@tuffrey-wijne.com
30.12.2025 15:49
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@tuffrey-wijne.com
Webinar recording day!!!
Here's the webinar production team!
Hundreds of people attended live.
Missed it? The recording will be on YouTube soon.
But nothing beats a live attendance, so don't miss our next webinar! 5th March 2026
You can already register here:
shorturl.at/AO3Ll
An amazing 700 people have signed up to our webinar on Thursday... but there's always room for more! Join the crowd at lunchtime!
Register here:
shorturl.at/crMpL
Ooooh that would be a early alarm clock! Would love to have you join us live but yes, we will record it!
Continuing our new webinar series! On 4th Dec (1pm), some of our amazing team will tell you about The DAPPLE Project and its early findings. Don't miss it! Sign up here:
shorturl.at/YCDmW
“You have to always highlight the stuff that you can’t do. It makes you feel bad”
In this important blog, Richard explains what it feels like to be assessed again and again in order to keep his benefits and support
www.dappleproject.com/post/34-don-...
Thank you for sharing!
Can you help us find study participants? I am part of the READY Study team. We want to listen to family or paid carers of people with a learning disability who died, learning more about people who died of something other than cancer or dementia. Get in touch if you want to find out more
Missed our webinar? The recording is now on YouTube, so you can catch up!
youtu.be/AK_2EtY8VXo
Kicking off our new webinar series…. Here we were in the office yesterday, hosting a webinar on our end-of-life care planning toolkit!
@mariecurieuk.bsky.social
Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register:
shorturl.at/LgOPC
Academic writing retreat! I’d never heard of it, let alone been on one, but it was glorious. In Yorkshire, with 5 of my lovely colleagues, cut off from the world (no emails!), between us we worked on 2 grant applications and 4 academic articles. Also included: walks, lamas, yoga and great food!
Excellent name for the co-production group. It does what it says on the tin! As always, our colleagues with learning disabilities nailed it with unambiguous language
Can’t believe it’s a year already! What a great project & great team
My colleague Richard told the BBC he found the findings "really upsetting".
"People are still dying quite young and are not getting the right support and care. It could be me or it could be somebody I know and I want these deaths to be taken really seriously."
www.bbc.co.uk/news/article...
“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder
Easy read and accessible versions of the LeDeR 2023 report are available to ensure findings reach everyone. These materials make research accessible to people with a learning disability, their families, and carers.
Here is the video made by the Staying Alive and Well Group
youtu.be/qRUdWqz20jg
The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disability & autistic people who died in 2023. The work is part of efforts to reduce health inequalities.
Access here: kcl.ac.uk/research/leder
Be one of the first to order. Launching today!
(UK only - other countries can still freely download and print at home)
Order link is in this short video. Please share!
youtu.be/VrntRIJCdXY?...
@andreabruun.bsky.social @mariecurieuk.bsky.social
Out with a bang, literally! Ours was the final presentation on the final conference day, and just as we finished, Utrecht’s church bells rang out
@asdsdeath.bsky.social
@victoria&stuart project
ASDS logo. Text: The Victoria and Stuart Project, 2025 ASDS Public Engagement Award winner.
"The remarkable project reaches an under-served community and provides numerous accessible resources around the often neglected area of end of life care planning with people with learning disabilities."
The Victoria and Stuart Project wins the ASDS Public Engagement Award. @tuffrey-wijne.com #ddd17
So proud of my team that has co-produced an amazing end-of-life care planning toolkit! Find it here:
www.victoriaandstuart.com
Got all excited to see this IKEA coffin at #ddd17 conference. A snip at €80. I want one! My family and friends can decorate it. I find the DIY approach helpful
Then I discovered it was a hoax. Alas! Perhaps we should start a please-sell-affordable-coffins-on-the-high street movement?
Brilliant book. Stories about life, not death - because everyone who dies, even if they have no-one in their life (anymore) who can organise their funeral, has a story. Loved listening to Evie King at the #DDD17 conference book group yesterday. Her talk, like her book, made me laugh, cry - and think
Not to be missed!
Arrived at the DDD Conference (Death, Dying & Disposal) in Utrecht, Netherlands! Accompanied, as usual, by our team mascot Pierre
Looking forward to hearing about research and experiences from cultures, societies and minoritised groups across the world
#ddd17
