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Ezra S

@ezra.zone

creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.

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Latest posts by Ezra S @ezra.zone

guess bpc-157 wasn't enough actually

10.03.2026 18:16 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Where Have All the Long COVID Clinics Gone? A nationwide survey reveals the uncertain state of specialized care for Americans living with the chronic condition

In 2022, I counted more than 400 healthcare centers in the U.S. offering Long COVID care. @delfimarchese.bsky.social followed up three years later, and found many of them have closed... or at least failed to respond to our inquiries.

Her investigation for @thesicktimes.org: clinics.thesicktimes.org

10.03.2026 17:24 πŸ‘ 51 πŸ” 26 πŸ’¬ 4 πŸ“Œ 0

There are a couple provocative anecdotes in the paperβ€”and suggestions for how to dig deeper in the future. That gives me some hope.

10.03.2026 01:31 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Yes, it was a negative outcome. But I really encourage folks to read this paper. It's a really thoughtful contextualization of the results and provides endless lessons for others designing LC trials.

(Disclosure: I collaborate with the UCSF team and have been in UCSF trials.)

10.03.2026 00:41 πŸ‘ 11 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

Honestly the deeper I've gotten into issues that Hobbes & Co. have strong opinions on (*cough* Long COVID), the more I realize that their analysis is shallow and weak. They bring, but do not disclaim, their own biases and more and more, I'm unfortunately convinced they are making things worse.

08.03.2026 21:07 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Definitely

08.03.2026 19:36 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

hey friends, looking for a CA employment lawyer specializing in 1A issues!

not looking for a friend lol, pls repost πŸ™πŸ½

05.03.2026 21:37 πŸ‘ 41 πŸ” 47 πŸ’¬ 5 πŸ“Œ 0

For a story in @thesicktimes.org, seeking organizers in any left movement work who’ve taken a break or fully stepped away from organizing sometime since 2020 due to Long COVID. They can be anonymous in the piece and may reach out directly at longdefeat.08 on Signal #LongCOVID #NEISvoid

04.03.2026 17:20 πŸ‘ 41 πŸ” 46 πŸ’¬ 1 πŸ“Œ 1

Can I get an AI to turn off the AI ads please? Now that's something that would save me real time

04.03.2026 17:57 πŸ‘ 6 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

Being an adult is lowkey goated when checking off a series of discrete but ultimately meaningless to-do list items on a Monday afternoon is the vibe

02.03.2026 19:08 πŸ‘ 50 πŸ” 2 πŸ’¬ 2 πŸ“Œ 1

We live in stupid and horrible times unless you somehow only care about steam locomotive preservation in which case somehow we're in a golden age.

01.03.2026 17:42 πŸ‘ 203 πŸ” 31 πŸ’¬ 3 πŸ“Œ 0

I’m so sick of the punching down

01.03.2026 05:53 πŸ‘ 12 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Fascinating

27.02.2026 19:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

modern Boeings and Airbuses have touchpads and cursor interfaces and it just makes me so sad

27.02.2026 18:31 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

It’s just all so exhausting

26.02.2026 23:30 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

love too be lectured by people who aren't experts about something i have expertise in

26.02.2026 23:26 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

from now on i'm referring to tabs as "today in tabs, award-nominated magazine"

26.02.2026 21:17 πŸ‘ 6 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

yes this is a subtweet

26.02.2026 17:38 πŸ‘ 5 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

i'm sorry i'm just really tired of leftists punching down on disabled and chronically ill people

26.02.2026 17:35 πŸ‘ 31 πŸ” 7 πŸ’¬ 3 πŸ“Œ 0

Yes, thank you for clarifying - and ironically I do think that DME suppliers are extremely problematic

25.02.2026 23:13 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

re last post. Interestingly enough a lot of DME suppliers are...well exploitative to say the least.

25.02.2026 22:49 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

completely inhumane. DME is vital

25.02.2026 22:45 πŸ‘ 8 πŸ” 3 πŸ’¬ 2 πŸ“Œ 0

this is completely inhumane. what about cpaps for sleep apnea? wheelchairs for people who need them? DME is not extra, it's vital

25.02.2026 22:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Image from Wikipedia article about survivorship bias showing bullet locations on an airplane

Image from Wikipedia article about survivorship bias showing bullet locations on an airplane

β€œBut I got COVID and was fine!”

25.02.2026 18:01 πŸ‘ 12 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

long covid basically ruined my life - LOL!

23.02.2026 18:46 πŸ‘ 15 πŸ” 3 πŸ’¬ 3 πŸ“Œ 0

Imagine if people made impassioned pleas for everyone to be on YouTube Shorts the same way people argue we need to be on X. YouTube Shorts, meanwhile, has roughly a gazillion more active users

23.02.2026 15:16 πŸ‘ 1306 πŸ” 114 πŸ’¬ 28 πŸ“Œ 19
The posts on social media β€” and the backlash to LaGrossa Kendrick, who later apologized for her remarks β€” seemed to get the attention of CBS’ parent company, Paramount, which requested a meeting with Orlins earlier this year, Semafor has learned. During the meeting, the network suggested that Orlins was violating its rules around trademarked branding and phrases on her Patreon. But the legal representatives also urged Orlins to respect other contestants, and implied that her political posts were harming other contestants.

The posts on social media β€” and the backlash to LaGrossa Kendrick, who later apologized for her remarks β€” seemed to get the attention of CBS’ parent company, Paramount, which requested a meeting with Orlins earlier this year, Semafor has learned. During the meeting, the network suggested that Orlins was violating its rules around trademarked branding and phrases on her Patreon. But the legal representatives also urged Orlins to respect other contestants, and implied that her political posts were harming other contestants.

sure sounds like CBS threatened @elizaorlins.bsky.social for defending herself after trump-supporting stephenie lagrossa (a return survivor contestant on the upcoming 50th season) attacked orlins for being "fucking jewish."

www.semafor.com/article/02/2...

23.02.2026 14:55 πŸ‘ 751 πŸ” 180 πŸ’¬ 12 πŸ“Œ 16

I thought they "fixed" it but then they came out with 6E. I guess still better than what they had before but come on

23.02.2026 04:49 πŸ‘ 0 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0

WiFi standard naming should get an honorable mention at least

23.02.2026 04:46 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
A mock-up of an imaginary USB Inspector app that shows devices connected via USB, their speeds, and whether that speed is limited by an inadequate cable.

A mock-up of an imaginary USB Inspector app that shows devices connected via USB, their speeds, and whether that speed is limited by an inadequate cable.

I would love an app that looks something like this.

23.02.2026 03:19 πŸ‘ 89 πŸ” 11 πŸ’¬ 9 πŸ“Œ 2