This week we’re highlighting how people with CF and their loved ones are shaping the direction of the CF Lung Health Network, co-funded by #CFTrust and LifeArc.
➡️ https://ow.ly/NqBi50YseGq
We are looking for someone to join our Trustee Board as our new Treasurer, overseeing the financial affairs of the charity and ensuring that they are conducted legally, transparently, and in line with the charity’s governing document.
➡️ https://ow.ly/qPLb50YrGe4
#cysticfibrosis #cftrust
This week we’ve been visiting researchers within our Translational Innovation Hub Network for CF Lung Health and Infection funded by the Trust and LifeArc.
Find out more about our Trailfinder-CF and Pulse-CF Innovation hubs on our website.
➡️ https://ow.ly/iERe50Yp1g7
#cysticfibrosis #cftrust
This Rare Disease Day, we're highlighting some of the studies we're funding to achieve our goal of developing effective treatments for everyone with CF.
We caught up with Mark at our UK CF Conference to hear more about his research and the difference it could make.
➡️ https://ow.ly/nWgg50YmSHi
We’re currently recruiting for two roles in our Research and Healthcare Data Directorate!
⭐ Registry Data Manager (12 months FTC)
🗓️ Closes midnight on 2 March.
Head to our website to find out more.
➡️ https://ow.ly/32v750XSo7E
#CharityJobs #cysticfibrosis
It's Helplines Awareness Day! ☎️
What better day to highlight our amazing Helpline team, who are here to offer confidential support and a listening ear to the CF community. 💛
📅 Monday–Friday, 10am–4pm.
📞 0300 373 1000
✉️ helpline@cysticfibrosis.org.uk
📱 WhatsApp on 07361 582053
More than one in four adults with #CF are receiving treatment for CF diabetes.
Trust-funded researchers have found chemicals in the blood that could be used as markers for the development of CF diabetes.
➡️ https://ow.ly/xnQr50Yi4Rx
Some people may not have a #cysticfibrosis diagnosis confirmed until later in life.
We're funding research to introduce mini-gut (or ‘organoid’) tests to improve how this diagnosis is made.
Read about a recent progress meeting of our ADVANCE-CFTR Development Award.
➡️ https://ow.ly/Nj0750Yh0Br
We'd like to say a huge thank you to everyone who has responded to our PIP survey so far, over 300 of you have shared your views which is absolutely amazing!
The survey will be closing soon but there is still time to get involved.
➡️ www.surveymonkey.com/r/SKW8KM6
We’re currently recruiting for two roles in our Fundraising team!
⭐ Trusts Fundraising Manager
⭐ Senior Philanthropy Manager – Major Donors (12 months FTC)
🗓️ Closes midnight on 22 February.
➡️ https://ow.ly/32v750XSo7E
#cftrust #CharityJobs #cysticfibrosis
On International Day of Women and Girls in Science, we spoke to Bethinn, a CF researcher who also has CF, about her work, diagnosis, and the unique perspective she brings to her field. 🔬
➡️ https://ow.ly/s4Jy50YcJIy
The UKHSA and the MHRA have issued a reminder to the public to stop using, and dispose of any non-sterile, alcohol-free wipes they may have at home.
Read more in the post below, as well as on our website.
➡ www.cysticfibrosis.org.uk/alcohol-free...
Share your views on PIP! 🗣️
The UK Government is reviewing disability benefit Personal Independence Payment (PIP), and we need your input to advocate for the CF community.
Take part via the link below.
➡️ https://www.surveymonkey.com/r/SKW8KM6
Click on the link to find out more about research underway in this area.
➡️ ow.ly/Mr5S50Y8FKk
#cysticfibrosis #CVD #cftrust #cardiovasculardisease #heartdisease
4/4
Is this a topic you’ve thought about?
If you had a roomful of researchers, what would you want to ask them about this topic?
Share your thoughts in the comments and we will report back to our research team.
3/4
🟡 Some studies have shown that people with CF may be at higher risk of developing CVD than people of the same age in the general population.
🟡 More research is needed to understand heart health in people with CF and prevent heart disease from developing.
2/4
Top left: Cystic Fibrosis Trust logo in dark blue and yellow Top right: Research Wednesday Logo in white and light blue with a microscope illustration. Centre: Cardiovascular disease and CF, share your views.
Researchers want to find out the chances of people with CF developing diseases of older age. This includes understanding more about cardiovascular disease (CVD), commonly known as heart disease.
🟡 CVD is a group of conditions relating to the heart and to blood vessels.
1/4
This week’s #ResearchWednesday is all about research to develop treatments for people with rare CF variants.
The HIT-CF programme did personalised screening in the lab, before testing the new treatments in the CHOICES clinical trial.
➡️ www.cysticfibrosis.org.uk/news/results...
Got questions about your research career? Join our Coffee and Careers webinar tomorrow, Jan 28, with Dr Guy Moss! 🔬
➡️ https://ow.ly/O7bq50Y4smr
Did you know we have an online forum? 💬
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
Want to learn more tips and ideas about #earlycareerresearch?
Join our next Coffee and Careers webinar series on 28 January, where ECRs can hear insights from more senior researchers who reflect on their careers and what they've learnt along the way.
➡️ https://ow.ly/n3s450XXhs9
#cysticfibrosis
It's #ResearchWednesday – and this week is all about supporting early career researchers (ECRs).
Last year at #UKCFC, Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
What do you think about your child’s CF care? Together with CF teams across the UK, we are looking at experiences of CF care in paediatric settings.
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
The new season of our podcast, CForYourself, is here! 🎙️
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
On Friday 16 January, Labour MP for Cambridge, Daniel Zeichner, visited Professor Martin Welch’s lab at the University of Cambridge to learn more about research improving treatment options for lung infections in people with cystic fibrosis.
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
Upper Logo: Cystic Fibrosis Trust Text: The Airtivity Study: investigating a new anti-inflammatory medicine in people with bronchiectasis. Arrow: find out more on our Trials Tracker
Head to our Trials Tracker to find out more. (4/4)
➡️ cysticfibrosis.org.uk/trialstracker
#cysticfibrosis #cftrust #clinicaltrials #researchwednesday
Upper Logo: Cystic Fibrosis Trust Text: *Physical Activity: looking at whether physical activity improves heart health in people with cystic fibrosis. Unified CF: understanding how people respond to infection and treatments for infection. Asterix: remote participation
This includes five new studies looking at everything from diet and exercise programs for people with CF, to a new anti-inflammatory medicine, to understanding more about current treatments for infections. (3/4)
Upper Logo: Cystic Fibrosis Trust Text: *Ease CF: looking at a weight loss programme for people with cystic fibrosis. *COS-CF: determining which outcomes to measure across all CF research studies Asterix: remote participation
You can find 17 studies on our Trials Tracker currently looking for people to take part, including several you can take part in from home. (2/4)
Upper Logo: Cystic Fibrosis Trust Text: Could you take part in CF research? We have five new clinical trials on our Trials Tracker Lower logo: Research Wednesdays
Could 2026 be the year you take part in a CF research study? (1/4)
➡️ cysticfibrosis.org.uk/trialstracker
"Should I go somewhere else for my post-doc? I wonder if anyone has any tips?" 🤔🔬
Calling all early career researchers! Join us for our Coffee and Careers webinar on 28 January and hear from researchers as they share advice about following a career in research.
➡️ https://ow.ly/SE0h50XT12P
