A Chronic Voice's Avatar

A Chronic Voice

@achronicvoice.com

I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://achronicvoice.com/

2,762
Followers
2,335
Following
8,920
Posts
12.11.2024
Joined
Posts Following

Latest posts by A Chronic Voice @achronicvoice.com

You hold your bladder in and calculate your toilet breaks like an arithmetic problem, in order to save your joints some pain per trip.

 Chronic Illness Humour.

a chronic voice .com

You hold your bladder in and calculate your toilet breaks like an arithmetic problem, in order to save your joints some pain per trip. Chronic Illness Humour. a chronic voice .com

"You hold your bladder in and calculate your toilet breaks like an arithmetic problem, in order to save your knees some pain per trip." - Do you do this too? More #ChronicPain #memes here: buff.ly/62RyQm9

#ChronicIllness #RA #JointPain #lupus

10.03.2026 15:30 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Why Are Chronically Ill People Forced to Hide Their Pain? And what would happen if we stopped hiding and showed the world the depths of our suffering?

"The #problem with hiding our #pain is it gives the world an inaccurate concept of #ChronicIllness. It makes it easier for them to assume we’re faking, not β€˜really that sick’ or that we can push through..when we really want to.": buff.ly/7WfXThg

by @broadwaybabyto.bsky.social
#InvisibleIllness

10.03.2026 13:30 πŸ‘ 4 πŸ” 1 πŸ’¬ 2 πŸ“Œ 0
Preview
Invisible Disabilities : How Docs, Patients & Public Can Help - Invisibly Me How patients, doctors & the public can help challenge stigma & make a difference in the lives of those with chronic invisible disabilities.

"But there’s no way of knowing from looking at a person whether they have a genuine need for the #DisabledToilet ..Many of us, including myself with #ileostomy #StomaBag, are already a nervous wreck having to use the #disabled toilet.": buff.ly/9oegLCy

by invisiblyme
#ChronicIllness #awareness

10.03.2026 12:30 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
The Invisible Struggle When Your Illness Doesn't Show on the Outside

β€œComments like "but you were fine yesterday!"..hit like accusations. They force you to either defend yourself or silently swallow the hurt of not being trusted.”: buff.ly/Ja45AQv

by @remotetherapy.space
#NEisVoid #ChronicIllness #InvisibleIllness #disability #awareness

10.03.2026 10:30 πŸ‘ 4 πŸ” 2 πŸ’¬ 2 πŸ“Œ 0
Preview
How to Enjoy Winter With Chronic Illness: 10 Low-Energy Activities That Bring Comfort Discover low-energy winter activities for chronic illness that support comfort, pacing, and gentle daily life during the colder months.

"[Looking out the windows] helped me see that #winter didn’t need a complete overhaul. It needed gentler rhythms. It needed #meaning in small pockets rather than sweeping #routines. It needed things that made sense for a low energy body.": buff.ly/To48ArE

by @thethrivingspoonie.com
#ChronicIllness

10.03.2026 09:30 πŸ‘ 9 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Preview
Why Antibiotic Allergy Labels Deserve a Second Look In modern medicine, antibiotics are among the most powerful tools for preventing and treating life-threatening bacterial infections. Their effectiveness,

"likelihood of having..allergy varied by patient..& formal #allergy testing was infrequently performed. When testing did occur, most labels were disproven, highlighting..gap btwn documented allergy & true #immune -mediated #hypersensitivity.": buff.ly/nndBMjW

via yalemed
#allergies #PublicHealth

10.03.2026 07:30 πŸ‘ 8 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Preview
Scientists detect a sudden acceleration in global warming Global warming has picked up speed in the past decade, according to a new analysis from the Potsdam Institute for Climate Impact Research (PIK). By removing short term natural influences such as El…

"The adjusted #data show an acceleration of #GlobalWarming since 2015 with a statistical certainty of over 98%, consistent across all data sets examined and independent of the analysis method chosen.": buff.ly/7ipSdaT

via sciencedaily
#ClimateChange #environment #science #research #earth

10.03.2026 05:30 πŸ‘ 7 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
The Extra Costs of Living with a Chronic Illness or Disability (That the News Often Don't Reflect).

a chronic voice .com

The Extra Costs of Living with a Chronic Illness or Disability (That the News Often Don't Reflect). a chronic voice .com

" #Medications, #doctor appointments and the endless #medical investigations add up quickly, and there is never a β€˜final solution’ to your problems. A lot of trial and error is involved": buff.ly/e1cqCWR

#ChronicIllness #MondayBlogs #disability

10.03.2026 04:30 πŸ‘ 8 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
Preview
Unlearning Internalized Ableism: The Lies We Tell Ourselves and How to Break Free Discover the impact of internalized ableism and how it influences our beliefs about ourselves and our abilities.

β€œThat voice telling you to do more, be less of a burden, prove yourself constantly? That’s not your #intuition. That’s conditioning. And you’re not broken for believing it.”: buff.ly/rkM52lZ

by @thethrivingspoonie.com
#ableism #ChronicPain #ChronicIllness #disability

10.03.2026 01:30 πŸ‘ 14 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
Preview
On my Eight Year Bed-iversary Time flies when you're having... whatever this is

"I moved back in with my parents. β€œTemporarily.” β€œTo find a job.” β€œTo get my shit together”..I spent the rest of the year pinging and ponging between #doctors who might help #diagnose the strange.. #illness.): buff.ly/mbKGEWv

by @Mollyfree.bsky.social
#pwME #ChronicFatigue #ChronicIllness #disabled

09.03.2026 22:30 πŸ‘ 7 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
An Anaphylaxis Reaction from Rituximab in Between Shady Years.

a chronic voice .com

An Anaphylaxis Reaction from Rituximab in Between Shady Years. a chronic voice .com

"I still thought that my mind was playing tricks on me & tried to calm myself down. I didn’t want to be that silly little girl who overreacted to every tiny shadow. β€œIt’s just a minor #SideEffect”, I reassured myself.": buff.ly/xAU7py1

#MondayBlogs #anaphylaxis #allergy #medication #MedSky

09.03.2026 21:30 πŸ‘ 7 πŸ” 5 πŸ’¬ 1 πŸ“Œ 0
Preview
A Small Blue Ball of Pain - Ailish Sinclair Scottish author Ailish Sinclair describes the pain of autoimmunity as being a small blue ball of pain. Also: a cover reveal.

β€œ#Illness makes me open, bared and true. Pain peels back layers of politeness and hesitancy and doubt. I just say things. And, I just am.”: buff.ly/qta99lE

by @AilishSinclair.bsky.social
#ChronicPain #ChronicIllness #disability #NEisVoid

09.03.2026 20:30 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

@wordwitchlife.bsky.social thanks for resharing 🌻

09.03.2026 19:27 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Oh no πŸ˜”πŸ˜”πŸ˜” i hate surgeries too. Hang in there πŸ˜”

09.03.2026 19:21 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

@mondayblogs.bsky.social thanks for resharing 🌻

09.03.2026 19:09 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

@rockwaypress.bsky.social thanks for resharing 🌻

09.03.2026 19:08 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

@romancebookpromo.bsky.social thanks for resharing 🌻

09.03.2026 19:07 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

@dralexandriasz.bsky.social thanks for resharing 🌻

09.03.2026 19:06 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

@mcboingboing.bsky.social thanks for resharing 🌻

09.03.2026 19:04 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

@bymyownpawz.bsky.social thanks for resharing 🌻

09.03.2026 19:01 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

@stephmu00mls.bsky.social Thanks for resharing 🌻

09.03.2026 18:12 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Yea i definitely need to rest my eyes more too!

09.03.2026 18:09 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

It's more about eye levels/focus and posture type of thing 😊

09.03.2026 18:06 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

@markdignam69.bsky.social Thanks for resharing 🌻

09.03.2026 18:01 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thanks for resharing 🌻

09.03.2026 17:59 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
The Realities of Trying to Maintain Employment with a Disability - a Personal Perspective While we are still in July, which is Disability Pride Month, I think it’s necessary to address the topic of disability and employment.

" I was called a faker or lazy cos I was #capable of doing those things on some days & not on others. Sometimes I pushed myself to do it anyway..just to keep the peace & wound up making myself #sick.": buff.ly/vBLTeMM

by @2HeartCore4U.bsky.social
#ChronicIllness #career #employment #disability

09.03.2026 17:30 πŸ‘ 10 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Bring the Spa to Your Bed - and other uplifting activities to do while recovering from surgery.

a chronic voice .com

Bring the Spa to Your Bed - and other uplifting activities to do while recovering from surgery. a chronic voice .com

"your #comorbidities are definitely different from mine, and you know your own body best..you can..adapt these ideas to recreate your own spa-like routine and ambience. One that is suitable and #accessible for yourself.": buff.ly/6f72EQ0

#MondayBlogs #healing #spoonies #recovering

09.03.2026 15:30 πŸ‘ 8 πŸ” 7 πŸ’¬ 3 πŸ“Œ 0
Preview
How Inflammatory Arthritis Can Really Affect Marriage and Relationships, According to 8 Couples Coping with It Couples share candid thoughts about how having arthritis affects your relationship both negatively and positively.

β€œShe calls it β€˜getting into the mud puddle with her,’” Josh says. But that’s actually the hardest thing for him. β€œ#RheumatoidArthritis leaves me feeling helpless to reduce her pain & #inflammation.””: buff.ly/vGK4Ves

from @creakyjoints.bsky.social
#relationships #ChronicPain #RA #marriage #disabled

09.03.2026 14:30 πŸ‘ 7 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Disability And Its Hidden Anger: This Body Betrays Me – An exploration of living with disability, where anger is both a shield and a source of grief and how it feels to have a body that betrays you

"I’m learning to accept this rage, to mourn the #body I wanted & to #grieve the trust my body has broken. This #anger is not the opposite of #acceptance β€”it’s part of the process. It’s the fire that keeps me.. surviving.": buff.ly/NSWKHTN

by @serenebutterfly.bsky.social
#grief #loss #disability

09.03.2026 12:30 πŸ‘ 9 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Preview
Consider the Birds Birdwatching, George Orwell suggests, makes a peaceful and decent future a little more probable. Calvin and Hobbes would agree.

β€œMany Westerners are afflicted with what has been described as an β€œallergy to #sincerity.” We avoid discussing topics of depth or lace them with irony to avoid discomfort.”: buff.ly/hvyPU92

from @plough.bsky.social
#BirdWatching #humanity #nature #society #birds

09.03.2026 09:30 πŸ‘ 6 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0