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Primary Progressive Aphasia Awareness

@ppaphasiaawareness

Primary Progressive Aphasia - PPA describes a group of language led dementias. Speech & language therapy is the MAIN treatment for PPA. We spread awareness about this for ppl affected by PPA & professionals (by Dr Anna Volkmer & Rosemary Townsend)

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15.01.2025
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Latest posts by Primary Progressive Aphasia Awareness @ppaphasiaawareness

https://www.speechpathologyaustralia.org.au/EventDetail?EventKey=25PEV2&fbclid=IwY2xjawMbNNJleHRuA2FlbQIxMABicmlkETFNZG0wZGRxazhmSThsVEdIAR54NiPQB5YxM-EeKjrmi3BvefiiEJpvRiS7F1bYc2YRH4jY0OFX9i3qM9c1-Q_aem_RBbxpUy9e2Im0c7AM9g3sw

https://www.speechpathologyaustralia.org.au/EventDetail?EventKey=25PEV2&fbclid=IwY2xjawMbNNJleHRuA2FlbQIxMABicmlkETFNZG0wZGRxazhmSThsVEdIAR54NiPQB5YxM-EeKjrmi3BvefiiEJpvRiS7F1bYc2YRH4jY0OFX9i3qM9c1-Q_aem_RBbxpUy9e2Im0c7AM9g3sw

Are you living with or supporting someone with #primaryprogressiveaphasia?

Join leading neuroscientists and speech pathologists on 25th September for a FREE webinar exploring the latest research on PPA and how speech pathology can make a difference.

@ppaphasiaawareness.bsky.social

27.08.2025 00:56 ๐Ÿ‘ 3 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

@dementiaresearcher.bsky.social @lissbee.bsky.social @dementiacommunity.bsky.social @ukdri.ac.uk @theaftd.bsky.social

17.04.2025 09:28 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Qualtrics Survey | Qualtrics Experience Management The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

We are doing a survey to understand why other professionals do/don't refer people with Primary Progressive Aphasia for speech-language support

We want Drs, nurses, psychologists, social workers, OTs, PTs & any other profession.

The survey can be accessed here: qualtrics.ucl.ac.uk/jfe/form/SV_...

17.04.2025 08:00 ๐Ÿ‘ 21 ๐Ÿ” 26 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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The 1st ever PPA awareness day was Friday 4 April 2025

We had webinars in the UK, Greece, Italy, Canada, France & USA.

Recordings will be available soon speechtherapyppa.com/ppa-awarenes...

Give us your views forms.office.com/e/ARRes9j9bV

PPA awareness day 2026 will be Friday 10th April!

08.04.2025 15:58 ๐Ÿ‘ 3 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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What an amazing day!

Webinars in UK, USA, France, Greece, Italy & Canada to celebrate the 1st PPA awareness day

Thank u to all contributors!

@mayalhenry.bsky.social @jgallee.bsky.social @smgrasso.bsky.social @sharonmantonucci.bsky.social

@ppaphasiaawareness.bsky.social

04.04.2025 17:38 ๐Ÿ‘ 10 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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New Primary Progressive Aphasia Online Journal Club Join our new Primary Progressive Aphasia Journal Clubโ€”connecting researchers & clinicians to explore diagnostics, clinical management & patient-focused advances

Onwards and upwards!

The work is not over- if you are a researcher working in the field of PPA we have started a PPA journal club with @dementiaresearcher.bsky.social

Sign up & enhance your PPA research network!

www.dementiaresearcher.nihr.ac.uk/primary-prog...

@ppaphasiaawareness.bsky.social

04.04.2025 16:19 ๐Ÿ‘ 11 ๐Ÿ” 5 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

#PPAawareness day is here! ๐Ÿ™Œ๐Ÿป motivated,inspired & shaped by people living with #PrimaryProgressiveAphasia & driven by a community of international #SLT #SLP s who believe in better access to therapy support & resources. Huge thx to the amazing @annavolkmer@bsky.social & @dyscoveraphasia

04.04.2025 08:28 ๐Ÿ‘ 7 ๐Ÿ” 4 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Meet Jessica Molloy, Clinical Specialist Speech and Language Therapists. Jessica is marking Primary Progressive Aphasia Awareness Day ๐Ÿ—ฃ

โ€œSLT can help people with PPA to find their voice again, even when the words are gone, people with PPA still have a lot to sayโ€

@ppaphasiaawareness.bsky.social

04.04.2025 11:43 ๐Ÿ‘ 5 ๐Ÿ” 3 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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MPs invited to PPA House of Commons event The house of Commons has invited MPs in advance of the worldโ€™s first PPA awareness day

Our PPA awareness day work has also made it to the UK ๐Ÿ‡ฌ๐Ÿ‡ง headlines too!

@rosemary-townsend.bsky.social
@annavolkmer.bsky.social

northeastbylines.co.uk/news/health/...

04.04.2025 10:22 ๐Ÿ‘ 5 ๐Ÿ” 4 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Afasia Primaria Progressiva: il Maugeri di Bari in prima linea nella ricerca, diagnosi e riabilitazione | la salute in puglia

PPA awareness day has made international headlines!

With articles in ๐Ÿ‡ฎ๐Ÿ‡น Italy

www.lasaluteinpuglia.it/2025/04/02/a...

@rosemary-townsend.bsky.social @annavolkmer.bsky.social

04.04.2025 10:20 ๐Ÿ‘ 4 ๐Ÿ” 2 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0

PPA awareness day has made international headlines!

With articles in ๐Ÿ‡ณ๐Ÿ‡ฟ New Zealand: www.scoop.co.nz/stories/GE25...

@rosemary-townsend.bsky.social @annavolkmer.bsky.social

04.04.2025 10:18 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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PPA awareness day 2025 Med mรฅl om รฅ รธke bevisstheten rundt primรฆr progressiv afasi

PPA awareness day has made international headlines!

With articles in ๐Ÿ‡ณ๐Ÿ‡ด Norway: www.logopedtidsskriftet.no/aktuelt/ppa-...

@rosemary-townsend.bsky.social @annavolkmer.bsky.social @ingvildw.bsky.social @monicanor.bsky.social

04.04.2025 10:15 ๐Ÿ‘ 7 ๐Ÿ” 3 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
Primary Progressive Aphasia (PPA) Awareness Day | 4th April 2025 Primary Progressive Aphasia (PPA) Awareness Day is an event to raise awareness of the condition and the work of the International Speech and Language Therapy / Pathology Primary Progressive Aphasia Ne...

Interest in the PPA awareness day event has exceeded our expectations!

If you are coming to our webinar - come along early 2 guarantee a place!

speechtherapyppa.com/ppa-awarenes...

We will record the event & pop it on our website

@rosemary-townsend.bsky.social
@ppaphasiaawareness.bsky.social

04.04.2025 08:46 ๐Ÿ‘ 6 ๐Ÿ” 3 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Today, 4 April 2025, is the 1st ever Primary Progressive Aphasia (PPA) awareness day!

Free UK webinar today: speechtherapyppa.com/ppa-awarenes...

Missed it? A recording will be on our website: speechtherapyppa.com/ppa-awarenes...

@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

04.04.2025 07:11 ๐Ÿ‘ 5 ๐Ÿ” 4 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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International PPA Awareness Day - The National Aphasia Association The NAA is hosting the first annual International PPA Awareness Day! Join the one-hour webinar to see people with PPA share their experience through photos, art, poetry and more! The โ€ฆ Continued

The inaugural International PPA Awareness Day is this Friday April 4th! Join a webinar hosted by the National Aphasia Association.
aphasia.org/event/intern...
@ppaphasiaawareness.bsky.social

31.03.2025 13:57 ๐Ÿ‘ 9 ๐Ÿ” 6 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 2
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1-week till PPA awareness day 4 April!

Webinar: speechtherapyppa.com/ppa-awarenes...

This wk we were raising awareness at the highest level asking MPs for their support at Westminster with Dyscover & the Royal College of Speech & Language Therapists

#PPAawareness
@ppaphasiaawareness.bsky.social

28.03.2025 16:16 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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2-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

This wk we are sharing another podcast, this time created with student speech & language therapists abt the UCL PPA clinic: podcasts.apple.com/gb/podcast/e...

#PPAawareness
@ppaphasiaawareness.bsky.social

21.03.2025 09:41 ๐Ÿ‘ 3 ๐Ÿ” 3 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Rory Barnes poetry for PPA awareness
Rory Barnes poetry for PPA awareness YouTube video by BetterConversations

3-weeks till PPA Awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Living with PPA can be difficult. Rory's beautiful poetry captures this

youtu.be/8K363W-XzWI?...

Book sale proceeds to Rare Dementia Support - available soon: shop.nationalbrainappeal.org?gad_source=1...

14.03.2025 09:43 ๐Ÿ‘ 8 ๐Ÿ” 5 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
PPA awareness
PPA awareness YouTube video by BetterConversations

4-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Why is speech and language therapy important for people living with PPA?

We asked people with PPA, families and professionals. Watch our video abt it!

#PPAawareness
@ppaphasiaawareness.bsky.social

07.03.2025 09:34 ๐Ÿ‘ 11 ๐Ÿ” 9 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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5-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Book launch at UCL for the 2nd Ed of our book - 16 international co-authors writing about PPA!

15% off J&R Press NOW at: www.jr-press.co.uk/product/asse...

#PPAawareness
@ppaphasiaawareness.bsky.social

28.02.2025 10:18 ๐Ÿ‘ 4 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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6-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Listen in 2 @rosemary-townsend.bsky.social chatting to Helen from The Brainy Speech Therapy Podcast about PPA early next wk: open.spotify.com/show/7FY6mec...

#PPAawareness
@ppaphasiaawareness.bsky.social

21.02.2025 16:18 ๐Ÿ‘ 5 ๐Ÿ” 3 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

7-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

๐Ÿ’• Valentines Day is all about relationships.

We did a @dementiaresearcher.bsky.social podcast on PPA, relationships & speech therapy that helps

Get a sneak peek here: youtu.be/t2k2-UhJjbU

#PPAawareness

14.02.2025 14:32 ๐Ÿ‘ 5 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Primary progressive aphasia support group webinar - 27th October 2020
Primary progressive aphasia support group webinar - 27th October 2020 YouTube video by Rare Dementia Support

8-weeks to go till PPA awareness day: 4th April 2025!

Speech & language therapy can help join up ppl with PPA. Rare Dementia Support also connects people with PPA like Helen.

Sign up for PPA awareness day webinar: speechtherapyppa.com/ppa-awarenes...
#PPAawareness

07.02.2025 15:58 ๐Ÿ‘ 6 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Primary Progressive Aphasia awareness day โ€“ 4th April 2025 - DEMENTIA RESEARCHER Weโ€™re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025!

Weโ€™re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025! #PPAawareness @ppaphasiaawareness.bsky.social

www.dementiaresearcher.nihr.ac.uk/primary-prog...

04.02.2025 16:05 ๐Ÿ‘ 9 ๐Ÿ” 4 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 2

A tremendous endeavor: sign up today! I am very much looking forward to being in the virtual audience!

31.01.2025 17:16 ๐Ÿ‘ 7 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Itโ€™s been a busy time, planning #PPAawareness together with @annavolkmer.bsky.social & all our collaborators! 9 weeks of content coming in the lead up to 4 April ! Please share

31.01.2025 12:49 ๐Ÿ‘ 8 ๐Ÿ” 5 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025!

Webinar sign up: speechtherapyppa.com/ppa-awarenes...

Follow for updates:
@ppaphasiaawareness.bsky.social
@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

#PPAawareness

31.01.2025 12:06 ๐Ÿ‘ 13 ๐Ÿ” 10 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 2