🫁 As the holiday season approaches, remember to stop & take a deep breath. Looking for community support, join one of our upcoming Feeling Fit sessions or Wellness Hours.
Full details on our Calendar: www.FSHDSociety.org/events
#NationalStressAwarenessDay #FSHD #StressManagement
Meet Don Nemke. At 80, he’s still dreaming big – not for himself, but for future generations living with FSHD.
His dream of a meaningful treatment is within reach, but we need your help to make it happen.
Dream with us! Donate today: www.fshdsociety.org/2025-gift
Have you heard about the MDA's new Durable Medical Equipment (DME) Grant Program? Access essential equipment that supports greater independence, safety, & everyday mobility.
To apply, visit the MDA: https://ow.ly/5cNX50XjgiR
#FSHD #MDA #MuscularDystrophy #Neuromuscular #DME
The Drum & Roll to Cure FSHD in Western Pennsylvania was an inspiring, memorable event that brought together more than 50 attendees & raised over $85,000!
It was a day filled with energy, connection & community spirit. Thanks to everyone who joined us, donated, and made this event such a success.
Join Tim & guest Elissa for a deep conversation covering:
-How FSHD can affect post-partum healing
-Caring for your body and mind &
-Learning to own your FSHD.
https://youtu.be/2oyG_5v61Bk
#FSHD #FSHDStraightTalk #Podcast #RareDisease #RareDiseasePodcast #FSHMuscularDystrophy
Novartis acquires Avidity Biosciences! Novartis now has two FSHD therapies in development. "We look forward to continued progress under Novartis’s stewardship."
Read the announcement: https://www.fshdsociety.org/2025/10/27/novartis-acquires-avidity/
#Avidity #Novartis #FSHDResearch #FSHD
Thank you everyone for another successful Walk & Roll weekend in Texas! Over 30 participants enjoyed the sunset & raised $13,000+ to support our work to #CureFSHD.
Read more updates & see additional photos on our blog: https://www.fshdsociety.org/2025/09/11/2025-walkroll-coverage/
#FSHD #WalkRoll
"The Board is deeply saddened to announce that Dan Perez, co-founder & former President/CEO, died on October 2. Everything being accomplished today stands on the foundation he built."
Read the full In Memoriam piece: https://www.fshdsociety.org/2025/10/08/in-memoriam-daniel-paul-perez/
We’ve refreshed our brand to better reflect who we are, the impact we make together, and the future we’re building with the #FSHD community.
We invite you to explore our redesigned website & learn more about what this new chapter means for you:
www.fshdsociety.org/2025/05/01/b...
