SurvivorshipIT

Under what influence: Measuring AI influence to fit user profiles in decision-making Artificial Intelligence (AI) has become a pivotal tool in augmenting human decision-making across various domains, yet its influence on user decisions…

"[These findings] underscore the need for adaptive #AI systems capable of addressing specific user #biases, such as self-anchoring or over-reliance, through tailored interaction protocols and decision support mechanisms." www.sciencedirect.com/science/arti...

#MedSky #DigitalHealth #HealthEquity

Under what influence: Measuring AI influence to fit user profiles in decision-making Artificial Intelligence (AI) has become a pivotal tool in augmenting human decision-making across various domains, yet its influence on user decisions…

"[These findings] underscore the need for adaptive #AI systems capable of addressing specific user #biases, such as self-anchoring or over-reliance, through tailored interaction protocols and decision support mechanisms." www.sciencedirect.com/science/arti...

#MedSky #DigitalHealth #HealthEquity

The law of open medical data: past application and future challenges Abstract. Since 2003, US federal funders’ scientific data-sharing policies have encouraged open sharing of weakly de-identified medical and genomic data. T

"Going forward, the law of medical #privacy boils down to how much privacy those who share and use our #data can realistically and lawfully finance. That is how much privacy we, the public, can expect." academic.oup.com/jlb/article/...

#MedSky #HealthPolicy #PatientExperience #HealthEquity #LawSky

The law of open medical data: past application and future challenges Abstract. Since 2003, US federal funders’ scientific data-sharing policies have encouraged open sharing of weakly de-identified medical and genomic data. T

"Going forward, the law of medical #privacy boils down to how much privacy those who share and use our #data can realistically and lawfully finance. That is how much privacy we, the public, can expect." academic.oup.com/jlb/article/...

#MedSky #HealthPolicy #PatientExperience #HealthEquity #LawSky

Human in control: Shared decision-making with clinical decision-support systems under the Artificial Intelligence Act Artificial intelligence (AI) is gaining significance in medical decision-making. The AI Act, which entered into force in 2024, regulates not only the …

The role of #patients, as the subjects of automated decision-making, is not directly addressed in the #AI Act. Obligations to involve patients therefore stem rather from medical law and #GDPR information requirements. www.sciencedirect.com/science/arti...

#MedSky #DigitalHealth #PatientExperience

Human in control: Shared decision-making with clinical decision-support systems under the Artificial Intelligence Act Artificial intelligence (AI) is gaining significance in medical decision-making. The AI Act, which entered into force in 2024, regulates not only the …

The role of #patients, as the subjects of automated decision-making, is not directly addressed in the #AI Act. Obligations to involve patients therefore stem rather from medical law and #GDPR information requirements. www.sciencedirect.com/science/arti...

#MedSky #DigitalHealth #PatientExperience

Patient representatives’ perspectives on the centralisation of inpatient healthcare services - A focus group study in Germany Centralisation, i.e. the reorganisation of inpatient healthcare services into fewer specialised units serving a higher volume of patients, affects pat…

"Policy measures should be implemented to mitigate disadvantages of specific patient groups. #Patients should be involved as they can contribute novel aspects with respect to the configuration of healthcare services." www.sciencedirect.com/science/arti...

#MedSky #PatientEngagement #DigitalHealth

Patient representatives’ perspectives on the centralisation of inpatient healthcare services - A focus group study in Germany Centralisation, i.e. the reorganisation of inpatient healthcare services into fewer specialised units serving a higher volume of patients, affects pat…

"Policy measures should be implemented to mitigate disadvantages of specific patient groups. #Patients should be involved as they can contribute novel aspects with respect to the configuration of healthcare services." www.sciencedirect.com/science/arti...

#MedSky #PatientEngagement #DigitalHealth

Assessment tools for chemotherapy-induced peripheral neuropathy: a narrative review of clinician, patient-reported, and objective measures AbstractBackground. Chemotherapy-induced peripheral neuropathy (CIPN) is a common side effect of chemotherapy, affecting motor, sensory, and autonomic func

"Many #PROMs... were developed & validated in a specific region or group of individuals, leading to some uncertainty about their external validity in individuals with different ethnic, cultural, or geographic backgrounds." academic.oup.com/jncics/article/10/1/pkaf119/8385264

#MedSky #HealthEquity

Assessment tools for chemotherapy-induced peripheral neuropathy: a narrative review of clinician, patient-reported, and objective measures AbstractBackground. Chemotherapy-induced peripheral neuropathy (CIPN) is a common side effect of chemotherapy, affecting motor, sensory, and autonomic func

"Many #PROMs... were developed & validated in a specific region or group of individuals, leading to some uncertainty about their external validity in individuals with different ethnic, cultural, or geographic backgrounds." academic.oup.com/jncics/article/10/1/pkaf119/8385264

#MedSky #HealthEquity

#MedSky #PublicHealth #PatientExperience #LHS #AcademicSky

Pathways, outputs and impact of NIH-supported bioinformatics and genomics graduate trainees in Africa Abstract. Global biomedical and health research is increasingly relying on genomic and computational approaches, largely driven by the increasing volumes o

Key goal: build capacity among African scientists to research #genetic & #environmental contributors to health & disease across the continent. Over 7 years the programs enrolled >270 trainees with >110 earning Master’s & >20 completing PhDs in Bioinformatics academic.oup.com/bib/article/... #MedSky

Pathways, outputs and impact of NIH-supported bioinformatics and genomics graduate trainees in Africa Abstract. Global biomedical and health research is increasingly relying on genomic and computational approaches, largely driven by the increasing volumes o

Key goal: build capacity among African scientists to research #genetic & #environmental contributors to health & disease across the continent. Over 7 years the programs enrolled >270 trainees with >110 earning Master’s & >20 completing PhDs in Bioinformatics academic.oup.com/bib/article/... #MedSky

Assessing Generative AI Chatbots for Alcohol Misuse Support: A Longitudinal Simulation Study Large language model–based chatbots are increasingly used for behavioral health support. Few studies have rigorously evaluated their advice on alcohol misuse. We evaluated seven publicly available ...

" #Chatbots were perceived to vary widely in their ability to support individuals with alcohol misuse. Although responses were generally strong in empathy, response quality has potential for improvement." ai.nejm.org/doi/10.1056/...
#MedSky #PublicHealth #PatientExperience #GenAI #AlcoholUseDisorder

Integrating Patient Engagement into Clinical Pharmacology and Pharmacometrics: Bringing the Patient Voice into Data‐Driven Science Patient engagement (PE) refers to the active partnership between researchers and patients throughout the research process. Here, we introduce a novel framework that embeds PE directly into quantitati...

Integrating Patient Engagement into Clinical Pharmacology and Pharmacometrics: Bringing the Patient Voice into Data‐Driven Science - Zhou - Clinical Pharmacology & Therapeutics - Wiley Online Library ascpt.onlinelibrary.wiley.com/doi/abs/10.1...

Empowering patients in family medicine research: a case-study of patient partner involvement in educational and knowledge translation activities Family doctors are encouraged to involve patients as equal partners in research and teaching, but examples of how to do this well are still quite rare. Our project, called the Canadian Primary Care Information Network - Learner and Patient ...

Empowering patients in family medicine research: a case-study of patient partner involvement in educational and knowledge translation activities - PMC pmc.ncbi.nlm.nih.gov/articles/PMC...

Assessing Generative AI Chatbots for Alcohol Misuse Support: A Longitudinal Simulation Study Large language model–based chatbots are increasingly used for behavioral health support. Few studies have rigorously evaluated their advice on alcohol misuse. We evaluated seven publicly available ...

" #Chatbots were perceived to vary widely in their ability to support individuals with alcohol misuse. Although responses were generally strong in empathy, response quality has potential for improvement." ai.nejm.org/doi/10.1056/...
#MedSky #PublicHealth #PatientExperience #GenAI #AlcoholUseDisorder

Provider and information technology operations staff perspectives on the feasibility of writing patient-generated health data into the electronic health record AbstractObjectives. This study aims to develop a detailed understanding of provider and Information Technology (IT) operations staff experiences and attitu

"Fundamentally, all health information & EHR management participants are seeking ways to integrate patients more directly & effectively. Fears about legal implications & the integrity of medical decision-making remain paramount." academic.oup.com/jamiaopen/ar...

#MedSky #HealthIT #PatientEngagement

Screenshot of PERT Pilot in the iOS App Store. It’s on the what’s new section highlighting the new recipe builder feature in the latest version, released tonight.

PERT Pilot (iOS) update!

It, too, now has the recipe builder feature and you can now send - or receive! - meals and recipes from either PERT Pilot and Carb Pilot. 🎉

PERT Pilot is designed for tracking pancreatic enzyme replacement therapy, for those of us with EPI (PEI).

Provider and information technology operations staff perspectives on the feasibility of writing patient-generated health data into the electronic health record AbstractObjectives. This study aims to develop a detailed understanding of provider and Information Technology (IT) operations staff experiences and attitu

"Fundamentally, all health information & EHR management participants are seeking ways to integrate patients more directly & effectively. Fears about legal implications & the integrity of medical decision-making remain paramount." academic.oup.com/jamiaopen/ar...

#MedSky #HealthIT #PatientEngagement

#MedSky #AcademicSky #PatientEngagement #HealthPolicy

#MedSky #Informatics #PublicHealth #HealthEquity

#MedSky #IDSky #PublicHealth

axe-con Digital Accessibility Conference | Deque Join us to learn how to build, test, monitor, and maintain digital accessibility. Hosted on February 24-25, 2026, axe-con is completely free and virtual.

Attending @deque.com AxeCon for the next two days in between meetings. There's four tracks and that's a lot so if you see a good talk let me know.

www.deque.com/axe-con/

Nominations due Thursday! ⌛

#MedSky #AcademicSky #PatientEngagement #HealthPolicy

#CanSky #OncSky #AYAcancer #PublicHealth

Closing the digital divide for hemodialysis patients: implementing technology training and support in a digital patient activation intervention AbstractObjectives. To detail patient challenges, and how technology support addressed them, in a remote patient activation intervention for hemodialysis p

"...motivational access was enhanced for some mentees just by offering tech support. Furthermore, the rapport developed between staff & mentees/mentors may have facilitated the support provision to all mentees & almost half of mentors." academic.oup.com/jamia/advanc...

#MedSky #PatientExperience

Solar pillar tonight over Nashville cc @nashseverewx.com

#GenAI #eHealth

Biometric Data in Post-Traumatic Stress Disorder Detection: A Scoping Review of Digital Health Applications Post-traumatic stress disorder (PTSD) is mainly assessed through self-reports and clinician interviews, which can delay recognition and limit reach. B…

Promising modalities (e.g., eye-tracking, electrodermal activity) remain underused. #Biometric approaches can detect #PTSD; progress has been slowed by inconsistent study design & reporting, limited attention to sex differences www.sciencedirect.com/science/arti...

#MedSky #DigitalHealth #wearables