#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai #MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience...

We are so honored to share this powerful TedX talk with you from #MEAction GA’s Maggie Boxey! Maggie is a person with ME, Navy veteran, and published author. She shared her story in her recent TedX talk, "I Am One of the Millions Missing.” www.meaction.net/2025/04/21/m...

#pwME #MECFS #TedX

On Earth Day and every day, we ground ourselves in the knowledge that our struggles are deeply connected. The fight for Long COVID justice is intertwined with our struggles for #disabilityjustice, #climatejustice, #racialjustice, and so much more.

Light grey background with black text box across the top, with light green text that says “BREATHING FOR JUSTICE.” Additional text says: “A free online event exploring the intersections between Long COVID and disability justice. Meet the panelists, Part One.” Below this are 7 photos of panelists. Additional text says: “Part One, April 23, 10 am - 3:30 pm CT, Learn more + register: tiny.cc/Breathing4Justice.” Next to this is a QR code.

Light grey background with black text box across the top, with light green text that says “BREATHING FOR JUSTICE.” Additional text says: “A free online event exploring the intersections between Long COVID and disability justice. Meet the panelists, Part Two.” Below this are 7 photos of panelists. Additional text says: “Part Two, April 23, 1:30 - 3:30 pm CT, Learn more + register: tiny.cc/Breathing4Justice.” Next to this is a QR code.

We’re excited to share more details about the panelists for Breathing for Justice @breathing4justice.bsky.social, a special event focused on #LongCOVID & #DisabilityJustice, this Wednesday 4/23.

Learn more & register at www.tiny.cc/b4j-info (All registrants will receive the recording & resources!)

Kirsten Ferrell (white woman with long straight hair) lightly smiling at the camera. Text overlaid on photo: "SOS storytelling to motivate action"

Storytelling training for #MIllionsMissing! Expert storyteller, Kirsten Ferrell, will lead our community in a storytelling training that will enable us to share our stories in a way that leads to change on April 27th at 12pm PT/3pm ET. Register here: www.eventbrite.com/e/millionsmi...
#pwME

Calling all Long Covid, ME/CFS and Post-Treatment Lyme patients in the Boston area! This PolyBio-supported study is now seeking participants.

Participants must be able to attend an in-person visit at Brigham & Women’s hospital in Boston to participate.

Email dsaadi@mgh.harvard.edu if interested

I’m so sorry 😭 I recently received my 2nd denial - will be talking more about this on Wednesday. Keep sharing your stories! You’re not alone ❤️‍🩹 we need revolutionary change!

Tuning into Los Angeles County Public Health's 'Public Health Virtual Town Hall on Long COVID' tonight

Collage graphic showing President Trump holding a chainsaw, standing in front of a sign for the CDC’s campus. The image is cast in red light and has a foreboding vibe. The text reads, “The Sick Times. $11 billion CDC funding cuts may decimate Long COVID response in several states. By Betsy Ladyzhets.”

Black text on a white and red-ish background reads, "Much of HHS’s rationale for terminating the grants relies on the argument the COVID-19 pandemic is “over,” even though the disease is still circulating widely in the U.S., with hundreds of deaths reported each week — likely an undercount — and many people newly developing Long COVID. - Betsy Ladyzhets, The Sick Times co-founder + managing editor."

The Trump administration recently canceled $11 billion in CDC grants to state and local health agencies. The Sick Times has identified specific #LongCOVID programs impacted, including state-level research, outreach, partnerships with community organizations, and more. bit.ly/4jjeAzi

Chan Soon-Shiong Family Foundation donation expands PolyBio Long COVID program - PolyBio Research Foundation Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in...

PolyBio: 'Chan Soon-Shiong Family Foundation donation expands PolyBio Long COVID program'

'Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in LC tissue, including therapies..'

polybio.org/chan-soon-sh...

My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. - The Sick Times Dear Mom, Thirty years later, I finally understand. Do you remember the year 1994? You got sick when I was a child, and you weren’t ever the same again. At first, it was a cough and congestion But as ...

“My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her.” via @thesicktimes.bsky.social

thesicktimes.org/2024/12/10/m...

Powerful story about how a daughter didn’t understand her mother’s ME and all of the gaslighting until she found herself with Long Covid, decades later.

#pwME #pwLC

My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. - The Sick Times Dear Mom, Thirty years later, I finally understand. Do you remember the year 1994? You got sick when I was a child, and you weren’t ever the same again. At first, it was a cough and congestion But as ...

Today @thesicktimes.bsky.social: Jacquie Luciano describes how her experience with Long COVID led her to better understand her mother’s experience with ME decades earlier.

This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...

Working Americans (many of them disabled) pay into Social Security for their entire career out of recognition that these protections are what we owe one another, especially our disabled and aging neighbors. Making SSA harder to access is theft from those who've paid into SSA to protect their future.

Disabled Americans deserve a functioning Social Security system, and are already suffering from these changes. Should DOGE be allowed to carry out Elon Musk's plan to reduce SSA capacity by more than 50%, it will harm and kill countless disabled people.

AAPD and Disability Advocates Sue Social Security Administration and DOGE to Stop Unlawful Cuts to Social Security Services - AAPD For Immediate Release: April 2, 2025 Contact: Jess Davidson at jdavidson@aapd.com; 202-465-5528   WASHINGTON, D.C. – The American Association of People with Disabilities (AAPD), the National Federatio...

Breaking: We just filed a lawsuit in federal court against the Social Security Administration (SSA), SSA Acting Commissioner Dudek, the "Department of Government Efficiency" (DOGE), DOGE Administrator Gleason, and de-facto head of DOGE, Elon Musk 🧵:

www.aapd.com/aapd-sues-ss...

#MillionsMissing 2025: Sending Out An SOS For #MillionsMissing 2024, #MEAction is sending out an SOS.

Announcing #MillionsMissing 2025 on May 12th!

#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...

#pwME #MECFS #LongCovid #disability

Light grey background with black text box across the top, with light green text that says “BREATHING FOR JUSTICE.” Additional text says: “A free online event exploring the intersections between Long COVID and disability justice. Thought-provoking presentations, panel discussions, and community conversations. April 23, 2025 10 am - 3:30 pm CT Learn more + register: tiny.cc/Breathing4Justice” Next to this is a QR code. Along the bottom edge are logos for University of Illinois - Chicago, Illinois Humanities, American Association of People with Disabilities, Long COVID Justice, and S4HI. Additional text says: “Sponsored by: Illinois Humanities & American Association of People with Disabilities.”

Join us for Breathing for Justice (@breathing4justice.bsky.social), a special event exploring how the intersections of #LongCOVID and disability justice affect individuals & communities, with a focus on inclusive health research & public history. www.tiny.cc/Breathing4Justice 🧵