end.
1,000 participants, 206 posters, 42 talks, and 75 Global SMAdvocacy Event attendees, 42 countries.
Thank you so much for your energy, great ideas, and all the inspiring moments.
All together. One goal.
#weareone
The scientific programme has concluded for today, and then we headed to our gala dinner (we'll keep you updated from the gala dinner later on. Stay tuned!) This evening is more special than ever, as we celebrate our 20th anniversary with the Lifetime Achievement Award ceremony! 🥳🥳🥳2️⃣0️⃣
#WeAreOne
2nd Day of the 5th International Scientific Congress on SMA in Budapest, Hungary.
Inspiring speeches, amazing community and the content of the highest level ensures that this event will stay in our hearts and minds for a very long time.
Looking forward to Day 3!
All together. One goal.
#WeAreOne
Budapest will light up for the SMA community during the 5th International Scientific Congress on SMA!
📅 11 March 2026
📍 Puskás Aréna
📍 MVM Dome
📍 Millenáris Széllkapu Park
Get ready to witness the SMA Europe glow across Budapest! ✨
#WeAreOne #SMACongress2026 #GlowForACause #SMA
A blue slide announcing “New White Paper Update – Spanish Translation.” The “All Together. One Goal.” stamp appears below the headline. SMA Europe's 20 Years Together logo is positioned in the top left corner, with the NBSA logo displayed to the right.
A blue colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
📢 The SMA Newborn Screening Alliance is excited to share that the updated White Paper on Newborn Screening for SMA is now available in Spanish. You can access it here: https://www.sma-screening-alliance.org/resources
We extend our sincere thanks to @FUNDAME.
#SMAAwareness #NewbornScreening #SMA
A blue slide announcing “New Publication! 5th International Scientific Congress on Spinal Muscular Atrophy (SMA)" published by Rare Revolution Magazine.” SMA Europe's 20 Years Together logo is positioned in the top left corner.
A blue colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
Thank you to Rare Revolution Magazine for featuring our 5th International Scientific Congress on SMA! From science to advocacy, innovation meets collaboration.
🔗 Read more: https://bit.ly/4l7dFU3
🔗 Congress info: https://bit.ly/4bircVs
#SMA #SMACongress2026 #WeAreOne
📢 The SMA Congress 2026 App is now live!
Plan your schedule, connect with attendees, and receive real-time updates — all in one place.
📲 Download it from the App Store or Google Play by searching “SMA Congress 2026” or use the link: https://www.nunify.com/share/SMACONGRESS2026
#SMACongress2026
A blue slide featuring a light blue bubble reads, “Looking for SMA clinical trials made easier” in the top left center and another a light blue bubble reads “Meet the SMA Europe Clinical Trials Finder”Love the bubble above. The slide includes the 20 Years Together logo in the left top corner and a QR code linking to https://clinical-trials.sma-europe.eu/ in the right bottom corner with a ‘scan me’ placeholder.
A blue slide featuring a light blue bubble reads, “Finds only SMA-related studies” in the top left center and another a light blue bubble reads “A dedicated, reliable resource” the bubble above. The slide includes the 20 Years Together logo in the left top corner.
A blue slide featuring a light blue bubble reads, “Personalised for you: Custom searches. Saved preferences. Trial updates” in the center. The slide includes the 20 Years Together logo in the left top corner.
A blue slide featuring a light blue bubble reads, “Inspired by EUPESMA. Built for our community” in the center. The slide includes the 20 Years Together logo in the left top corner and a QR code linking to https://clinical-trials.sma-europe.eu/ in the right bottom corner with a ‘scan me’ placeholder.
This Rare Disease Day, we’re highlighting access to SMA clinical trials. EUPESMA shows strong interest, yet many people never hear about opportunities or are never recommended. That’s why SMA Europe created the Clinical Trials Finder.
🔗 https://clinical-trials.sma-europe.eu/
#RareDiseaseDay #SMA
A green slide featuring “Did you know?” with a large 98% percentage icon. A light green bubble reads, “…of people affected by SMA say new clinical trials are still needed.” The slide includes the 20 Years Together logo in the left top corner and a QR code linking to https://clinical-trials.sma-europe.eu/ in the left bottom corner.
A green slide featuring a large 87% percentage icon. A light green bubble reads, “would want to join a trial” in the center the text reads “BUT ONLY” then, featuring another a large 13% percentage icon. A light green bubble reads, “would want to join a trial” The slide includes the 20 Years Together logo in the left top corner and a QR code linking to https://clinical-trials.sma-europe.eu/ in the left bottom corner.
A green slide featuring a light green bubble reads, “This isn't about lack of motivation. It's about lack of information, access, and opportunity” in the center. The slide includes the 20 Years Together logo in the left top corner and a QR code linking to https://clinical-trials.sma-europe.eu/ in the left bottom corner.
A green slide featuring a light green bubble reads, “That's why SMA Europe created the Clinical Trials Finder. Helping turn interest into access” in the center. The slide includes the 20 Years Together logo in the left top corner and a QR code linking to https://clinical-trials.sma-europe.eu/ in the right bottom corner with a ‘scan me’ placeholder.
This Rare Disease Day, we’re highlighting SMA clinical trial access. EUPESMA shows strong interest, yet many people never hear about opportunities or are never recommended. Patients are ready. Access must follow.
#RareDiseaseDay #RDD2026 #SMA
A blue colour slide with a blurry image.
A green slide featuring white text: “Did you know? This year, SMA Europe celebrates its 20th Anniversary.” The rotated 20 Years logo appears above the text, with the SMA Europe logo in the top left corner and the “All Together. One Goal.” stamp in the right corner.
A blue slide featuring white text: “And we will celebrate it during our 5th International Scientific Congress on SMA in Budapest!” The rotated 20 Years logo appears above the text, with the SMA Europe logo in the top left corner and the “All Together. One Goal.” stamp in the right corner.
A green slide featuring white text: “Join us at the Congress and share a special evening celebrating the Lifetime Achievement Award ceremony!” The rotated 20 Years logo appears above the text, with the SMA Europe logo in the top left corner and the “All Together. One Goal.” stamp in the right corner.
20 years of united patient voices.
20 years of progress.
In Budapest, we celebrate this milestone through a special Lifetime Achievement Award ceremony at the 5th International SMA Congress. Stay tuned! 🤩
https://congress.sma-europe.eu/
#20YearsStrong #WeAreOne #SMAEurope
Last chance to register 🧬
Join the global SMA research & clinical community in Budapest at the 5th International Scientific Congress on SMA.
👉 https://congress.sma-europe.eu/
#SMACongress #Budapest2026
Our 5th International Scientific Congress on Spinal Muscular Atrophy programme has been refreshed. Late Breaking News session will highlight major new findings from clinical studies, real-world evidence, and translational research not yet presented in Europe https://congress.sma-europe.eu/programme/
On #InternationalDayOfWomenInScience, meet Dr. Sorana Ciura 🔬
A translational neuroscience researcher using patient-derived cells to advance SMA research.
We celebrate women shaping the future of SMA science.👩🏼🔬
👉 sma-europe.eu/donate
#SMAResearch #weareone
On #InternationalDayOfWomenInScience, meet Dr. Gabriella Viero ✨
Her interdisciplinary research advances how SMA is understood across tissues.
We celebrate women leading scientific progress in SMA.👩🏼🔬
👉 sma-europe.eu/donate
#SMAResearch #weareone
On #InternationalDayOfWomenInScience, meet Dr. Nathalie Didier 🧬
Her SMA Europe-funded research explores the role of muscle stem cells in SMA.
We celebrate women advancing SMA science.👩🏼🔬
👉 sma-europe.eu/donate
#SMAResearch #weareone
An orange colour slide with white text reads “5th International Scientific Congress on Spinal Muscular Atrophy. Budapest. 11th - 14th March 2026” under "Register NOW!” The SMA Europe's 20 years logo appears in the top right corner.
An orange colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
Registration is still open! 🧬
Join the 5th International Scientific Congress on SMA in Budapest for in-depth exchange across fundamental, translational & clinical research, from biomarkers to standards of care.
👉 https://congress.sma-europe.eu/
#SMACongress #SMAResearch #Budapest2026
On 23–25 Jan, SMA Europe joined the 292nd ENMC Workshop. We thank ENMC for this meaningful event. Read the report here: https://www.enmc.org/download/best-practices-after-positive-spinal-muscular-atrophy-newborn-screening/
#SMA #NewbornScreening #WeAreOne
An orange colour slide with white text reads “5th International Scientific Congress on Spinal Muscular Atrophy. Budapest. 11th - 14th March 2026” under "Register NOW!” The SMA Europe's 20 years logo appears in the top right corner.
An orange colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
Registration is still open! 🧬
The 5th International Scientific Congress on SMA brings researchers & clinicians together in Budapest to advance SMA science, care & outcomes.
👉 https://congress.sma-europe.eu/
#SMAEurope #SMAResearch #Budapest2026
📢 Late Breaking News session at our 5th SMA Scientific International Congress. Abstract submission is open until 25 January! More info here: https://congress.sma-europe.eu/latenews/
📧 Send submissions to: sma-europe.events@medicongress.com
#SpinalMuscularAtrophy #SMACongress #SMAResearch
An orange colour slide with white text reads “5th International Scientific Congress on Spinal Muscular Atrophy. Budapest. 11th - 14th March 2026” under "Register NOW!” The SMA Europe's 20 years logo appears in the top right corner.
An orange colour slide with white text reads “5th International Scientific Congress on Spinal Muscular Atrophy. Budapest. 11th - 14th March 2026” under "Key Highlights!” The SMA Europe's 20 years logo appears in the top right corner.
An orange colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
What will the 5th International Scientific Congress on SMA focus on? Advancing fundamental, translational & clinical SMA research 🧬
📍 Budapest | 🗓️ March 2026
👉 Learn more & register: https://congress.sma-europe.eu/
#SMAEurope #SMACongress #SMAResearch #Budapest2026
📣High-Dose Regimen of nusinersen receives EC Approval for the treatment of SMA. https://investors.biogen.com/news-releases/news-release-details/biogen-receives-european-commission-approval-high-dose-regimen.
#spinalmuscularatrophy #spinraza #accesstotreatment
Late Breaking News session – SMA Congress 2026
Abstract submissions now open!
📅 Session: 14 March 2026
🗓 Submit: 5–25 Jan
📬 Notifications: by 6 Feb
🔗 Template: congress.sma-europe.eu/latenews
📧 Send to: sma-europe.events@medicongress.com
All together. One goal.
#SMACongress #SpinalMuscularAtrophy
As 2025 comes to a close, we thank our SMA community for a year of progress, unity, and resilience. Thank you for your dedication and support. ✨ Wishing everyone a brighter, stronger, and more hopeful 2026. Together, #WeAreOne
#OneGoal #SMA #SMAAwareness #HappyHolidays #HappyNewYear #2026
A mint-colour slide with black text reads “Thank You for Celebrating 5 Years of the SMA Newborn Screening Alliance With Us” The white world icon is under the text. The SMA Europe logo appears in the top right corner and NBSA 5 Years Anniversary stamp on the left.
A mint-colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.
Thank you for joining our anniversary webinar! We’re grateful to all who celebrated 5 years of the SMA Newborn Screening Alliance with us, and to our incredible speakers for their insights and inspiration. Together, #weareone
#nbsa #smaawareness
Last 4 November, Nicole Gusset, CEO of SMA Europe, took part in a press conference in Warsaw presenting nearly seven years of real-world data from Poland’s B.102 drug programme for Spinal Muscular Atrophy (SMA). 📣 #SMA #Nusinersen #SpinalMuscularAtrophy #PatientCare #RareDiseaseCommunity
📣 Celebrating 5 years of the SMA Newborn Screening Alliance!
Early identification in SMA can mean the difference between muscle loss and a stronger start to life. Every child deserves timely diagnosis and treatment.
Learn more: https://www.sma-screening-alliance.org
#NBSA #SMAAwareness #WeAreOne
“It’s not just an organisation — it’s a community full of people who care deeply.” — Anush 🇦🇲 This is what makes SMA Europe special. 💙
Happy #VolunteerDay to all who inspire, connect, and lead with empathy. 💫
#WeAreOne #Community #Inclusion
Every volunteer makes a difference at SMA Europe. 💙 “It’s where I feel my voice is heard.” — Jane 🇲🇰 Your empathy and dedication make our community thrive. Together, we are stronger. 💫
#SMAEurope #WeAreOne #YouthVoices #VolunteerDay
Being a volunteer at SMA Europe means being part of a family built on care and trust. 💙 “No one is left behind.” — Ayça 🇹🇷
Thank you to our volunteers for your kindness and strength. Together, #WeAreOne 💫
#SMAEurope #Community #Inclusion #InternationalVolunteerDay
This #InternationalDayofPersonswithDisabilities, we acknowledge, raise awareness, and advocate — not celebrate.
“There’s still so much to do, so much to be aware of.” — Seda 🇹🇷
Let’s break barriers and make inclusion a reality. ♿💜
#WeAreOne #SMAEurope #Inclusion #Accessibility
