My daughter was almost 4 when diagnosed w/#DIPG (brainstem cancer). It’s the most lethal disease on earth (yes, really).
Pls help raise awareness & funding for more research. Esp. important now that🍊🤡 & 🧠🪱 gutted the #NCI & #NIH.
#ChildhoodCancerAwarenessMonth
100% Fund Grant Competition: Call for applications in Diffuse Midline Glioma (DMG) / Diffuse Intrinsic Pontine Glioma (DIPG), and Rhabdomyosarcoma c17blog.wordpress.com/2025/09/25/1...
Six-year-old Devin was diagnosed with #DIPG after collapsing during a snowboard lesson.
His family now honors his legacy by showing that hope is stronger than fear.
Read Devin’s story: https://braintumor.org/news/hope-is-stronger-than-fear-a-dipg-story/
#GoldforCCAM #CCAM
An infographic from Pediatric Cancer Research with facts about pediatric cancer
September is also Childhood Cancer Awareness Month which is also dear to me as I lost my 11 y/o cousin to DIPG in March ‘24. Funding for research was already low, but is being cut further, thanks to this administration.
Neuro-oncology with Aimee Sato:
Clinical implications of recent FDA approvals for diffuse midline glioma with H3K27 variation (dordaviprone) - studies EXCLUDED pontine diffuse glioma, so can we say it works for DIPG?
ChadTough Defeat DIPG is a private organization started by families who lost their children to DIPG to fund research, spread awareness, and support DIPG families. With National Cancer Institute funding cut off, it is now the main source of funding for pediatric brain, cancer research and trials.
When five-year-old Jacob M. was diagnosed with #DIPG, his stuffed cat Mr. Puddles became his constant source of comfort.
After Jacob’s passing, his mom Mia formed “Team Jacob and Mr. Puddles” to honor his memory: braintumor.org/news/beloved-stuffed-animal-provides-comfort-to-jacob-and-his-family
Congratulations to Seattle Children’s Nicholas Vitanza, MD, on receiving a $1 million grant from @TheCureStartsNow Foundation and their partners, the DIPG/DMG Collaborative. Together, we’re working to create better treatment options and new hope for children and families. https://bit.ly/4m9TT9A
🚨|Lucas Jemeljanova, niño belga con DIPG, recibió un tratamiento personalizado en Francia. Contra todo pronóstico, su tumor cerebral desapareció por completo, marcando un avance histórico en el tratamiento de este cáncer infantil agresivo. 👇
Te contamos su historia aquí:👇
Big pharma greed is a factor in #ChildhoodCancer.💔 Most big pharmas don’t do childhood cancer research because it’s not profitable.
Now, the #NIH isn’t either, because🍊🤡.
Pls invest in pediatric cancer research. The kid you save may be your own.
#ChildhoodCancerAwarenessMonth #DIPG #braincancer
Bill Alert!
US Senate Bill SRES 303 - A resolution expressing support for the designation of May 17, 2025, as "DIPG Pediatric Brain Cancer Awareness Day" to raise awareness of, and encourage research on, diffuse intrinsic pontine glioma tumors and pediatric cancers in general.
https://hozzl.com/p...
Stanford Medicine neuroscientist Michelle Monje MD, PhD, and researcher Julien Sage, PhD, found that brain tumors, including gliomas and lung cancer metastases, hijack neural circuits to fuel growth, revealing new treatment insights. #DIPG
📣 Youth4Kids 2025 🎗️ @r4knetwork.bsky.social
This morning, we had the pleasure to welcome Dr Clara Savary from @hmriaustralia.bsky.social.
She is currently working on deciphering the resistance mechanisms of ONC201 in DIPG.
Well done Clara and the whole team led by Dr Matt Dun. 👏
My highlight of Day 2 of the #Youth4Kids congress organised by @r4knetwork.bsky.social: the inspiring talk by Dr Clara Savary from the University of Newcastle (#DunLab) on the mechanisms of resistance in #DIPG, a deadly form of pediatric brain cancer.
@jessibean5.bsky.social attending #BACR25 in Edinburgh, and presenting exciting results using deuterium MRS to assess treatment-induced changes in the metabolism of orthotopic models of diffuse midline glioma.
#DIPG #MRI #Metabolism #PaediatricGlioma
@icr.ac.uk @cancerresearchuk.org
DIPG is one of the most aggressive brain tumors, particularly devastating for children. Dr. Michelle Monje is leading innovative research in cancer neuroscience to combat these brain tumors. #CancerResearch #Neurology
Our research is supported by ChadTough Defeat DIPG Foundation and families who lost their children to this intractable disease.
We are dedicated to work hard and advance this technology to humans.
www.media.mit.edu/posts/prof-d...
Incredibly honoured to receive prestigious
@researchireland.ie funding to study developmental vulnerabilities in diffuse midline glioma (DIPG/DMG).
Huge thanks to my amazing mentor @jfcryan.bsky.social
Excited for what’s ahead!
@apcmicrobiomeirel.bsky.social @anatneuroucc.bsky.social
In this week’s publication highlights, we picked this study just out @naturemedicine.bsky.social describing an innovative method for the rapid classification of brain tumors based on molecular profiling.
Congrats to all involved @dkfz.bsky.social and beyond 👏🏻
www.nature.com/articles/s41...
Clarifying: my lab is still here; we are stopping new expts to focus on analyzing + pub'ing what's on hand. Instability at the fed level makes it difficult for scientists like me to take risks on discovery + innov. This impacts what research q's we can ask; this directly impacts what work we can do
This is horrible to post, but I may as well post it. We are essentially shutting down research operations in my group, which is focused on treatments for pediatric brain cancer. I’m a well funded investigator, and there’s no choice. Science can’t function without the stability of NIH
In Montreal, 🇨🇦, my pal @exposfest.bsky.social has channeled the personal tragedy of losing a niece & his love of the Montreal Expos by hosting galas with former players and raising millions of dollars (so far!) for DIPG (pediatric brain cancer) research. The next gala is in late April. exposfest.com
Lachie Love: Schoolboy ‘hero’ ticking off bucket list dies with rare DIPG cancer
LACHIE LOVE: SCHOOLBOY ‘HERO’ TICKING OFF BUCKET LIST DIES WITH RARE DIPG CANCER
The boy with DIPG was a special guest of Ed Sheeran and rode in a $500,000 supercar.
Read Article: https://xtra-two.vercel.app?c=6ua5Ch
Looking for something fun in #Denver #Colorado? Check out the First Annual 2221 Society Derby Party on May 3rd! It supports research of DIPG, a rare, aggressive brain tumor in children. Jen and I will be there—come say hi!
www.2221societyderbyparty.com#buy-tickets
Since her death, Sunnie’s parents started the SunnieStrong Foundation. They help DIPG families after their child dies. They also donate to A Cure Starts Now, which funds clinical trials. Sunnie was an ambassador for them.
Read more about Sunnie’s story here: www.sunniestrong.org/about_us
DIPG has been a certain death sentence. To see some possible success with CAR-T therapy out of Dr Vitanza’s lab? 🥹 So many people have worked hard raising money for Dr Vitanza’s research, for more stories like this. More like my son’s former teammate who just got engaged thanks to CAR-T therapy. ❤️
media.chadtough.org/wp-content/u...
2024 Annual Review for ChadTough, an family-founded foundation working to defeat DIPG, a deadly childhood brain cancer. Making great progress. Worthy of your support, imo.
A table with a picture of my late cousin, Sunnie Williams, who passed away 17 months after being diagnosed with DIPG. Her custom SunnieStrong shoes, a stuffed animal, & a faux sunflower is also on the table.
The SunnieStrong Foundation event on Saturday raised $8800! Today only, a private donor will match donations until they reach $10K!
www.sunniestrong.org/donate
The Keane lab is hiring! Join our team at
@apcmicrobiomeirel.bsky.social
on an exciting new project trying to understand how the gut-brain axis shapes the tumour microenvironment of Diffuse Midline Glioma #cryanlab #DMG #DIPG
Apply here using using Job Id 085551
ucc.ie/en/hr/vacanc...
Last day of @keystonesymposia.bsky.social #KSChromatin25 fantastic to hear from Yang Shi, linking H3K27M in DIPG to role of ASCL1 control of eventual differentiation, oh and a view of @fairmontbanff.bsky.social with a fresh dusting of snow today!
