Real professionals acknowledge their mistakes and work hard to fix them. It's a crucial part of the deal, even more important than any training they get to become professionals.
It's entirely missing here, so what does it mean about the professionalism part?
TW: assisted suicide
30 min interview with Samuel’s mother and doctor.
Samuel developed #MECFS after a Covid infection and chose assisted suicide. Before his death he asked for his story to be used to raise awareness.
English Subs (edited with ChatGPT)
youtu.be/_w0v7he88Uo?...
I have never seen any group of people outside of politics, cults and corrupt businesses literally use their own past failures to justify failing all over again.
They literally look at evidence that they are wrong and genuinely think it makes them right. Absolute science fail. Trumpian as fuck.
It's shocking how common the reaction of many physicians to Long Covid has been "hey, they look like the ME/CFS, POTS and fibromyalgia folks we've dismissed for decades" rather than the obvious, rational "holy fuck that means common infections were the likely cause all along like they reported".
It's absolutely bonkers that we learned with clarity that we can dramatically reduce or even possibly eliminate many respiratory viruses & we choose to embrace them instead.
🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.
2 - 8 Mar 2026
This whole 'biopsychosocial' rehabilitation ideology is mindlessly inept and corrupt. It will never achieve a damn thing, will end up in the same trash heap of history as phrenology and scientific racism.
It has already destroyed tens of millions of lives, and that makes it impossible to stop.
All of this completely dwarfs Theranos' fraud. It's at least an order of magnitude worse in every single way. Fraudulent from beginning to end, top to bottom.
At least what Theranos was trying to replicate, existing lab tests, was viable and real, they just couldn't do it better as promised.
There are absolutely people dedicating their very best to solving those major health issues, but the institutions of medicine and the majority of those who work in them are against it, work against it, don't want to do the work to solve them, in fact prevent it from being solved.
It's hard to describe the totality of failure in medicine's mishandling of chronic illnesses like Long Covid and ME/CFS.
Closest I can think is combining the malicious incompetence of the Trump administration and humanity's self-destructive worsening climate disaster, making every wrong decision.
"Here is how bullshit replicates itself in today’s medical world: Conduct a flawed trial, declare success despite serious questions, then develop health policy based on these hyped-up claims."
Why even do studies if their results don't even matter?
Short term. Long term it's a massive loss for them. It might cost them less per year, but it continues to cost them indefinitely.
Had this been handled competently, they would have likely made far more from the premiums we no longer pay alone.
Same with governments. It's extra stupid economics.
The idea that the future of medicine is this biopsychosocial rehabilitation is insane. It's absolutely not.
It's not even plausible, and even if it did work, it scales negatively, the more of it is needed the bigger the structures to organize it have to be. Zero economies of scale, will never work.
This approach is simply not serious. It has been known for decades that it does nothing, is exactly as effective as sleeping with potato slices in socks.
Rehabilitation is simply not needed here. What is needed is treatments, and zero progress has been made on this front.
This has been known for over 5 years. Those treatments have been standard the whole time, and yet even recently-published trials are all 'pilot', tiny trials with awful methodologies.
None of this addresses the causes. It doesn't work. It leaves millions prisoners because nothing is happening.
There is more than enough data showing that most recover from Long Covid over time, without doing anything special, usually resting.
This makes *all* the claims of recovery through 'mindfulness' or rehabilitation worthless. They are banking on natural recoveries, have zero influence on outcomes.
Yeah like to put things in perspective, the damage done by Sergey Brin’s ex-wife single handedly funding large segments of the anti-vax movement probably undid shitloads of positive public health work done through philanthropy. The ability to use that money for evil shit is just far greater.
The cover up and refusal to do anything for tens of millions suffering from chronic illness is morally and technically comparable to what the tobacco industry did.
Except no one actually profits from it. It's just pure incompetence and fraud for no reason other than ideology and politics.
What if a small group of people could have done something to prevent millions of lives from being destroyed?
What if they instead did everything they could to make every single thing about it worse? Lied about it? Covered it up?
This is a perfect example of it. All of this has been a choice.
It's not just that this could still be written today, about ME/CFS and Long Covid, it *is* written, has been continuously for the last several decades, and still nothing changes.
Change is resisted everywhere, intentional refusal causing disaster for millions, and not a damn person is accountable.
Medicine's ongoing failure to deal with Long Covid did not begin in 2020.
It happened decades before that. Nothing has changed since, all of this has been and continues to be intentional.
There is something deeply wrong with parts of this industry, in how they deal with their own failures.
The mass suffering created and amplified by psychosomatic ideology is absolutely criminal.
None of this has to happen, it's all a choice. No one is responsible or accountable for any of this filth.
And all for complete bullshit fantasies.
🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.
16 - 22 Feb 2026
Graphic with a dark, moody photograph of a red fly agaric mushroom with white spots growing in a mossy forest. The background consists of blurred, dark tree trunks. White serif text over the image reads: "Psychologisation 101: Definitions, Distinctions, and Why It Matters." At the bottom, in a smaller italicized font, it says "Long Covid Advocacy" next to a small bookmark-style logo.
🌟The first in our new 101 back to basics series.
In this article we look at Psychologisation.
If there's a topic you'd like us to cover please let us know in the comments!
🎧 Audio available
🖇️ tinyurl.com/52vthd5b
More good news. The Sequence ME & Long Covid study is launching👇
Excellent work by Action for ME for going all in on this important genetic study. Grateful for the financial support of the Schmidt Initiative for Long COVID and CODA
The British Association of Clinicians in ME/CFS issued a "therapy guide" last year. Very unsatisfactory. Professor Jonathan Edwards and colleagues have responded in an open letter. I spoke with Professor Edwards about it. virology.ws/2026/02/20/t...
The book Invisible Illness has caused a bit of a stir among many patients. Here are some further thoughts on the controversy.
virology.ws/2026/02/16/t...
🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.
9 - 15 Feb 2026
"Once again, everything old is new again, again. The circle of disinformation is complete, and we are still just getting started. And, I can’t help but wonder if we could have avoided everything that’s happening with measles today had more people cared about COVID disinformation.." @joho.bsky.social
1) 🇩🇪 Scientists and clinicians based at institutions located in Germany can apply for the 2026 research funding programme of the ME/CFS Research Foundation.
€2 million is available for new research projects. The deadline for submitting proposals is 30 April 2026.
