I have Long Covid with PEM and POTS, tried low dose nicotine patches a couple of years ago, I could not tolerate them at all, but persevered for a week, then had to give up, and was very relieved to have made that decision. Not for me.
Ein Jahr nach meiner ersten Corona-Infektion konnte ich (fast) alles wieder machen.
Nach der zweiten wurde es um einiges schwieriger.
Über zwei Jahre nach der dritten hat sich mein Leben fundamental verändert, und ich kann ich nicht mehr arbeiten.
#LongCovid
Most people think COVID symptoms fade within months.
But a 2-year follow-up study in South Korea found 71% of patients still reporting fatigue, memory problems, insomnia, and poor concentration
The virus may leave lasting neurological effects.
Pandemics don’t always end when infections do
#LongCOVID
‚Leader’s centre-right CDU party is hoping to beat Greens in Sunday’s election in Baden-Württemberg‘
Well, that didn’t happen!
Greens winning, not just in the UK 🙂
www.theguardian.com/world/2026/m...
Es ist wirklich schade, dass es keinen PEM-Simulator (PEM = Post-Exertionelle Malaise) gibt, um ME/CFS-Verharmlosern die Schwere der Erkrankung zu vermitteln.
Aber selbst wenn ein solcher Simulator entwickelt würde, würde die Anwendung niemals durch die Ethikkommission gehen...
#ME/CFS
Today is the National Day of Reflection.
The UK "must learn lessons" - not only "to be better prepared for the next pandemic" but to protect vulnerable lives and health now.
Our thoughts are with everyone who suffered and those living with loss. ❤️💛
Ich wünsche wirklich niemandem PEM, aber ich frage mich schon manchmal, wie man solchen Leuten beibringen kann, was PEM bedeutet, außer sie erleben es mal am eigenen Leibe?!
#LongCovid
#ME
Podcast-Cover „Klinisch Relevant x Kohlhammer“. Darunter ein Foto der Gesprächspartner Prof. Yesim Erim und Prof. Volker Köllner. Titel der Folge: „Post-Covid-Syndrom“.
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Der „Klinisch Relevant Podcast“ mit Prof. Yesim Erim und Prof. Volker Köllner wird von vielen Ärztinnen und Ärzten gehört.
Umso wichtiger ist es, genau hinzuhören, wenn über
#MECFS #PEM gesprochen wird.
Ein paar Punkte aus der aktuellen Folge.
Long Covid groups in the UK- including Long Covid Support, Long Covid SOS, Long Covid Kids, and Long Covid Physio - suggest the government must move from "tokenistic recognition" to a comprehensive national strategy addressing Long Covid as a mass-disabling event. Following findings that the government ignored warnings and failed to manage the crisis, they are demanding long-term funding, specialized care, and prevention measures. © Long Covid SOS Key Recommendations to the UK Government: • Establish a National Strategy: Create a dedicated cross-government taskforce, led by a designated minister, to manage Long Covid as a public health and economic crisis. • Long-Term Funding & Research: Ringfence £100m in annual research funding, with a focus on biomedical research, clinical trials, and patient-driven research priorities.
• Fix & Expand Healthcare Services: Reverse the closure of NHS Long Covid clinics, establish Centres of Excellence across the UK, and ensure multidisciplinary care that goes beyond basic rehabilitation. • Protect Children & Schools: Implement specific, child-centred action, including improved air quality in schools and measures to prevent further infections in educational settings. • Workplace & Welfare Rights: Formally recognize Long Covid as a disability under the Equality Act 2010 and as an occupational disease for frontline workers, granting access to industrial injuries benefits. • Public Health & Prevention: Launch public campaigns on the risks of Long Covid and implement public health measures (air cleaning, mask-wearing in healthcare) to reduce ongoing transmission.
Background and Context As of early 2025/2026, many specialized Long Covid clinics are closing, with only 46 confirmed to remain open out of over 120, while 24 have closed and 31 are under review. Advocacy groups argue this is leaving the sickest people without care. The All-Party Parliamentary Group (APPG) on Long Covid continues to urge the Prime Minister to act on these issues to prevent a worsening, long-term societal and economic impact.
#LongCovid
A dark blue graphic for International Women’s Day featuring a purple and blue gradient hand icon with a heart in the palm at the top. The word "WOMENS" is written in large block letters, with each letter containing a black-and-white photo of women. Below it, the word "Day" is written in pink script. At the bottom, pink text reads: "Diseases that mostly affect women – like Long Covid and ME – are still trivialised, psychologised, and dangerously underfunded. Medical misogyny isn’t a relic. It’s alive and well."
👭 On #InternationalWomensDay we honour the women with Long Covid and ME and allies who keep pushing for truth, research, and care.
♀️Listen to women. Fund the science.
Today is the annual Covid-19 #DayOfReflection. 6 years have passed since the start of the pandemic. We reflect today, alongside our community, on the people who lost their lives to Covid-19; the people who still face day-to-day impacts; and on the road ahead.
#Covid19 #DayOfReflection #LongCovid
The service of reflection at St James's University Hospital gave local staff, patients and families a chance to "reflect on the sacrifices made" and recognise the ongoing impact of those living with long Covid. There are an estimated 1.9 million people in the UK living with long Covid, a condition that has more than 200 symptoms with no cure. Fran Haddock has had long Covid for three years and said there needs to be more awareness for those "living in this complete limbo". Haddock, 35, said: "I'm still seeing new people getting long Covid and entering the long Covid community now. "People are still getting sick long-term, like me with no treatment or cure and not knowing what my future holds."
#LongCovid
www.bbc.co.uk/news/article...
PART 2 - Prevalence of Long Covid
Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains why the number of Long Covid cases in the UK is increasing .
#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport
6 years on from Covid, BBC Look North highlights the ongoing impact of #LongCovid. Reporter Cathy Minton says it’s personal, her husband Tom hasn’t improved in a year. He still can’t care for his toddler or go for walks. @franhaddock.bsky.social says new people continue to get long Covid.
Like what?
Progressively Widening Healthcare Costs in Long COVID Over Five Years — Jingya Cheng et al. "The trajectory showed no inflection point suggesting stabilization, even at 60 months of follow-up. This distinction carries important implications for health system planning, as static cost projections based on short-term estimates will substantially underestimate the true economic burden."
Progressively Widening Healthcare Costs in Long COVID Over Five Years
www.medrxiv.org/content/10.6...
Screenshot from latest Science for ME weekly update
#LongCovid #PASC
Enough to know that those who write about their recovery publicly are much more likely to credit something they‘ve done for their recovery (often things that others do as well without recovering), rather than entertain the possibility that their body might have recovered anyway, whatever they did.
PART 1 - What is Long Covid?
Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains what Long Covid is.
#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport
1) 🇩🇪 This study of hospital employees (HEs) infected with Sars-Cov-2 in three medical centres in Cologne, found that a year later, at least 3.2% meet ME/CFS criteria.
Congratulations to @sharonhodgsonmp.bsky.social on her new role Minister for Public Health and Prevention.
Sharon has been a strong supporter of people with ME/CFS and has spoken in a number of parliamentary debates. Here are some highlights from a debate in 2019.
Mmh, blaming the practitioner or the patient for a technique not working... If somebody has recovered, they’ve done it right, if they haven’t recovered, they’ve done it wrong. Conveniently leaves the belief in the technique as ‚valid‘ intact.
Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.
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More first class #PublicHealth messaging from @durhamhealthnc.bsky.social -
Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness.
The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.
Seit unsere Kolumnistin @margaowski.bsky.social an #LongCovid leidet, wartet sie auf Besserung – und wartet … wie sie damit umgeht, dass sich alles zieht, lest ihr hier:
‚See no Covid, hear no Covid…‘
‚Covid is not over!‘
#LongCovid
OK, the Gorton and Denton by-election, I have some thoughts!
Let's take a look at some of the FACTS and burst a few of the more ridiculous takes doing the rounds
But first up, can we acknowledge just what bad losers Reform are?!🤣
Right, let's get started...
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The Green Party of England and Wales appears to have more members now than the Mother of all Green Parties, Bündnis 90/Die Grünen of Germany.
