You can do it!
05.03.2026 16:05
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You can do it!
I've always been envious of people who can make a plan and then just write - I seem to need to write to start thinking! But then go back over them to make them make sense
Having a day off writing today - instead letting my brain ponder the next chapter and how I'm going to make it work. Just as important as writing actual words
Wise advice thank you!
Celebrating finishing writing a chapter yesterday 🎉🎉. It feels so slow - is this everyone's experience or just mine because I'm so limited in how much I can do each day?
#IAmWriting
Oops! Thanks 😂
@clairerwade.bsky.social hi Claire can I be added to the starter pack please?
In Authors with Disabilities and Chronic Illnesses (ADCI) we are discussing the issues and obstacles disabled, chronically ill & neurodivergent authors face when asking for access requests. This follows the launch of our access document, download it here: societyofauthors.org/groups/autho...
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Nice!
@ashleydaltonmp.bsky.social
Your words “these must become never events”
PLEASE INTERVENE TO SAVE LIFE
Savannah has not eaten for 9 weeks. There are no NHS services for severe ME - 7 months since publication of the Delivery Plan for ME/CFS
www.meresearch.org.uk/claims-of-nh...
Excellent!
It's so hard!
The trouble with writing a book is it's so hard to stop and pace and I keep forgetting how much cognitive energy it takes and that it's the easiest way to crash myself 🫣
OH MY! Land Beneath the Waves is one of BBC Wildlife Magazine's seven best adult books of 2025! And in such wonderful company! Totally made my year! 🥰💚
@summersdalebooks.bsky.social #naturewriting #chronicillness
Looks delicious 😋
This is a lengthy survey with deeply biased premises BUT anyone in the UK (or UK citizens elsewhere) who wishes for a compassionate immigration system that doesn’t privilege the rich & penalise the vulnerable would be advised to fill it out, carefully.
I will now sit here in rage for a while.
Arghh that's all so frustrating!
Yey for being sensible! It's hard though when our heads want to do something
Cheese scones on a wire rack
I made cheese scones! The ingredients where weighed out a week ago, then I crashed so couldn't make them
Abstract In this article, we have reviewed the literature on severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). ME/CFS is a clinical diagnosis in the absence of a diagnostic test. However, in research settings and disability disputes, 2-day cardiopulmonary exercise testing can be used to diagnose and document the abnormal response to exercise. Biomedical research into this disease has been scarce and underfunded for decades. Consequently, there are no effective treatments. In its most severe form, it is more disabling than many other diseases, and patients are bedbound 24/7, dependent on carers, and spend their days in dark and quiet rooms. Even the soft sound of a human voice can lead to further deterioration. Some of the very severely ill suffer from life-threatening malnutrition and need to be tube-fed. The COVID-19 pandemic has led to a sharp increase in the number of patients with post-infectious diseases, and many of them fulfill ME/CFS criteria. Dedicated, focused research using advanced medical technologies is needed to gain further understanding of the underlying disease mechanism. This will enable us to find effective pharmacological treatments and address the unmet medical needs of these very ill people.
Great to have this new review for a relatively neglected area in the research literature
An Overview of Severe Myalgic Encephalomyelitis
Free fulltext:
www.mdpi.com/2077-0383/15...
#MyalgicEncephalomyelitis #SevereME #MEcfs #CFS #PwME #ChronicFatigueSyndrome #SevereMECFS
I have a new paper out, based on the keynote I gave last year :-)
How to design the perfect lecture iopscience.iop.org/article/10.1... via @epl_journal
I have a new paper out, based on the keynote I gave last year :-)
How to design the perfect lecture iopscience.iop.org/article/10.1... via @epl_journal
A lot of the #pandemic and #longCOVID literature focuses on its physical effects, but neglects to mention that social isolation is one of the most serious and widespread harms caused by the disease.
#healthcare #chronicillness #disability
Young kids pedalling - literally - drugs for organised gangs. And what we did about it. Please boost if you can @annakwood.bsky.social @emmaburnell.bsky.social @markpackuk.bsky.social @ducklings.bsky.social @premnsikka.bsky.social @chairmanmoet.bsky.social @hannahfearn.bsky.social
Anyone looking for a gift for your chronically ill loved one? I recommend this by a friend with severe ME. Link below but available from all good bookshops. Only £16
#mecfs
www.amazon.co.uk/Crafting-Pat...
Thanks! And daunting 😁
Very excited to be part of this - looking forward to working with my mentor @pollyrowena.bsky.social
Thank you!
Reflection on water droplets by @annakwood.bsky.social I’ve been meaning to read for a long time now.
Beautiful.
annakwood.substack.com/p/ladys-mantle
Oo thank you so much!