Trending
Sandra Smith's Avatar

Sandra Smith

@sandrasmithmnd

Husband died MND/FTD. Public Adviser MND, Dementia, Palliative End of Life care, Health Inequalities ARCNWC was Sandra True Spontaneous coronary heart dissection survivor

30
Followers
70
Following
5
Posts
13.03.2025
Joined
Posts Following

Latest posts by Sandra Smith @sandrasmithmnd

Post image Post image

πŸš€We are hiring!

As we prepare for the next ARC EoE from April 2026, we are excited to open two opportunities within our leadership team:

πŸ”΅ARC EoE Co-Director➑️ arc-eoe.nihr.ac.uk/news-blogs/n...

πŸ”΅Research Capacity Development Co‑Lead➑️ arc-eoe.nihr.ac.uk/news-blogs/n...

⚠️Apply by 9 Feb 2026

12.01.2026 20:31 πŸ‘ 3 πŸ” 4 πŸ’¬ 0 πŸ“Œ 1
Post image

Regional inequalities in health, wages and economic inactivity have deepened since our first #HealthforWealth report in 2018, placing a financial burden on the economy and stagnating possible productivity growth.

www.healthequitynorth.co.uk/poor-health-...

24.11.2025 08:51 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

This important research for people living with MND by dedicated experienced researchers and medical professionals with people living with Motor Neurone Disease at the heart of research

07.11.2025 17:42 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Lead research nurse, Della and Sub-Investigator Radu smiling.

Lead research nurse, Della and Sub-Investigator Radu smiling.

We’re delighted to share that MND SMART is now open for recruitment at Imperial College Healthcare NHS Trust.
A very warm welcome to the Imperial team!

Read more πŸ‘‰ edin.ac/47zZLn5

Register your interest to participate πŸ‘‰ edin.ac/490fmPk

#ALS #MND #ClinicalTrial

03.11.2025 08:39 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

Congratulations to Dr Laura Smith and Dr Alastair Noyce at @qmuldementia.bsky.social for receiving funding through our February Grant Review Board. The team will work to improve risk disclosure for people with iRBD, a sleep disorder linked to Parkinson’s and LBD. #ARUKfunded

27.08.2025 12:49 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
A news title card that reads 'Liverpool unveils prototype low-cost personal air pollution monitor for Africa' in white text against a navy blue background. Pictured to the right is Professor Dan Pope and Dr Jonny Higham unveiling the Low-Cost Monitors.

A news title card that reads 'Liverpool unveils prototype low-cost personal air pollution monitor for Africa' in white text against a navy blue background. Pictured to the right is Professor Dan Pope and Dr Jonny Higham unveiling the Low-Cost Monitors.

NEWS | Professor Dan Pope from @livuni-phps.bsky.social and Dr Jonny Higham from the Department of Geography and Planning have developed a prototype low-cost air monitor, a new, affordable way to measure personal exposure to air pollution

➑️ bit.ly/4lHMJJl

#TeamLivUni

27.08.2025 12:54 πŸ‘ 3 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
MLTC INSIGHTS | Video 1 | Defining MLTC–ARC panel on terminology, epidemiology & overcoming barriers
MLTC INSIGHTS | Video 1 | Defining MLTC–ARC panel on terminology, epidemiology & overcoming barriers This panel discussion explores what β€œmultiple long-term conditions” (MLTC) really means, why the words we use matter, and how common these conditions are. The group also talks about the main…

People prefer the term β€œmultiple long‑term conditions” (MLTC) over β€œmultimorbidity” – it’s less stigmatising and more empowering, focusing on the person rather than just their conditions.

Discover more:
πŸ“Ί YouTube: youtu.be/7cdgra-Wrfk
🎧 Spotify: tinyurl.com/mtwt5ajy

28.08.2025 08:15 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

#MedSky #CardioSky #SCADheart

28.08.2025 15:11 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

πŸ’₯ For a small charity, we make a BIG impact - and we are making a bigger one every year!

With Lewy body dementia so misunderstood, no wonder families are turning to us for help.

#Lewybodydementia #Dementiasupport #Dementia

28.08.2025 15:58 πŸ‘ 5 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
Preview
The NIHR Applied Research Collaborations (ARCs) August 2025 newsletter The national newsletter from across all the NIHR ARCs. In this edition: Creative arts for dementia care and involvement, improving child health, benefits of giving patients online access to medical no...

Explore the August roundup of top stories from all 15 of our Applied Research Collaborations (ARCs):
mailchi.mp/nihr/august-...
Including the latest research news, resources, blogs, events, training & more from ARCs across the country

Join the newsletter: tinyurl.com/ARCsnewsletter

05.08.2025 07:51 πŸ‘ 11 πŸ” 11 πŸ’¬ 0 πŸ“Œ 1
Promotional image for a talk titled 'Taking prevention forward – what can we learn from across the UK and NI?' featuring Chris Whitty, Chief Medical Officer for England. The event is scheduled for September 17 at 3:15 pm, hosted by The King's Fund.

Promotional image for a talk titled 'Taking prevention forward – what can we learn from across the UK and NI?' featuring Chris Whitty, Chief Medical Officer for England. The event is scheduled for September 17 at 3:15 pm, hosted by The King's Fund.

Join us in September as Chris Whitty, CMO for England, discusses what we can learn about prevention from across the UK.

Register your place now.

buff.ly/nw0MBAu

31.07.2025 17:45 πŸ‘ 3 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0

πŸ†•We're bringing some newness to you this Friday!πŸ†•

Check out this infographic highlighting an overview of our project 'Parkinson's disease: mapping the current research landscape'

shorturl.at/vWpaZ

01.08.2025 08:25 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

⭐️The brilliant and dedicated research team at the Southampton General Hospital Trial Centre have now randomised >50 participants to MND-SMART!⭐️

Read more πŸ‘‰ mnd-smart.org/news/jul-202...

#MND #ALS #clinicaltrial

25.07.2025 11:04 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
A news title card that reads β€œA collaboration between the university and the UK’s National Crime Agency unveils a new national training programme” in white text against a navy blue background. To the right is an image of a police interview room with three chairs and a table.

A news title card that reads β€œA collaboration between the university and the UK’s National Crime Agency unveils a new national training programme” in white text against a navy blue background. To the right is an image of a police interview room with three chairs and a table.

Following a major research collaboration between the University and the UK’s National Crime Agency, a new national training programme to better yield information from suspect interviews in Child Sexual Abuse (CSA) investigations has been launched

➑️ bit.ly/3ILG6Yx

#TeamLivUni

25.07.2025 13:33 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Great couple of days attending the School of Medicine and Population Health graduations of PGR and MBChB students @sheffielduni.bsky.social

25.07.2025 18:38 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Computer image of a transparent human head with the brain and vagus nerve illuminated

Computer image of a transparent human head with the brain and vagus nerve illuminated

Β£2.7M for Liverpool-led trial investigating vagus nerve stimulation for drug-resistant epilepsy

news.liverpool.ac.uk/2025/07/16/2...

21.07.2025 12:38 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Preview
Dementia Researcher Salon - Population-level Dementia Risk Reduction Dementia Researcher Salon - Population-level Dementia Risk Reduction

Lifestyle, policy, preventionβ€”how do we shift dementia research from treatment to risk reduction? Join our live webinar with Seb Walsh & AdriΓ‘n Noriega de la Colina, 8pm BST tomorrow - be there for our free weekly webinar

22.07.2025 15:05 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Preview
Climbing the ALS mountain Mike Rogers, MND Association Director of Research and Innovation, looks at how data and AI could unlock new treatments.

β€œMND is one of the most scientifically and biologically challenging diseases to tackle. That said, no mountain is insurmountable…”

Dr. Mike Rogers (@mndassoc.bsky.social) shares why the #LongitudePrizeOnALS is key to creating new opportunities for #ALS & #MND

πŸ“° longevity.technology/news/climbin...

22.07.2025 08:54 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Preview
Real Reviews, Real Impact: Helping Others Find Changing Places Toilets A blog post by disabled access charity Euan's Guide about the importance of sharing disabled access information on Changing Places toilets.

Changing Places toilets are vital – but still too rare. On #CPAD25 we explore why these life-changing facilities matter so much and highlight some of our Changing Places reviews. buff.ly/RO51TAW

πŸ’™ #CPAD25 #ChangingPlaces #AccessibleToilets #InclusionMatters

19.07.2025 16:00 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Preview
'It's the spirit of Liverpool that has made this possible' LFC legend David Fairclough praised the initiative that is the first of its kind in the country

The LINC launch was reported on by The Liverpool Echo:
www.liverpoolecho.co.uk/news/liverpo...

18.07.2025 14:39 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Post image

Does cognitive impairment affect how people perceive their own motivation? Zhao et al. find that patients with neurological conditionsβ€”especially given greater cognitive deficitsβ€”often underestimate their apathy; caregiver input is crucial. Read at buff.ly/Bf2qHv2
@sijiazhao92
@MasudHusain
@OxExpPsy

11.07.2025 15:03 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

πŸ’¬ Do you, or someone you know, struggle to communicate with healthcare services?
Our helpline is here to help with translation, large print, and more.
Read how we're working to make support accessible for all: buff.ly/xGzkPlc #HealthEquity

19.06.2025 15:32 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Preview
Serving people, not institutions: a new direction for The King's Fund | The King's Fund We want to boldly reimagine the health and care system. Chief Executive Sarah Woolnough explains how our new strategy will help us do this.

'We’re not here to serve institutions – we’re here to serve people. That means working with communities, not doing things to them.’

@swoolnoughtkf.bsky.social shares her hopes for a new strategic direction at The King’s Fund in her blog.

www.kingsfund.org.uk/insight-and-...

05.06.2025 14:44 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
Post image

Are you living with MND or an informal caregiver for someone who is? Researchers at @sheffielduni.bsky.social would like your input for the iDeliver MND project, which aims to improve the delivery of psychological care in MND services.

Click below to take part in the survey πŸ‘‡
bit.ly/iDeliver-survey

28.05.2025 13:57 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Preview
Understanding the differential effects on employment of a community wealth building programme in England: a difference-in-differences study Background People-centred initiatives to create and retain local wealth, such as Community Wealth Building (CWB), have potential to stimulate regional economic regeneration that addresses economic ine...

Community wealth building increases the employment of disabled people. jech.bmj.com/content/earl... health inequalities #episky

23.05.2025 02:05 πŸ‘ 10 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
Post image

I know we have people on here who have strong feelings about social care needs assessments.

Please do get in touch with clarissa.giebel@liverpool.ac.uk or emma.williams2@liverpool.ac.uk

#dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social

07.05.2025 20:47 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

A simple guide to qualitative interviews!

soundcloud.com/dementia-res...

03.05.2025 15:48 πŸ‘ 9 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0
A navy blue background with the word 'Open' written in large white letters

A navy blue background with the word 'Open' written in large white letters

Do you work in Local Government and have a #PublicHealth scheme in need of evaluation?

The PHIRST scheme is now accepting Expressions of Interest ➑️ nihr.ac.uk/funding/publ...

@local.gov.uk @adphuk.bsky.social @cosla.gov.uk @nhswalesexecutive.bsky.social @nihrarcs.bsky.social

19.03.2025 14:16 πŸ‘ 7 πŸ” 9 πŸ’¬ 0 πŸ“Œ 3
Post image

πŸŽ‰ MND Scotland's Fun Run is back! And this year, not one, but TWO events will take place:πŸ“ Kelvingrove Park, Glasgow, 6th Sep ANDπŸ“Lochore Meadows Country Park, Fife, 20th Sep 2025.❗ Registration is open NOW!

πŸ‘‰ Glasgow bit.ly/42T7ZV5
πŸ‘‰ Fife: bit.ly/44axwvh

#MNDScotland #MND #MNDSFunRun

29.04.2025 17:01 πŸ‘ 2 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
Preview
The impacts of Liverpool Citizen's Advice on Prescription (CAP) on mental health outcomes– an Instrumental Variable (IV) approach

New paper out: The impacts of Liverpool Citizen's Advice on Prescription (CAP) on mental health outcomes – an Instrumental Variable (IV) approach, with Aregawi Gebremariam, @benjaminbarr.bsky.social @rhiannoncor.bsky.social @kdaras.bsky.social πŸ‘‡
www.sciencedirect.com/science/arti...

02.04.2025 20:27 πŸ‘ 9 πŸ” 6 πŸ’¬ 1 πŸ“Œ 0