had an MRI today and the contrast I had to drink made me so nauseous. I’m just so tired today.
@flyawayrage
healthcare should be a RIGHT, not a fight ⚡️ musical artist ❤️🔥 living w PSC+IBD 🌙 listen to Moonshine⬇️ https://distrokid.com/hyperfollow/flyawayrage/moonshine-demo ❤️🔥 find me here⬇️ https://linktr.ee/flyawayrage 🧡🤍💝 | all views are my own
had an MRI today and the contrast I had to drink made me so nauseous. I’m just so tired today.
desperate dimes: boss makes a dollar, I make a dime.. and then pay every damn dime to stay alive 🖤
#independentartist #chronicillness #invisibleillness #disability #newmusic
desperate dimes: we make ‘em, they take ‘em. especially if you wanna stay alive.
❤️🔥find me here: linktr.ee/flyawayrage
#independentartist #chronicillness #invisibleillness #disability #newmusic
I went to school for music because I survived. I went back to school and into medicine to help you survive. And, I make music because they make it so damn hard to survive.
(gotta put that rage somewhere, don’t I?)
linktr.ee/flyawayrage
#independentartist #chronicillness #healthcare #newmusic
I'll follow back <3
desperate dimes: we make ‘em, they take ‘em. full song coming soon 🖤
#independentartist #chronicillness #invisibleillness #disability #newmusic
Desperate Dimes: we make em, they take em.. they have us payin’ every damn dime to stay alive.
#independentartist #chronicillness #invisibleillness #disability #newmusic
gosh, pink pony club still makes me cry sometimes. maybe it’s silly, but I grew up in TN/VA and moved away to Chicago at 18 to pursue music.. the end of that song really tugs at my heartstrings 💜
desperate dimes: we make ‘em, they take ‘em. especially if you wanna stay alive.
❤️🔥find me here: linktr.ee/flyawayrage
#independentartist #chronicillness #invisibleillness #disability #newmusic
desperate dimes: we make ‘em, they take ‘em. updated release coming soon❤️🔥
find me here: https://linktr.ee/flyawayrage
the OG demo (not mixed I’m so sorry❣️): https://youtu.be/W_XMDXwxS3A?si=i_3xJXP3shrflJdw
#independentartist #chronicillness #invisibleillness #disabilitytiktok #newmusic
We’re only 63 days into 2026 and already, I’ve nearly hit my out of pocket maximum for my health insurance.. the price of healthcare in this country is absolute insanity. 🫠
do you relate? 🌙Moonshine - out everywhere ➡️ https://distrokid.com/hyperfollow/flyawayrage/moonshine-demo
#newmusic #moonshine
make coffee with me 💖 (and go listen to Moonshine! ⬇️⬇️⬇️)
distrokid.com/hyperfollow/...
#independentartist #newmusic #coffee #espresso #latte
Thankful to be off prednisone, but already feeling worse after being off of it for 2 days 🙃 need a long term solution! But insurance denied the new treatment I was prescribed. Working on appealing now..
IT SHOULDNT BE THIS HARD
Of course isn’t just driving. It’s voting. Working. Travelling. Picking up a package. Applying for credit. Applying for a job. Renting a room. Filling prescriptions. Visiting loved ones in the hospital. Not expired either, but legally invalid.
I love making art, but god it really is all consuming at times. And I’m not sure if that’s a good or bad thing😅
so sleepy 😭 so tired. so behind in school (oooof and I am rushing to catch up). flare symptoms have been a little better the past few days, but still having pain. fatigue is really bad today, but I’m thankful for the wins anyway ✨ one thing at a time, one day at a time.
Premonition - coming to streaming later this year 💫
listen to my latest release here —> distrokid.com/hyperfollow/...
find me here —> linktr.ee/flyawayrage
#newmusic #independentartist #originalmusic #chronicillness #spoonie
it should not be possible to be this tired 😭
🖤 all original film + music 🌙moonshine ✨ now streaming 💫
🌙 listen here —>
distrokid.com/hyperfollow/...
#loop #independentartist #singersongwriter #chronicillness #newmusic
A song about survival - Premonition, coming soon ⚡️
find me here —> linktr.ee/flyawayrage
#newmusic #originalmusic #independentmusician #chronicillness
1 flare, 2 months of prednisone, 3+ new medications & 1 insurance denial later, and this song is still unfinished - but more relevant than ever. Premonition - coming to streaming later this year 💫
linktr.ee/flyawayrage
#chronicillness #invisibleillness #originalmusic #independentartist #newmusic
Fingers crossed 🤞🏼🤞🏼
yeah it really sucks, honestly. But, I’ve got a few other options and am trying to be optimistic in the meantime 💜
annnnnnd insurance has DENIED the new treatment I was prescribed.. 🚫
I have options and will work to get the care I need, it will just take longer and a lot more effort on my part. And I’m tired ya’ll 🥲 living with a rare disease is hard, man.
#ibd #psc
Today: getting repeat labs, meeting with a study doctor about research that could help me, and trying to catch up on my to do list! Life does not stop when you get sick 😵💫 #ibd
I did do it!!! 😅☺️ It went well, and we have a new plan! ✨💖🙏🏻❤️🔥 I’m hopeful it will help
Transgressions - the first song I ever created (honestly I was just trying to figure out GarageBand 😅) planning to re-record +release it on streaming later this year ❤️🔥 working through some health stuff first, #ibd + psc are tough to deal with.
getting through it one day at a time ✨💖💫 #newmusic
seeing GI today, they fit me in for an urgent appt. fingers crossed we can work together to come up with a plan to get my IBD+PSC back in remission. THEN, hopefully I can get back to making music!
#ibd #psc #spoonielife