@ppaphasiaawareness.bsky.social
@brainandmindcentre.bsky.social
@utas.edu.au
@sydney.edu.au
27.02.2026 02:14
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Primary Progressive Aphasia Awareness Day Australia 2026
Free webinar: Friday 10 April, 12:00–1:30pm AEST (Zoom)
Hear from specialist clinicians on how early intervention supports people with PPA, including younger‑onset, to keep living well and doing what matters.
Register: bit.ly/PPAAwareness...
27.02.2026 02:14
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Let us Grow: Life, Creativity and Connection
Attend this free webinar for insights from people who have living experience with young onset dementia and how they challenge themselves to live their best life
YOD‑SIG is hosting its first 2026 webinar on 12 March, 12:30–1:30pm AEDT.
Let us Grow explores how creative and inclusive activities can support people with young onset dementia to live meaningful, connected lives.
Register: events.humanitix.com/let-us-grow-...
#YOD #dementia
27.02.2026 00:46
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Finding Voice Through Loss: how a gift is empowering dementia care
A widow’s gift to the Brain and Mind Centre is supporting vital communication therapy for people with Primary Progressive Aphasia, transforming personal loss into lasting impact for dementia care and ...
We’re pleased to share the personal story of Siân Jarrett. Her generous philanthropy has been instrumental in supporting the provision of speech therapy to so many through FRONTIER’s Speech Pathology Clinic, the PPA Communication Project.
go.sydney.edu.au/aenRtO
@brainandmindcentre.bsky.social
26.02.2026 06:14
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Some behaviors related to FTD can lead to unexpected interactions with the criminal justice system. This month’s Quick Question asks whether you or your loved one have experienced this. Share your voice: ftdregistry.org/quick-questi...
#endFTD
18.02.2026 20:01
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FTDToolkit
A novel online platform to monitor symptom progression in Frontotemporal Dementia and carers’ wellbeing
Professor Eneida Mioshi and her team at @uniofeastanglia.bsky.social (UK) are developing a free, online intervention designed to support family carers of people living with #frontotemporaldementia (FTD). To participate or learn more about the program, visit ftdtoolkit.org
#endFTD
19.02.2026 04:30
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📣 The ABI Communication Lab is excited to invite you to our next Sydney Aphasia Social Group event! 💬
🗓 Tuesday, 24 February 2026
⏰ 11:00 AM – 1:00 PM
📍 Level 4, Susan Wakil Health Building, The University of Sydney
👉 Register here: events.humanitix.com/sydney-aphas...
05.02.2026 01:00
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It's an incredible achievement! Please pass on our congratulations to Henry!
29.01.2026 00:21
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Well done!
04.01.2026 22:38
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Image displaying a laboratory scene with two individuals working, coinciding with an announcement 'GemVax & Kael Announces Results from Phase 2 PSP Study'
GemVax & KAEL report positive safety and tolerability data for its Phase 2 trial for GV1001 in people with #PSP. The trial also showed some potential efficacy for the drug to slow disease progression.
➡️ Click here to learn more: https://bit.ly/44qUxcM
19.12.2025 23:41
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Our 2025 group photo. Big smiles, big plans for the year ahead.
#frontotemporaldementia #primaryprogressiveaphasia #ftd #ftld #ppa #endFTD
@brainandmindcentre.bsky.social
@sydney.edu.au
17.12.2025 21:51
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The #UniversityofSydney SPEECH Clinic is now taking on clients interested in the 10-week convers-ABI-lity program!
The SPEECH Clinic will be taking on new adult clients and will be offering assessment and treatment sessions.
If interested, please reach out to petra.avramovic@sydney.edu.au
10.12.2025 01:00
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The Nature Partner Journals Dementia are looking for essays from clinicians and researchers who have experience with all forms of Dementia. The essays will be collated together to create "The Human Connection". Learn more here: ow.ly/9yrK50XAyH1 #researchers #journal #essays #personalexperiences
09.12.2025 11:45
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This is a great initiative!
30.11.2025 22:27
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What a great initiative!
26.11.2025 23:54
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Promotional image for a webinar titled "FTD Research 2025: Paving the Path Towards Effective Treatments" scheduled for December 10, 2025, featuring Penny Dacks, AFTD Chief Scientific Officer and FTD Disorders Registry President, and Chiadi Onyike, AFTD's Medical Advisory Council Chair and Johns Hopkins University's Frontotemporal Dementia and Young-Onset Dementias Clinic Director. Sponsored by Passage Bio.
Join us for an inside look at the progress shaping FTD research. On 12/10 at 3 pm, AFTD experts Dr. Penny D. and Dr. Chiadi O. will discuss advancements from 2025 & the momentum driving us toward effective treatments in the years ahead. Sponsored by Passage Bio
Register now: https://bit.ly/4rfNmOq
20.11.2025 21:09
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Thank you for the great work that you do.
19.11.2025 21:19
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Congratulations, Rebecca!
03.11.2025 02:46
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This is an excellent article. Thanks for sharing.
03.11.2025 02:43
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Promotional banner for Alector Clinical Trial Results Townhall on Thursday, November 6, 2025, at 3:00 p.m. ET, featuring Carmela Tartaglia and Penny Dacks from The Association for Frontotemporal Degeneration. Includes headshots and titles of the speakers.
Results from Alector Therapeutics’ Phase 3 trial for Latozinemab (AL001), designed for people with FTD caused by GRN variants, have raised important questions for many. Join us on Nov. 6 for a live discussion about what these results mean and what’s next for FTD research: https://bit.ly/3Lw3Sco
30.10.2025 15:49
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ISFTD Webinar on AI in FTD: From Neuropathology to MRI to Clinic - ISFTD
Join ISFTD's Webinar on AI in FTD: From Neuropathology to MRI to Clinic
Wednesday, 29th October, 2025 at 11:00 AM EST.
www.isftd.org/events/webin...
#endFTD
#ISFTD
29.10.2025 06:17
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Training Courses and Events
Upcoming Better Conversations events are advertised here. The Better Conversations conference is held every two years. We run communication partner training approximately twice per year.
Just over two weeks until our Better Conversations course in Sydney & three weeks until Perth.
Shouting out to all Speech Pathologists in NSW and WA- we’d love to see you.
And there are places still available!!!
Sign up: www.ucl.ac.uk/brain-scienc...
24.10.2025 08:57
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Alector Announces Results from Phase 3 INFRONT-3 Trial of Latozinemab for FTD-GRN - FTD Disorders Registry
Alector has announced topline results from its Phase 3 INFRONT-3 trial of latozinemab for FTD-GRN.
Alector has announced results from its Phase 3 trial of latozinemab (AL001) for FTD-GRN. While the study did not meet its goals, it offers insight that will guide future FTD research. Thank you to all who participated and continue to advance FTD research. Learn more: ftdregistry.org/press/alecto...
22.10.2025 16:51
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How everyday function, cognition, and behaviour change over time in FTD and PPA - Dr David Foxe
YouTube video by FRONTIER FTD Research Group
Recorded videos from our FRONTIER information day are now on our Youtube channel. In this video, David Foxe discusses how everyday function, cognition, and behaviour change over time in FTD and PPA.
www.youtube.com/watch?v=hQWX...
@brainandmindcentre.bsky.social
#endFTD
19.10.2025 05:06
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