@libbyhumphris
Public contributor | Honorary Research Associate @CardiffUni | Advocate for women’s health, rare diseases & shared decision-making | Co-lead, Public Engagement @EvidenceCentre | Breaking down barriers for patients & the public ✨ Crocheter & Rescue Dog Mum
Adrenal crisis 10 days ago, I was worried I would not be able to be at the #CUMEDICPPIE showcase today. Looking forward to a day focused on public involvement and engagement. Do say hello if you see me, I'll be on the Evidence Centre stand.
Having a rough time with my health recently. Infection-virus-flare-another infection. Today my "bad" eye has a weird sore patch developing, another "thing" to sort out. It's exhausting! Very grateful to Nurse Dog Luna keeping me company while I rest up.
It's so frustrating, I ran out last year and ended up in a flare, because of the exact same problem albeit a different hospital. Replying so you know you are not alone in this crazy system.
It was refreshing to meet with an anaesthetist yesterday at pre-op clinic who introduced me to the @sobauk.co.uk guidelines. I'd not come across them until now. Thank you for making this difficult time that little bit easier 🙏 #SharedDecisionMaking #PatientVoice #Thankyou
Flyer for OPTIMISE workshop - developing recommendations for inclusive consent processes for trials - 8th July in Cardiff. Contact Dr Victoria Shepherd via email sheoherdvl1@cardiff.ac.uk
📢Developing recommendations for inclusive consent processes for trials
OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include.
Info below:
We are recruiting. Programme Co-ordinator. To ensure the next Equal Power Equal Voice programme cycle is efficient and effective, and provides the best possible experience to mentees and mentors. Closing date: 9am on Tuesday 22nd April. 18 hours a week. Remote working with office base at Spark, Cardiff. The EPEV and DW logos are in the top right corner.
📢We are recruiting!
We're looking for a disabled person to join us as Programme Co-ordinator.
This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme.
Closing date: 9am on 22 April.
www.disabilitywales.org/vacancy-prog...
A reminder on one of the hardest days of the year for me. It is never ok to ask someone when they are starting a family, never. Thinking of everyone struggling today. #ChildlessNotByChoice
This image depicts a yellow piece of paper with letters cut out of it, reading "join us". The paper is on a green background.
Co-Production Collective is looking for someone to manage our projects with partners. If you are interested in co-production in research, policy and service development, we would like to hear from you!
Find out more about the role and how to apply in our blog: shorturl.at/AAPln
#coproduction
On a coffee shop wooden table there is an iPad with a blank page open, a teal blue diary with light blue pen on top and a latte with a heart in the milk.
Inspired by a talk given by @drmattmorgan.bsky.social a few weeks ago, I'm finally off the mark with my writing plan. Wishing you all a great week ahead.
Purple graphic for Lleswyl 2025 event on February 21. Includes colorful bursts, the tagline "Making Space to Talk," and website link: www.daringtodream.wales.
Have you heard of #Lleswyl? It’s the only inclusive virtual festival organised by @daringtodream.bsky.social. Many miss out on events and festivals due to illness, and that’s exactly why Lleswyl exists.
Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...
It's really tough to see the constant headlines on this topic.
You are not alone, my inbox is always open.
A Yorkshire terrier cross lies across a pile of blankets with their head resting on a pillow looking up at the camera.
Grateful to have Nurse Dog Luna keeping me company in my little home office this morning 🐾 She has no idea how important she is to my emotional health, join Luna and I at #Lleswyl2025 later this month to hear more on this. @daringtodream.bsky.social #DogSky #RescueDog
I struggled to know who I was at the end of last year. With a few tweaks and working hard to hone down on what is really important to me, I am now much happier and more motivated than ever. Sometimes you have to take a step back to realise what it is you want.
Today, fab line up! #PxP #PatientEngagement
🌟 #Lleswyl2025 🎉 The only #inclusive virtual festival by @daringtodream.bsky.social, shining a light on adults with illness in #Wales.
Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now!
👉 Register on Eventbrite!
www.eventbrite.co.uk/e/lleswyl-20...
Well said @hrhcatherinepow.bsky.social - this is exactly what we are saying @daringtodream.bsky.social. Emotional health and skills are being overlooked - we must get better at talking about feelings constructively #emotionalhealth and #emotionalskills matter.
www.bbc.co.uk/news/article...
Sorry you had to wait longer, that is a ridiculous excuse from the first consultant 😡 Glad to hear the second took you seriously!
#Lleswyl2025 - how about booking your tickets for a #WatchParty at #WalesMillenniumCentre?
Book to go along with a few friends? have a great night!
www.wmc.org.uk/en/whats-on/...
A Yorkshire terrier cross is sat on a human bed looking at the camera, one ear up and one ear down. The duvet is white with blue geometric patterns. There are grey wardrobes in the distance.
Happy Friday! I'm having a "rest day". I have to be really careful that I don't burn out. It's so tempting to carry on, I'm motivated, my brain is willing but my body needs to rest. If I don't listen to my body then I'll be out of action for weeks. Nurse dog Luna with me, as always. #mecfs #dogsky
Good Morning! Have you heard of #Lleswyl2025?
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.
#Lleswyl2025 #inclusive #talented #diverse #LineUp.
FREE tickets www.eventbrite.co.uk/e/lleswyl-20...
In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social
A Yorkshire terrier cross is asleep, laying stretched out on a collection of blankets.
Nurse Dog Luna is never far from where I am, today she is snoozing under my desk. This afternoon I've been busy working on a few upcoming presentations. I was dreading another week of January, but an inspiring talk from @drmattmorgan.bsky.social has started this week off perfectly 💪 #PatientVoice
Lotta new folks here so I guess it's a good time to plug this webinar!
If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.
Looking forward to #Lleswyl2025 next month. Tickets are FREE! #emotionalhealth #raisingawareness #chronicillness #maketimetotalk
Please can you share link to recording when it becomes available? Sadly I can't make it to Bristol that evening.
Digital tools should make healthcare more efficient and accessible, but do they make everyone’s lives easier?
Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?'
When: 3 Feb 2025, 18:30-20:00
Where: City Hall, Bristol
Free tickets: tinyurl.com/2pyn8w4b
Hope you manage to get some decent sleep in 💤
You're not the only one #painsomnia
Thank you for writing this Lucy, it sums up perfectly how important the online community is when you are disabled. I'm so grateful to have social media bring us all together ❤️
Sounds really interesting, be good to hear about it if you have the time to share your thoughts on it afterwards.