Less than 20% of youth with intellectual and developmental disabilities get all services needed for adult health care transition.
Less than 1 in 5 youth with intellectual and developmental disabilities receives all three key components of health care transition. Visit movingtoadulthealthcare.org/data to learn more and read our most recent data profile. #Pediatrics #HealthCareTransition
Experience a fully accessible, bilingual 3D virtual conference—attend from anywhere with English/Spanish navigation and live Spanish interpretation for all sessions. Register today for the 2026 Family Voices Leadership Conference (4/15 - 4/16) at familyvoices.org/FVLC2026.
Graphic promoting the Close the Gap Challenge to improve health for children with special health care needs, featuring diverse children and a donate button.
We’re working to Close the Gap—and we can’t do it without you. Every donation helps a family get the support, advocacy, and resources they need to navigate complex health challenges.
Thank you for making a difference.
➡️ Donate today: familyvoices.org/closethegap
#CloseTheGap #FamilyVoices #CYSHCN
Have you checked out the sessions for the 2026 Family Voices Leadership Conference? The virtual event is packed with rich learning opportunities for youth and family leaders, patient and family advisors, family-led organizations and policy makers. Learn more at www.familyvoices.org/FVLC2026
The last day of February is Rare Disease Day. Rare Disease Day raises awareness of rare diseases and the people who live with these conditions.
Lucile Packard Foundation for Children’s Health thanked as bronze sponsor of 2026 Family Voices Leadership Conference.
Family Voices thanks Lucile Packard Foundation for Children's Health for being a Bronze level sponsor of the 2026 Family Voices Leadership Conference. Learn more and register at familyvoices.org/FVLC2026.
According to data from the 2023-2024 National Survey of Children’s Health (NSCH), More than 1 in 4 children meets the expanded criteria for having a special health care need. Visit childhealthdata.org to find reliable data about children’s health.
The 2026 Family Voices Leadership Conference is approaching quickly (April 15-16), and we still have one Gold Sponsor opportunity available! See the list of sponsor benefits here: https://familyvoices.vfairs.com/en/sponsorship-page #Sponsor #Pediatrics #Conference #FamilyEngagement #CYSHCN #FVLC2026
Report cover promoting equitable language services for families of children with special health care needs, featuring diverse illustrated faces.
How are language access services working in the health care system? What are the perspectives of families, health care providers, and interpreters? Family Voices did an environmental scan to find the answers. Read the report at https://ow.ly/krzp50Y5p3Z.
Graphic promoting a guide on communicating policy changes to families, emphasizing trust through clear communication.
Families in all communities are impacted by the constant changes in policy. Check out our best practices in communicating policy changes with families. https://familyvoices.org/publicpolicy/education/
It's National Caregivers Day, and Family Voices celebrates caregivers who support, advocate and speak up to improve health care quality and transform systems of care. familyvoices.org
Bronze sponsor Children's Hospital Association thanked for supporting the 2026 Family Voices Leadership Conference focused on children and family care.
Family Voices thanks Children’s Hospital Association for sponsoring the 2026 Family Voices Leadership Conference. Learn more about our conference and sponsors at familyvoices.org/FVLC2026. #FamilyEngagement #Pediatrics #Sponsorship #cyshcn #YouthLeadership #FVLC2026
Thank you Dr. Dennis Kuo, President of Family Voices Board, for sponsoring the 2026 Family Voices Leadership Conference.
Family Voices thanks Dr. Dennis Kuo, President of Family Voices’ Board of Directors, for sponsoring the 2026 Family Voices Leadership Conference. Register for the April virtual conference by visiting familyvoices.org/FVLC2026. #FamilyVoices #FVLC2026 #CYSHCN #DisabilityAdvocacy #FamilyCenteredCare
The 2026 Family Voices Leadership Conference is approaching quickly (April 15-16), and we still have one Gold Sponsor opportunity available! See the list of sponsor benefits here: https://familyvoices.vfairs.com/en/sponsorship-page #Sponsor #Pediatrics #Conference #FamilyEngagement #CYSHCN #FVLC2026
Promotional banner for Family Voices Leadership Conference 2026 featuring keynote speaker Dr. Nakela Cook, Executive Director of PCORI.
Family Voices is thrilled to have Dr. Nakela Cook, Executive Director of the Patient-Centered Outcomes Research Institute (PCORI), as the keynote speaker for the 2026 Family Voices Leadership Conference. Register today for #FVLC2026 at familyvoices.org/FVLC2026!
Announcement of funding extension for Family-to-Family Health Information Centers through 2026 by Family Voices.
Great news! 🎉 Family-to-Family Health Information Centers have received a funding extension through 2026, ensuring continued support for children and youth with special health care needs and disabilities. Learn more at familyvoices.org/publicpolicy.
Policy doesn’t have to be complicated. Stay informed about child health and disability policy issues by subscribing to the Washington, DC Update, a monthly Family Voices e-newsletter. https://ow.ly/X41N50Y4vaK
February is National Pediatric Dental Care Month. Family Voices was a partner in a NORC project called Oral Health Among Children with Special Health Care Needs. Find out what we learned at https://www.norc.org/research/projects/oral-health-children-special-health-care-needs.html.
Family Voices, in partnership with the New York School-Based Health Alliance, is launching a parent advisory board to improve access to mental health services through telehealth and school-based health centers (SBHCs) across New York!
Portrait of Armelle, the new Director of Programs and Partnerships at Family Voices, against a blue background.
Armelle Casau, PhD, is our new Director of Programs and Partnerships! She supports alignment across research, policy, family engagement, programs, and partnerships to advance health equity, expand accessibility, and strengthen systems of care for children with special health care needs.
A child in a wheelchair embraces an adult, highlighting the importance of family engagement from childhood to adulthood in improving care systems.
Family engagement matters. From early childhood to the transition to adulthood, the voices of youth and families are essential to improving systems of care. Learn about our evidence-based framework for youth and family engagement at familyvoices.org/familyengagement.
Did you know? Fifteen percent of children in the US have complex health needs and rely on specialists, therapies and other health services to manage their chronic health conditions. Learn more about children's health in your community and across the country at childhealthdata.org.
Families feel encouraged when they have an equal seat and partnership in their child's healthcare team.
Our evidence-based framework for family engagement helps to make sure engagement is deep and meaningful. Find out how we help organizations develop sustainable family engagement plans at familyvoices.org/familyengagement. #familyengagement #pediatrics #CYSHCN
Family Voices thanks Lucile Packard Foundation for Children's Health for being a Bronze level sponsor of the 2026 Family Voices Leadership Conference. Learn more at familyvoices.org/FVLC2026. #Pediatrics #FVLC2026 #FamilyEngagement #CYSHCN
Family Voices thanks W.K. Kellogg Foundation for being a Silver level sponsor of the 2026 Family Voices Leadership Conference. Learn more at familyvoices.org/FVLC2026.
Are you closing the #feedback loop effectively with #families who participate in your work? Find out with our new resource. Visit www.familyvoices.org/FESAT/infographics. #familyengagement #communication
Text highlighting how policies promote patient and family advisory councils, input, and co-design by families in healthcare.
Is family engagement embedded in the work you do? Having the right policies in place can ensure that families have a seat at the decision-making table when it comes to the care they receive. Take a look at our evidence-based approach to family engagement at familyvoices.org/familyengagement.
Moving from pediatric to adult health care takes time and planning. Young people can start learning about moving to adult health care early, like age 12. Find tools to help at movingtoadulthealthcare.org.
One in every four children in the US meets the expanded criteria for defining children with special health care needs. Learn more child health facts at childhealthdata.org.
Did you know? One in every four children in the US meets the expanded criteria for defining children with special health care needs. Learn more child health facts at childhealthdata.org.
Text highlighting how family engagement improves quality of care, satisfaction, communication, and relationships with healthcare providers.
Family engagement makes a difference in health care, and it doesn't happen by chance. Learn about our evidence-based framework for family engagement at familyvoices.org/familyengagement.
