The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
10th March 2026 marks 6 years since I was diagnosed with #BreastCancer - here’s my blog about how I feel about that & what I’m up to now - themusingsofspu.com/blog/ @lizoriordan.bsky.social @welliesnseaweed.bsky.social @breastcancernow.bsky.social @breastcancerchatww.bsky.social
10.03.2026 13:01
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/ my new blog is up & it’s all about the UK Government’s #NationalCancerPlan #DepartOfHealthAndSocialCare @lizoriordan.bsky.social @breastcancernow.bsky.social @breastcancerchatww.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
10.02.2026 14:23
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/
My first blog of 2026 is up & it’s all about my annual mammogram - there’s always a story to tell about it! @breastcancernow.bsky.social @breastcancerchatww.bsky.social @lizoriordan.bsky.social @welliesnseaweed.bsky.social @thankscancer.bsky.social
14.01.2026 15:29
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Tribute to Perry Bamonte, 1960 - 2025
Dedicated to the memory of Perry Bamonte
perrybamonte.muchloved.com
For The Cure’s family of fans & lovers who wish to remember Perry ‘Teddy’ Balmonte by donating to his chosen charities (Devon Air Ambulance & the Dogs Trust).
You’ll be forever loved Perry 🖤💔
30.12.2025 23:31
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An image announcing a podcast episode. There is a headshot photo in a circular frame of a white-skinned, middle-aged woman sitting in her electric wheelchair. Surrounding the photo, pink text on an off-white background says,’Pink Nest podcast (with a pink butterfly image), 009, Suzanne Bull MBE, 9th Episode.’ Pink lines either side of the photo depict sound waves.
I recorded an episode with #NikaBrunetMilunovic for her #PinkNestPodcast we talk everything from growing up in Essex, to reshaping #LiveMusic to make in #AccessibleToDisabledPeople whilst I worked at #AttitudeIsEverything & finally living life with a BreastCancer diagnosis - pinknestpodcast.com
16.12.2025 09:49
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/ my new blog - my 60th one! - is up & I’m bringing on Christmas early! @breastcancernow.bsky.social @breastcancerchatww.bsky.social @lizoriordan.bsky.social @thankscancer.bsky.social
10.12.2025 14:45
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/ My new blog is up & it’s all about something unexpected…
@breastcancernow.bsky.social @lizoriordan.bsky.social @breastcancerchatww.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
11.11.2025 16:22
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/ my new blog post it up about @breastcancernow.bsky.social #WearItPink2025 & my work in Public & Patient Involvement with @imperialcollegeldn.bsky.social @lizoriordan.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social @breastcancerchatww.bsky.social
13.10.2025 09:19
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
My latest blog has just gone live - themusingsofspu.com/blog/
This one’s about managing current side effects & a new section - ‘Explainers.’ @lizoriordan.bsky.social @breastcancernow.bsky.social @breastcancerchatww.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
09.09.2025 15:57
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Image description:
Speaker announcement for the Accessible Events Show, 18 September 2025 at The Drum, Wembley. It announces Suzanne Bull MBE, Creative Freelancer, with her photo shown below the text. Suzanne is a white woman with long hair, wearing glasses and hoop earrings and smiling against a pink background.
I’m going to be speaking at the Accessible Events Show - & the tickets are FREE!!! Yes - FREE! lnkd.in/eRDRySfW #AccessibleEvents #EventProfessionals #AccessibleEventsShow #Accessibility
19.08.2025 08:55
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/
Hello, my new blog post - ‘The heat is on’ has just been published on my blogsite. Enjoy! @breastcancernow.bsky.social @breastcancerchatww.bsky.social @lizoriordan.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
15.08.2025 10:20
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An announcement from Creative Newham’s website about their new project advisory board. The background colour is purple & there are black & white headshot photos of 14 members with our names underneath.
www.creativenewham.com/project-advi...
I’m proud to announce this morning that I’m now a member of #CreativeNewham Project Advisory Board!
16.07.2025 09:25
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/ My new blog post is up & it’s all about the #WelfareReforms & other realities for #DisabledPeople in the UK. It comes with a #TriggerWarning @lizoriordan.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social #TakingThePip #Fight4Life #AccessToWorkCollective
14.07.2025 13:49
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Access To Nowhere. I’m backing #AccessToNowhere - a campaign led by disabled people demanding urgent reform of Access to Work. Sign the open letter. Write to your MP" in white text on a teal background. It features the Access to Work Collective logo and a yellow "add your name" button.
#AccessToNowhere is a campaign led by #DisabledPeople demanding urgent reform to #AccessToWork - a scheme meant to support disabled people in employment. Instead, it’s failing us.
📢 Help us!
1. Sign the open letter lnkd.in/eKp-deeC
2. Write to your MP lnkd.in/e4Ph__6r
3. Share this post!
07.07.2025 16:43
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A white-skinned wheelchair user, sitting in her manual wheelchair, in a garden, filled with people. She’s wearing a long, blue, silk dress with large flowers, black-rimmed glasses, a large gold necklace with many chains, gold earrings, silver face piercings, gold & silver rings & a gold watch. She’s smiling, holding up a large wine glass which is half-filled.
Up yours to this government & their despicable #WelfareReforms If you think you’re going take my #PIP then I’m going to live my best life & run rings around you! #BeingIllIsNotACrime #Fightback Solidarity with my #DisabledCommunity #TakingThePip & @fight4lifeuk.bsky.social
30.06.2025 12:40
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A brown piece of card being held with one hand. Written in the card is blue felt pen is the following text ‘Being ill isn’t a crime. Asking for help isn’t a crime. Stop this government from #TakingThePip.’ The photo is taken from a lying in bed position. In the foreground of a bedroom decorated in Art Deco-style, there is a child-sized walking frame & a small, manual wheelchair.
#OnlineProtest #StayAtHomeProtest STOP this government from #TakingThePip because being ill isn’t a crime & neither is asking for help. No one should fear growing old, getting sick or becoming disabled in the UK! @fight4lifeuk.bsky.social - Solidarity with all my #DisabledCommunity
30.06.2025 12:16
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Disabled Labour MP says welfare U-turn would create ‘unethical two-tier system’
Olivia Blake dismisses Starmer’s welfare bill changes as ‘plucked from the air’ and urges rebels to stand firm
Excl: Disabled Labour MP says disability benefits concessions would create ‘unethical two-tier system’.
Olivia Blake, one of only nine MPs in parliament who has a disclosed disability, urges her colleagues to vote against the bill.
My story: www.theguardian.com/politics/202...
28.06.2025 16:30
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An A4 certificate on white paper with gold trimmings. The text in black, green & gold says - Certificate training. Suzanne Bull. AGF A Greener Future Assessor Training. Held online. Falmouth University. AGF A Greener Future (with a green lotus-type branding). T.A.Moore (signature). Director. AGF A Greener Future. 25th June 2025. Date.
I’m proud to say that I passed Stage 1 of @agreenerfuture.bsky.social & @falmouthuniversity.bsky.social Sustainability training! Thanks to Angel Funding for helping me pay for my studies. #ClimateSustainability #LiveEvents #Training #SustainableSolutionsForLiveEvents #ShortCourses
25.06.2025 10:31
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A small, green enamel badge edged in gold, laying on a white dressing table top. There’s a reflection from a glass of water. The writing on the badge in gold capital letters says ‘Grenfell.’
I can never properly sleep this night. #NoJusticeNoPeace #Grenfell
14.06.2025 00:36
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The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
themusingsofspu.com/blog/
I’ve been modelling with @breastcancernow.bsky.social once again! Prepare for pure pink joy & frank discussions about being a disabled model! @lizoriordan.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
13.06.2025 12:12
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Suzanne's story
Suzanne wants to highlight that disabled people get breast cancer too, and that a more diverse representation of breast cancer should be shown.
breastcancernow.org/wear-it-pink... So happy to be featured in @breastcancernow.bsky.social #WearItPink campaign for 2025. Because #DisabledPeople get #BreastCancer (I did) #WearItPinkDay in the UK is 24th October! ID: I’m sitting in my wheelchair wearing a pink dress & a pink tasselled jacket.
12.06.2025 14:30
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I’ve just been to see it - it was magnificent x
07.06.2025 17:35
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Jack Thorne is absolutely right!
29.05.2025 12:07
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DWP warned benefit claimants are dying of starvation
The Work and Pensions Select Committee is calling for the DWP to be made legally-responsible for safeguarding benefit claimants.
The government must create a “compassionate” benefits system which does not “demonise people for needing social security support” to prevent further deaths of claimants, the Work and Pensions Select Committee chair has warned
www.bigissue.com/news/social-...
28.05.2025 09:36
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Home - Taking The PIP #TakingthePIP
Join the #TakingThePIP campaign and stand against government cuts to disability benefits. Read the open letter, share your story, write to your MP, and help protect disabled people’s rights and suppor...
takingthepip.co.uk join the campaign to STOP the UK government’s proposed cuts to #PIPbenefit & #AccessToWork - they risk putting 1.3 million people in more poverty & #DisabledPeople losing their jobs (& the government’s drive is meant to be getting disabled people into employment 🤷♀️)
29.05.2025 08:06
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👊 #TakingThePip
Why is it a crime to be ill? Why is it a crime to ask for help to live your best life? Why is it a crime to be supported at work?
Allies of the #DisabledCommunity this is the time to show up for your #DisabledFamilyMembers #DisabledFriends #DisabledColleagues
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27.05.2025 22:05
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The government is proposing huge PIP cuts here’s why that’s a disaster. Disabled households already face: 63% higher living costs £1010/month in extra expenses, food bank reliance, struggles to afford heating, rent or food. Rising poverty. Up to 1.3 million people could be hit. This isn’t just a policy change - it’s a crisis. Ask your government to STOP #TakingThePip
Adding my voice to the #TakingThePip campaign & asking our government to STOP these barbaric & inhumane cuts to the #DisabledCommunity Up to 1.3 million people could be forced into poverty & this is a crisis!
27.05.2025 18:59
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Call for NHS to give women with dense breasts extra cancer scans - important advances in #BreastCancer detection & treatment
22.05.2025 15:06
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