“The second you become disabled you cease to be seen as a reliable interpreter of your own life. People will stop believing you.”

MOST people will stop believing you, including people you loved & trusted above all others. It’s absolutely fucking traumatizing. Wear a mask & avoid it if you can

Life is short. Whack someone with your cane today.

39 years of repeating..
"No"
"No, sorry, I can't do that
"No, sorry, I can't do that, because I have #ME
"No, it wouldn't 'do me good', thanks
"No, there's still no treatment for #ME
"No, Drs still aren't medically qualified to treat #pwME
"Yes, #ME can be fatal"
🤦‍♀️😫

If the people on Wife Swap were not told to play it up for the cameras, that would mean we were warned of how horrible humanity was in every single episode.

Stoned thoughts as I watch an episode, all cozy on the couch and the tree.

I can't believe I have to say this, but if you have COVID don't go to public gatherings/events.

Parece un vil Juanpa

One of the main ways I see abelism showing up in my life is people will refuse to absorb anything I explain about my disease and then act like any symptoms or things that happen as a result of the disease are character flaws, do other #pwME experience this?

When the gov’t gave you permission to remove your mask & abandon immunocompromised people, it didn’t only harm us

It harmed EVERYONE

They told you that u were better than disabled / immunocompromised ppl & you believed their lie

Health supremacy is a lie

You went along bc you WANT to believe it

living through the rise of fascism lets me know how much of it occurs just because people don’t want to appear alarmist

Thank you, I did. And thankfully it didn’t lower my baseline.

People have no idea what we go through

Protestor wearing mask and holding sign that reads “SCIENCE KEEPS YOUR DUMB ASS ALIVE”

Best #HandsOff rally sign

Please ignore tired pieces in publications like the Atlantic that are still trying to stigmatize mask wearing.

Wearing a mask to prevent sickness from airborne viruses is a science-informed position, and it has been that way for over 100 years.

“Not only are Very Severe patients in crisis neglected by Long COVID and ME organizations who should be mobilizing to come to their aid, Severe advocates stepping into the breach are put at risk.”

Hear, hear. People with #MECFS and #longCOVID are doing much of the hard work of advocacy and education, while trying to live our lives on scant leftover energy. And by living our lives, I'm talking about trying to take a shower, digest a meal, or reading a book without collapsing from fatigue.

For some disabled protestors, “Hands Off” went virtual "We know we have to teach everyone how to include us."

Not all “Hands Off” events were in-person. I attended two virtual events centering chronically ill and disabled people for @motherjones.com, who are terrified about attacks to Medicaid, Section 504, research funding, education and more. www.motherjones.com/politics/202...

Map of the US with different colored symbols representing the following statistics: 1.7 million - cancer 1.2 million - HIV 1 million - multiple sclerosis 16.3 million - Long Covid Graphic from this CNBC story from 2022: https://m.youtube.com/watch?v=RMzoCNPctuo&dp_isNewTab=1&dp_referrer=other&dp_allowFirstVideo=1

“Our collective spoons are our greatest asset!” We each are limited but together we have power👇. Do what you can, rest, pace, and stay focused, friends.

Y’all are awesome! Keep it up!👏👏👏
/end

I understand completely

Rule of thumb for shooting at a protest, capture the crowd, not the people.

For some of us it is hard. I absolutely agree with what you’re saying, and the need for Alt. Text, but saying it’s not hard is ignoring that many of us with brain fog and low spoons it can be. Just keep that in mind please.
I avoid posting pictures now when I can’t.

Covid killed old & sick as well as young & healthy. A virus doesn't give a fuck. It kills with impunity. I was lucky it didn't kill me when I got hit with the Rona early on. Two weeks in bed. I had a Pfizer vaccine, thank my lucky stars. Vaccines save lives. Fuck RFKJ.

Battle fatigue For ME sufferers, the bitter feud between the scientists as to whether it is a genuine physical complaint, or more a disease of the mind, has only added to the dispiriting nature of their ailment. Aft...

Twenty-three years ago today.
Jerome Burne and the obligatory appearance of Wessely.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs

www.theguardian.com/society/2002...

I really don’t advice opening a Churu with your teeth.

Some people need to stay in their own lanes. They're allowed to have biased and uninformed opinions, but when they air those publicly behind an aura of expertise, they become dangerous. There's too much evidence of the biological basis of #ME-CFS and #longCOVID. Willful ignorance is unforgivable.

Mike spotted this before the rest of us. 🫡

Publications from 2025 are shared more on Bluesky than on X/Twitter.

A piranha with large, round, red eyes with small black pupils, positioned unnaturally wide apart. Its mouth is slightly open, revealing a row of sharp, triangular teeth. The skin is a mix of silvery-gray and gold with a slightly reflective quality. The background is blurred, suggesting an underwater environment.

When I’m fully disassociated and I put on my active listening face

Indigenous Spirituality: Resilience in Decolonizing Mental Health As a psychologist and researcher working across Indian country for the past 15 years, notwithstanding significant historical trauma and ongoing systemic challenges, Indigenous people in the so-called ...

Decolonizing mental health requires being open to understanding that spiritual forces require constant and careful attention.

crushingcolonialism.org/indigenous-s...

#indigisky #disability #mentalhealth #spirituality

Artist: ChronicallyMeh on Insta Two things can be TRUE at once [main character(woman) putting hands out to person "I crave connection"] [the person passes right by her as she kneels and holds her head in her hands "but I don't have the energy for it"]

Artist: ChronicallyMeh on Insta
#chronicillness #chronicallyill #autoimmune

Even when I try to go on other social media to distract myself, I keep reading about “healthy”young people, that have blood clots, or strokes, or a kidney disease, a vascular condition, a new cancer diagnosis… and their doctors are perplexed and can’t explain it…
*screams*

Me abrí una chelita por que me urgía.

Luna ama jugar con la corcholata.

Doble gozo que trae la cerveza.