📋 Survey call: the Dublin Neurological Institute would like to hear about people with Parkinson's thoughts about wearable devices!
👉 Take the survey: buff.ly/JRmTtCb
#Parkinsons #Parkinson
"There’s a lot that can be done right now - we know that women suffer more from dyskinesia for example than men, so I find it amazing that women are getting the same dosages of levodopa."
🎙️ Listen to our special #InternationalWomensDay podcast now: buff.ly/HS6Pkoh
Sponsored by Merz Therapeutics
📣 It's #InternationalWomensDay, so we’ve partnered with Merz Therapeutics to record a special NEW podcast episode raising the voices of women with Parkinson’s! 💪
Hear insights from @richelleflanagan.bsky.social, @cathymolohan.bsky.social & neurologist Silvia Enriquez.
️
Listen now: buff.ly/ztbMLbw
couple sitting in deckchairs holding hands as the sun sets on a beach
☀️ ✈️ Dreaming of warm sunshine and exploring new places? We know the feeling!
We've rounded up some of the best Parkinson's-friendly holidays, from specialist providers, with fantastic experiences tailor-made for people living with Parkinson's.
👉 Our top European holidays: buff.ly/YUdeiDQ
ParKLIMson members in front of a climbing wall.
🧗♀️ “My ambition is a Parkinson’s group in every climbing gym in the Netherlands”
ParKLIMson founder and person with Parkinson's, Ton van den Berg, talks to us about his passion for climbing and his dedication to sharing his love of the sport with other people with Parkinson's.
🔗 buff.ly/MhrOPim
Find out more about how new disease-modifying therapies could help slow the progression of Parkinson’s: buff.ly/7Yn3Owd
In partnership with UCB and Novartis
People living with Parkinson's and their care partners play a crucial role in Parkinson's research.
New hope for people with Parkinson’s living with a better quality of life for longer?
That’s the goal of new research into disease-modifying therapies.
"I wake up and get the message of what the day is gonna be like, and I try to adjust to it. I keep getting new challenges physically, and I get through it." Michael J. Fox
💚 Words of wisdom from our favourite Hollywood icon and Parkinson's advocate, Michael J Fox.
👉 Click here for more inspiring quotes from celebrities with Parkinson's: buff.ly/hQfrG9W
#parkinsons
Find out more about how new disease-modifying therapies could help slow the progression of Parkinson’s: buff.ly/oB8YDOR
In partnership with UCB and Novartis
Disease-modifying therapies could help people with Parkinson's stay independent and maintain their quality of life for longer.
People with Parkinson’s are crucial in shaping clinical research.
That includes current research into disease-modifying therapies, which may be able to slow progression of Parkinson’s.
📋️ NEW SURVEY ALERT: in collaboration with Zambon, we're running a survey on people’s experiences of living with Parkinson’s, ongoing challenges & treatment decisions
👉️ Take the survey (available in 🇩🇪 Deutsch, 🇪🇸 Español, 🇬🇧 English, 🇫🇷 Français, 🇮🇹 Italiano & 🇵🇹 Português): buff.ly/wBdFHlX
#Parkinsons
We would like to send our love and condolences to the family of the inspirational civil rights icon and Parkinson's advocate, Rev. Jesse Jackson.
👉️ We've written a short tribute to Reverend Jackson's incredible legacy: buff.ly/lixMTCb
#Parkinsons #Parkinson
That’s the good thing about having younger kids, they’re so good in living in the moment. That’s what I’m trying to do."
#parkinsons #parkinson #HarvestingJoy
I’m 51 today and my son is 12. He made this joke. There’s truth in it. He said,
‘Mom, you can’t keep saying you’re middle-age. You’re 51 now and that means you’re more than in the middle. You’re passed the middle, you’re near the end, unless you live to be 102.’
Here's one illustration, based on a submission from Esther Labib-Kiyarash:
"Pockets of Joy for me are things that I create to get me through the day. Sometimes with Parkinson’s it’s the minutes, the moments. So a big part of that is just being really grateful for every little thing that we have.
We'd love to hear from you, and specifically invite submissions from under-represented groups. Either DM or email us at info@parkinsonseurope.org with your answer, name, where you live and the year and age you were diagnosed. Please don't share personal information publicly.
illustration of a woman with lots of pockets in her dress, and drawings of her children, dog, partner and herself hulahooping around the picture.
🗣️ We want you to share your stories!
For a new book collaboration with @salsbergmathews.bsky.social we're asking people with Parkinson's: "How do you harvest joy to feel at your best?" Barbara will turn a selection of answers into illustrations for her book.
Scientists are exploring the root causes of Parkinson's to find ways to slow its progression, beyond just treating the symptoms.
A Parkinson’s treatment that not only manages symptoms, but slows down progression?
That’s the goal of new disease-modifying therapies.
Find out more about how new disease-modifying therapies could help slow the progression of Parkinson’s: buff.ly/oB8YDOR
In partnership with UCB and Novartis
President of Parkinson's Europe, Josefa Domingos.
"I would like to see the Commission more focused on pushing the brain-health agenda."
Our President, Josefa Domingos, spoke to @politico.eu about the challenges facing Europe when it comes to neurological conditions like Parkinson's, & why we need a unified plan for brain health.
👉 buff.ly/cEqxPTt
Find out more about how new disease-modifying therapies could help with this: buff.ly/oB8YDOR
In partnership with UCB and Novartis
Current Parkinson's treatments that help to manage some symptoms don't target the root cause, so the condition continues to progress.
There is no cure for Parkinson’s.
And currently, Parkinson’s treatment might alleviate symptoms, but it doesn’t treat the root cause, so over time symptoms will get worse.
We need new treatments that can protect brain cells and slow down the progression of Parkinson’s.
Parkinson's-friendly recipe: coconut chicken stew
What's on the menu?
If you're lacking meal inspiration, we've got just the thing to help you out. This coconut chicken & vegetable stew, shared by registered dietitian and person with young-onset Parkinson's, @richelleflanagan.bsky.social, is the perfect dish for a chilly February.
buff.ly/L7Qyz6V
This later diagnosis means that we need more treatments that slow down progression of Parkinson’s.
We’ve written about how new disease-modifying therapies might be the answer – learn more: buff.ly/oB8YDOR
In partnership with UCB and Novartis.
Sadly, people usually only receive a Parkinson’s diagnosis once they begin to experience these better-known movement difficulties, and by this time, around half of the dopamine-producing brain cells have already gone.
By the time Parkinson's is diagnosed, around half of the dopamine-producing brain cells have already gone.
Do you know the first signs of Parkinson’s?
Most people think it’s the infamous tremor (shaking) or stiffness. But often, the first signs are less obvious symptoms like pain, constipation and reduced sense of smell.
DM or email us at info@parkinsonseurope.org with your answer, name, where you live and the year and age you were diagnosed. Please don't share personal information publicly.
#ParkinsonsLooksLikeMe
We're asking people with Parkinson's: "How do you harvest joy to feel at your best?" Barbara will turn a selection of answers into illustrations for her book, like this, based on a submission from @matteagles.bsky.social: "I take great joy throwing a tennis ball for Luna, my black labrador."
How do you harvest joy? 💚
We're partnering up with artist and PwP @salsbergmathews.bsky.social on a new book of illustrations to raise awareness and fundraise for Parkinson's Europe's work.
The book, Harvesting Joy, is about celebrating the things that make you happy.
Nominate us!
Can we ask a favour?
Would you be able to spare just a minute to nominate us for the Benefact Group's Movement for Good £1,000 draw? We'd be so grateful for your support – plus, you get to bask in the warm glow of doing a good deed!
👉 Click here to nominate us: buff.ly/SEfFYNQ
Parkinson's-friendly recipe: saucy lentils and eggs
We've found the perfect mid-week meal!
This delicious lentils and eggs recipe is the ultimate speedy supper, packed full of Parkinson's-friendly ingredients. Thanks to NutritionPD's @richelleflanagan.bsky.social, a registered dietitian with young-onset Parkinson's, for sharing.
buff.ly/iDZeHfz
