@sedsconnective.org
The first hypermobility neurodivergence charity BrainBody AUTISM ADHD Dyspraxia Dyslexia EDS HSD Dysautonomia Chair @JGjanegreenmbe.bsky.social Patrons: Dr Eccles Dr Spititos Web: www.sedsconnective.org Link: https://linktr.ee/SEDSConnective
Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective.
👉 https://youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi9A
Our newsletter is coming out soon! You can sign up here - www.sedsconnective.org 🙏
Join us in making a difference! Taking part in any fundraising activities?
Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏
We are very excited for our members to take part in some very long awaited research. Join us today if you want to know more
www.sedsconnective.org
#autism #adhd #hypermobility #education
Our newsletter is coming out soon! You can sign up here - www.sedsconnective.org 🙏
Poster with a beige background and hanging lantern illustrations at the top. The logo reads “SEMA – Scottish Ethnic Minority Autistics.” Large centered text says “Ramadan Through Autistic Lens.”In the middle, an illustrated young woman wearing a white hijab and brown top is shown from the shoulders up. Around her head are colorful abstract shapes containing the words: “Executive Dysfunction,” “Meltdown Moments,” “Sensory Overload,” “Routine Changes,” “Fasting Challenges,” “Prayer,” “Sleep Struggles,” and “Social Anxiety.”At the bottom, inside a cloud shape, the text reads: “An Autistic Guide to Ramadan.” Crescent moons and subtle Islamic geometric patterns decorate the lower background.
Last year we published a month worth of reflections on Ramadan including 2 webinars discussing Autistic experiences during the holy month.
This year we decided to collate these into an e-book, the first of its kind but not the last!
You can access the book here: heyzine.com/flip-book/29... 🧵👇
Thank you !
Classical EDS is the most common genetically confirmed type (~1 in 20,000–40,000).
Many other types are ultra-rare with fewer than 20 confirmed cases worldwide!
Join us in making a difference! Taking part in any fundraising activities?
Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏
This is an important issue about disability right and autonomy. One of our members Lucinda in the @BBC news today.
👉 Read here: www.bbc.com/news/article...
New East Grinstead support Meeting! This Fri 27th Feb | 1:30pm - 3pm | The Old Dunning's Mill, E Grinstead, RH19 4AT
See details here: https://www.sedsconnective.org/event-details/east-grinstead-support-meeting
Research participant invitation flyer for autistic parents and teachers of autistic students aged 8-14. Coloured boxes contain further information about the study, researcher, what’s involved and how to sign up.
Invitation to Participate in Doctoral Research with Elaine McGoldrick
• Are you an Autistic parent of an 8-14 year old Autistic student enrolled in an Irish school?
- Do you teach 8-14 year old Autistic students in an Irish school?
Find out more: mcgoldre@lsbu.ac.uk
It really is very difficult- along with brain fog! We are user-led and so we get it! Of course though we are all unique and some issues harder for some than others. Do join us on www.sedsconnective.org
Delighted our Chair @jgjanegreenmbe.bsky.social is quoted in this article which was published ahead of the white paper Every child Achieving and Thriving 🙏
#SEND #Education
www.learningdisabilitytoday.co.uk/news/send-sc...
They said:
“There’s nothing medically wrong.”
We said:
“Then why are so many neurodivergent children presenting with the same pattern particularly those with symptomatic hypermobility and co-occurring associated conditions?”
#SEND #Education #schools #EBSA
BendyBrain Episode 5 by our patron Dr Jessica Eccles @bendybrain.bsky.social is now out on Youtube!
👉 Go watch now: www.youtube.com/watch?v=x3SC...
Join us in making a difference! Taking part in any fundraising activities?
Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏
Autism ADHD AuDHD, professional, parent /carer?
This online summit is for you!
21-22 February 2026
With ADHD Clinics in collaboration with SEDSConnective
Tickets: summit.adhd-clinics.co.uk
and at www.sedsconnective.org
Ramadan Mubarak
From SEDSConnective and Trustee Areeba
Please share 🙏
ADHD menopause study but looking only for those dx ADHD in childhood or adolescence
now 45-55 , menopause transition, AFAB and in UK
tinyurl.com/adhd-menopause
Happy Pancake Day! 🥞
Gluten-free pancake recipe:
• 125g gluten-free plain flour
• 1 egg
• 250ml milk*
• Butter* for frying
• Lots of yummy toppings
Enjoy!
* Dairy‑free alternatives can also be used.
* A little melted butter can also be added to the mix.
Happy Saturday to all who don’t celebrate Valentine's
Happy Weekend to all who don’t celebrate Saturdays
Happy half term break to all those not celebrating weekends
Happy something else to all who don’t celebrate either of those!
love www.SEDSConnective.org ❤️💛💙
For everyone 🌍
A sleep, exercise and sensory sensitivities in autistic adults.
They need BOTH autistic and on autistic people to be involved.
QR code on flyer and Ethics approved No. 878
https://universityofsussex.eu.qualtrics.com/jfe/form/SV_0JMVG3ZmkNxD7My
For everyone 🌍
A sleep, exercise and sensory sensitivities in autistic adults.
They need BOTH autistic and on autistic people to be involved.
QR code on flyer and Ethics approved No. 878
#Autism
For everyone 🌍
A sleep, exercise and sensory sensitivities in autistic adults.
They need BOTH autistic and on autistic people to be involved.
QR code on flyer and Ethics approved No. 878
https://universityofsussex.eu.qualtrics.com/jfe/form/SV_0JMVG3ZmkNxD7My
" I'm volunteering at SEDSConnective to make a difference and put my skills to use....."
We’re so grateful for your continued support of SEDSConnective 💙 #hypermobility #neurodivergence #volunteers
Have you heard of MCAS? Mast cell activation disorder ? Watch more about symptomatic hypermobility neurodivergence here at @bendybrain.bsky.social you tube channel
youtu.be/Pr2ZFJOYPYw?...
Free online talk for members on Wednesday on orthotics with Josh Oguntade, Senior Orthotist and adviser at SEDSConnective.
www.sedsconnective.org
