Ricky Chotai

🚨 Do men with #lupus receive the support they need?

😃 Join us today at room C3, as @rickychotai.co.uk, Special Advisor to the Board & Co-leader of our Men's network, presents data from our Swiss Knife Survey on stigma, #depression & unmet needs of men living with #SLE.

#EULAR2025

🦋Lupus Europe’s 2024 Swiss Knife Survey is now published in Autoimmunity Reviews!

With 4525 responses from 36 countries, it’s a🔝step forward in understanding the real burden of SLE from the patient’s perspective.

https://f.mtr.cool/xrvljwnsvd

🌟 Being a finalist in the 2025 Made with Patients Awards is recognition of LupusGPT’s mission to empower the #lupus community with:

✅ Reliable, evidence-based information about lupus
✅ Free access
✅ Multilingual support to break language & literacy barriers

😃Our Board & Extended Board met last week for2️⃣exciting days of work on the strategic plan. Joined by NVLE to kick off the planning of our 2025 Convention, which will take place in the Netherlands!

👥Also hosted an engaging Industry Roundtable, with updates, workshops and more!

Big news! 🎉 My abstract, “Living with lupus as a man – a major challenge to image of self”, has been selected for an Oral Presentation at #EULAR2025 in Barcelona! 💜 Grateful for @lupuseurope.bsky.social support & excited to share this important topic. #LupusAwareness #Rheumatology

Off to Amsterdam for my first @LupusEurope board meeting !

Amazing show loving sterling

@lupusuk.bsky.social is conducting a survey to understand what is important to you as someone living with lupus, or caring for someone with #lupus, and what you think the charity should be focusing on to better support your needs.
For more information, visit: www.lupusuk.org.uk/2025/03/04/survey

The needs of the lupus community Take this survey powered by surveymonkey.com. Create your own surveys for free.

UK healthcare pros & lupus researchers: Your input is crucial! 🏥🔬

Help @lupusuk.bsky.social shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST.

Your expertise can make a difference!

Survey link: bit.ly/Lupussurveyhcp

#Lupus #UKHealthcare #LupusResearch

Today I think is very much a moment in history and sadly for the world it feels even more scary. The Ukrainian people have fought hard for their freedom and it is not up to Trump if and when they should compromise.

Wendy is an amazing advocate and campaigner for #lupus and volunteers significantly for @lupusuk.bsky.social. We the #lupus community are lucky to have her!

Projection of the 'Rare Disease Day' logo on the facade of Magdalen College Chapel.

Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.

A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.

📷 | @oxfordpaediatrics.bsky.social

Thanks for sharing #lupus

✨ *Breaking News!* ✨ The latest issue of *New Scientist* highlights amazing progress in autoimmune disease research (lupus, rheumatoid arthritis, Type 1 diabetes). Hope is on the horizon! 💜
Read about CAR-T cell therapy for lupus via @lupusuk.bsky.social : lupusuk.org.uk/2024/11/08/c...

Just wrapped up our virtual trustee board meeting at @lupusuk.bsky.social 📊💻! Exciting plans ahead for our 35th year 🎉 and a fresh strategy on the horizon 🚀. Let's make it a year to remember! 💜 Follow @lupusuk.bsky.social for more updates 📱 #LupusUK #Lupus

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Wrapped up my final onboarding meeting with @lupuseurope.bsky.social today! Excited to dive into impactful projects for the European Lupus Community, including exploring the intersection of #sex and #lupus. Thrilled to work alongside such an inspiring team!

🦋 Lupus Europe, Prof Arnaud, and Dr @go-daniel.bsky.social are thrilled to unveil LUPUS-ALERT!

🌍 A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool.
 
Thank you to all the Doctors & patients driving this key project forward!

I have not seen this sort of innovation in the Health Charities or non profits.

Great to see AI being used to improve the patient experience. #lupus #ai #innovation

Ooo welcome to Bluesky @lupuseurope.bsky.social if you are interested in #Lupus things check them out. If you are UK based check out @lupusuk.bsky.social

I'm Ricky, based in Manchester. Living with #Lupus and doing some volunteer work with two brilliant organisations - @lupusuk.bsky.social and Lupus Europe.

When I'm not going on about #lupus, you'll probably see me posting about #LoveSUs and #realitytv.

An excellent meeting with the #LupusEurope team.

So many exciting projects going on. Looking forward to the next few months. #Lupus

Stark facts about health care inequality for lupus patients in the UK. @lupusuk.bsky.social #lupus

The team at the charity are amazing as well as so many volunteers!

A bit more of my story is here and I volunteer for Lupus UK. lupusuk.org.uk/trustees/

Hi Harry.

I'm Ricky from the UK and I also have Lupus. 👋🏽

I am not sure maybe the wonderful @chriswincup.bsky.social knows?

🤯 Never thought I'd be co-authoring an abstract for submission to the European Alliance of Associations for Rheumatology (@EULAR)!
Stepping outside my comfort zone has been an incredible learning experience. ✨ Fingers crossed for acceptance! #Research #Teamwork #lupus

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#TheTraitors sponsored by kleenex

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Amazing episode of #TheTraitors tonight!