@solvingms.bsky.social

LIVE TRAINING - Hip Flexor Strengthening With Coach T YouTube video by The MS Gym

Yesterday’s micro-live @themsgym.bsky.social

It’s not JUST our hip flexors that are weak, #feedforMSfolk. It starts with our intrinsic kinetic chain. MS doesn’t just hit at one foot, or hand and foot - it’s lesion and down!

#neuroplasticity #neurorehab #themsgym

www.youtube.com/watch?v=lAHP...

Long COVID and its relationship to MS If intermittent EBV reactivation drives long COVID and MS, it should respond to EBV antiviral strategies. I am aware that many pwMS have started taking antivirals off-label to manage their MS ....

Thank you for hearing us, Dr. Giovanonni. #MS peeps, please encourage Dr. G. To join Bluesky. This will be an interesting follow: #covid #longcovid #antivirals #TAF #vemliidy #valacyclovir #bcelldepletion

“Long Covid and it’s relationship to MS”

gavingiovannoni.substack.com/p/long-covid...

Objectives, methods, results, conclusion for Clinical & Translational ImmunologyVolume 13, Issue 11 e70015

“Autologous Epstein–Barr virus-specific adoptive T-cell therapy in a patient with lupus nephritis” November 19, 2024

onlinelibrary.wiley.com/doi/full/10....

Research Database - Solving MS

Yes! solvingms.org/research-dat...

Trevor Wicken! He’s the real deal. He’s made such an incredible difference in the lives of MS’ers. And the MS Gym is now on Bluesky! @themsgym.bsky.social @klstenhouse.bsky.social is an admin at The MS Gym and knows and helps a ton. Hit her up!

Thank you! @brunoamaral.eu is the Bruno Karen is referring to.

We hope to see her! Having any chronic illness is hard and finding your people is priceless. There are always trolls but it’s great we have a dedicated feed and can block people! Send her our best!

Follow us for research and look at our followers: many are here for research or share research.

A phase 2a open-label clinical trial to determine the effect of famciclovir on EBV activity as measured by EBV shedding in the saliva of patients with multiple sclerosis - PubMed No significant effect of famciclovir on EBV shedding was seen in this small pilot study. Given the low numbers, a small effect of famciclovir cannot be excluded. Salivary EBV shedding in this natalizu...

There is some data that the acyclovir prodrug #valacyclovir (which I take to halt ebv reactivations) is more effective than #guanasineanalogue antivirals.

Better results may come in a trial of late onset #MS or secondary MSers. Viral control ability depleted. 1/2

pubmed.ncbi.nlm.nih.gov/38131621/

Temperature intolerance/changes in barometric pressure are a result of demyelination of the nerves.

BEHIND-MS: Exploring the Link Between Epstein-Barr Virus and Multiple Sclerosis YouTube video by EMSP Brussels

The BEHIND-MS project introduces the project’s objectives and groundbreaking research efforts. This five-year European research initiative is focused on understanding the role of the EBV in the onset and progression of MS. #EBVcausesMS

youtu.be/LvbXvLLsVLw

This is what this group does! We will be posting very soon!

@allyann.bsky.social please add #MS

Thank you!