If anyone in Alabama who both protests and takes Covid seriously wants to talk to me about your problems with the bill, my email is jmetraux@motherjones.com (reposts appreciated) www.alreporter.com/2026/01/28/d...
“ICE agents, get out now because historically, this ends with you hanging from a lamppost and your body paraded through the streets.” - the …we rate dogs guy
🚨Looking for recommendations for a UK doctor with experience in ME/CFS who may be willing to act as an expert witness in a legal case.
Unfortunately, Nigel Speight, William Weir, Claire Taylor, Binita Kane and Dr Bansal are not eligible. DMs open.
Donation link provided
Nature: The new vision from the National Institute of Allergy and Infectious Diseases
'NIAID will foster research to better understand long-term
post-infectious & non-infectious inflammatory syndromes..long COVID, chronic Lyme disease, myalgic encephalomyelitis..'
www.nature.com/articles/s41...
Still at $0/$200 for my next month of therapy appointments and I would also really like to maybe order some grocery foods. Brains are hard and I wanna try to bake some cookies and see if it helps.
"We lack such treatment (for ME) not because #ME is some “weird” “mysterious” illness that cant be understood Its because our political medical & scientific institutions have chosen to make ME the lowest-funded illness relative to disease burden by a mile"Nick Joliat
👇
massmecfs.org/members/memb...
For a @motherjones.com article, I am looking to speak to caregivers of disabled individuals who are 14 and older who are on Medicaid re Medicaid work requirement exemptions. My email to reach out is jmetraux@motherjones.com and reposts are appreciated.
A group of #severeME patients are trying to save Daryna, a young woman from #Ukraine with severe #MECFS, from the bombs & negligence. We want to take her as #refugee to #Germany. We find no help from anyone, including associations & NGO. Would you volunteer to help? Contact me. #pwME
It sounds like maybe your account is being suppressed in the algorithm. I'm so sorry to hear that! I'll keep doing my best to share this info with others.
Could you please repost this to twitter? I've been sharing this information with others, but my little account doesn't have the reputation and influence yours does.
CTA — Call Your Congressperson and Urge Them To Vote Against the House Budget Resolution Being Voted on Next Week
It is 11PM on Thursday night and an email from a high ranking Hill healthcare staffer has just hit my inbox: Medicaid faces an "existential" vote in the House, probably Tuesday...
PBS News wants to hear from those who have been affected by COVID. The more information they have on what COVID has done and is still doing to people, the better.
pbsnewshour.formstack.com/forms/covid
If we want to stop Elon Musk from destroying our entire society we have to make sure there is never another billionaire. They can't just be taxed out of existence, we tried that in the 60's and 70's and once they retook political power they dismantled everything
Moreover, ICE must be destroyed
MAGA/MAHA want massive cuts to Medicaid, resulting in catastrophic coverage loss.
Monday, 2/10 @ 4PM ET, we're doing a webinar on how to advocate for Medicaid with the legislative staff of a Member of Congress or U.S. Senator
(This is not geared towards providers/clinicians)
Register ⤵️
#MEcfs #LongCovid #NEISvoid hi hive mind, request please: can you point me to any papers or materials for clinicians that evidence or summarise heart and circulatory problems in ME? So, yes, POTS/dysautonomia but also wider, like the findings on preload failure. I have an incredibly patronising...
🤔 Community Question FEEDS
There's a tricky issue with the ME hashtag.
If we add #ME to the feed it's too broad & picks up LOTS of random things.
#me/cfs picks up Japanese anime.
#mecfs is ok but we have to include the cfs
We just thought people should be aware of this when #...1/2
I like this blocklist which blocks anyone with “MAGA” in their bio bsky.app/profile/did:...
hey! do you make cool art & sell it? post your art & shop in this thread! crafts, jewelry, prints, whatever! holiday gifting szn is a great time to support indie creators #artsky 🎨🖌️🖼️
The other day iPhone turned "poor little kitties" into "pork and cheese titties" and I'm still not recovered.
Lmao time to throw in the towel, everyone.
The image features a graphic design with a light beige background. At the top, the text "DAILY MUTUAL AID THREAD" is displayed in bold, dark green letters. Below it, there is a large green heart shape resting on a yellow hand graphic, symbolizing support and care. The text "HERE'S HOW YOU CAN HELP" is prominently featured at the bottom in bold, dark green letters. The overall design emphasizes themes of community support and mutual aid.
November 10 2024 #MutualAidThread! Post your needs here.
Rules:
1. Use Alt Text on images
2. Boost as many posts as you can in this thread
3. Only post once in this thread per day.
#HelpSky #MABoost #FundSky #MutualAid #HelpFolksLive2024
This thread is now done for the night! If you visited two hours ago, there are new posts; just keep clicking through to the end.
Goodnight, Newskies and members of the good old #NEISvoid! Sleep well. 😴
For the new twitter friends, here are two of my favorite things about bluesky:
1) if you block someone, they vanish. If they QTd you, it just says "blocked". Nuclear block stops trolls. They hate it.
2) If someone QTs you & you don't like it, you can detach your post from theirs. BRILLIANT TBH?
Hi, quick lowdown:
-the For You feed is called Discover here.
-add the Mentions and Quotes feeds to see those.
-You can filter posts by tag, so tag your artwork to make it easier to find.
-use the Sky Follower Bridge plugin to find your twitter moots
-we have video, DMs, pinned posts now
Ah, yes, welcome, natural disaster victims, to the victim blaming disabled people get when privileged people don’t want to think about scary things so they make them your fault. The last four years have been full of it.
If you just make flawless choices, bad things can’t happen to you!
OnStar has given customers in the areas affected by Hurricane Helene free access to their onboard WiFi capabilities.
If you have a Chevrolet, Buick, GMC, or Cadillac with Onstar system inside, you now have wifi access, even if you don't have an onStar subscription:
www.onstar.com/services/cri...
PSA FOR PEOPLE AFFECTED BY THE HURRICANE
Most insurance providers have a clause for spoiled food. Especially in times of disaster, it is a no questions asked payment of $200-$500 to recover food lost to power outages or other disaster spoilage, but you have to call up and request it!
