I'm excited to share these companion articles published w/ student Caitlin Maloney & collaborators Nina Claessens & Peter Claes! We hope they'll spark important tech & ethical discussions on AI-enabled facial genetics research! doi.org/10.1002/ggn2.202500056 & doi.org/10.1002/advs.202513207
22.12.2025 19:12
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Cellular and Gene Therapy Guidances
This page contains a listing of cellular and gene therapy guidances.
ICYMI the FDA issued three draft guidance documents for gene therapies (expedited programs for serious conditions; postapproval methods to capture safety & efficacy data; and innovative clinical trial designs for small populations). Public comment period ends 11/24/25. www.fda.gov/vaccines-blo...
10.10.2025 15:50
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I am sad to see that I already have a conflict that will prevent me from going to the 7th ELSI Congress back at UNC next year! π Shouldnβt the organizers consult UNC alumni before scheduling that? JK.
09.10.2025 22:08
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Who is going to ASHG next week? Send me a note so we can connect!
09.10.2025 21:25
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I'm not sure when exactly this bright red scary banner went up, but it does seem quite ominous for NHGRI. I realize it was up much of the summer (as it's arrival was noted in this warning about the Human Genome Project archives www.statnews.com/2025/06/05/n...), but it still makes me furious.
21.07.2025 17:49
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Science | AAAS
Always a few bad actors that ruin it for the rest of us - Fearful of AI-generated grant proposals, NIH limits scientists to six applications per year www.science.org/content/arti... #grants #science #research #NIH
21.07.2025 17:41
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+1 on this message, as someone born and raised in rural PA.
28.06.2025 21:09
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I had such a stimulating time in Belgium this past week presenting at the 3rd International Facial Genetics Symposium and attending the OriGENE lecture by Joanna Wysocka at KU Leuven! Thank you Peter Claes, Benedikt Hallgrimsson, Hannah Long, & Manfred Kayser for organizing!
15.06.2025 12:17
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Itβs a beautiful day at Stanford! And I am back on social media simply to express appreciation to @hankgreely.bsky.social for hosting another Biolawlapalooza! Itβs been no secret that this is my favorite meeting year after year!
16.05.2025 16:25
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Today is International Day of Women & Girls in Science. I donβt feel like celebrating when all signs show me this admin prefers to βprotect usβ from scientific facts, research, & innovations. To my sisters in science (esp at gov agencies), I see you, appreciate you, & am with you in solidarity.
11.02.2025 16:01
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Take my β β from my cold dead HANDS.
09.02.2025 19:15
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About 8 years ago I jokingly asked which would implode first, the healthcare system or higher ed. Joke is on me. They are taking them both out in one shotβ¦ and fwiw, no, I donβt think the actions being taken to achieve this are lawful, but wtf does that matter these days.
08.02.2025 14:28
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Research universities are often the largest employers in their region. They are often the primary health care providers to communities. This funding shift will not only reduce US research leadership, it will put working people out of work and reduce healthcare access.
08.02.2025 01:40
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Giving access to SSNs, other data on government employees to non-employees like Musk is a violation of 5 USC 552a, and carries with it a penalty of $1000 per person whose data was accessed. We are building a case. Govt employees who want to participate should contact me directly
03.02.2025 13:18
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Everyone concerned about data loss right now should learn about the End of Term Web Archive, which I believe has been working on preserving federal websites for the past 8 months. The dataset you fear has been lost may well be here
Just an incredible project. Thank you to everyone involved
01.02.2025 03:14
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repeat after me: an AI system does NOT and CANNOT seek power. it CANNOT seek, want, & desire anything more than your toaster can. people in positions of power use AI to seek, assert, consolidate, and centralise power
31.01.2025 17:07
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Trainee Connect Mentor - Mentee Relationship Continues
The CERA TraineeHub program supports the research and career goals of trainees and early career scholars of all disciplines with an interest in the ethical, legal, and social implications of genetics ...
Caitlin Maloney (my PhD student at @psuanthro.bsky.social) & I were interviewed by @elsihub.bsky.social), which was checking in w/ us ~3 yrs after being matched in its Trainee Connect Mentor program. You can read our comments on mentorship. elsihub.org/news/trainee...
31.01.2025 13:42
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American science and medicine has been thrown into chaos and uncertainty over the past week. Here are some stories to get up to speed. 1/12
28.01.2025 03:58
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In the midst of so much chaos and the unmistakeable scorched earth strategy unleashed in the US since Jan 20, it seems like a bad time to wish yβall a happy Data Privacy Day. Yet here I am doing it anyway.
28.01.2025 11:19
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Initial Rescissions Of Harmful Executive Orders And Actions β The White House
By the authority vested in me as President by the Constitution and the laws of the United States of America, itΒ isΒ hereby ordered as
ICYMI amongst the other stuff, President Trump took action to rescind President Bidenβs Executive Order 14110 of October 30, 2023 (Safe, Secure, and Trustworthy Development and Use of Artificial Intelligenceβ). www.whitehouse.gov/presidential...
21.01.2025 02:39
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