Medical office waiting room
In for maintenance on my vocal cord. Gonna lose my actual voice for a few days. Guess that means more writing. #cancerlife #ALKPositive #NSCLC
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#ALKPositive
Latest posts tagged with #ALKPositive on Bluesky
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Posts tagged #ALKPositive
Booking your trip to the 2026 ALK Positive Summit? ✈️
Use Health Care Fares to save on flights and give back — they donate $10 to ALK Positive for every ticket booked.
👉 Book here: healthcarefares.com/en
#ALKPositive #ALKSummit #GiveBack
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Now Streaming: ALKtALK Replay 🎥
Jesse Boehm returns to ALKtALK to share new insights and updates on Break Through Cancer’s PowerRD 2 Cure ALK+ Lung TeamLab.
▶️ Watch now on our YouTube channel: youtu.be/Unny-4F9pq8?...
#ALKtALK #ALKPositive #PowerRD2Cure #BreakThroughCancer #MoreResearchMoreTime
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This Sunday (Dec 14), Jesse Boehm returns to #ALKtALK with updates on Break Through Cancer's PowerRD 2 Cure ALK+ Lung Cancer TeamLab.
Join live for the latest progress + Q&A.
#ALKPositive #LungCancerResearch #MoreResearchMoreTime
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Cancer is a system failure. My response: I grabbed a mechanical pencil and became the Observer. Read about the day I chose curiosity over fear, moving from Patient to Walking Observation Lab.
#SystemsThinking
#ScienceNerd
#ObservationLab
#CancerSurvival
#Deconstruction
#ALKpositive
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Read about experiment on the human body's ability to resiliantly contain an terminal disease through targeted therapy and complexity science knowledge. It's been a fascinating ride. that's only just begun.
#LungCancer #ALKpositive #Epigenetics #DeepakChopra #MayimBialik #JamesGlattfelder #SciComm
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Applying Complexity Science to Terminal Illness.
Hypothesis: "Détente" is more resiliant than "War."
Method: 4th-Gen TKIs + Psychoneuroimmunology.
Result: Sclerotic containment & BBB repair.
#LungCancer #ALKpositive #Epigenetics #DeepakChopra #MayimBialik #JamesGlattfelder #SciComm #Stoicism
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Our pharma and biotech partners strengthen the path toward better treatments, better resources, and more tomorrows for ALK-positive patients. 💙
Thank you, Pfizer, Nuvalent, and Takeda Oncology, for helping move this mission forward during LCAM.
#MoreResearchMoreTime #ALKPositive #LCAM25
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November is Lung Cancer Awareness Month
When Stephanie, a young mom in Harrisburg, noticed a mild cough in 2021, she blamed allergies. An X-ray soon revealed a mass, leading to a diagnosis of stage 2B ALK-positive lung cancer.
#LungCancerAwarenessMonth #ALKPositive #LungCancerStories
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For the first 8-9 months post cancer diagnosis, I was fighting from scan to scan, and the fear of progression was exhausting. I realized that fighting was keeping me from living. I made a conscious decision to change my goal from fighting to co-existence.
#lungcancer #nsclc #alkpositive #cancer
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November is Lung Cancer Awareness Month. My new post explores the profound choice to live fiercely while facing a terminal diagnosis, born from a quiet moment in my cancer center. #LungCancerAwarenessMonth
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
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Becca, who has stage 4 ALK+ #lungcancer, spoke on BBC Morning Live ahead of Lung Cancer Awareness Month 💙
Diagnosed nearly six years ago after back pain and vision problems, she’s helping challenge outdated ideas about who can get lung cancer.
#LungCancerAwarenessMonth #ALKPositive #LCSM
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1 year ago, a 10cm mass was collapsing my airway. Today, my scans show it's gone.
I am overcome with humility. This isn't about me; it's about the Architects of Stability in science whose thankless work made this possible.
#Cancer #ALKPositive #ClinicalTrials #Neladalkib #Nuvalent #Gratitude
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Early ESMO data show neladalkib (Nuvalent) achieved a 44% response rate in ALK+ cancers beyond #lungcancer.
Still early, but it hints at strong CNS activity and tolerability. NSCLC results expected later this year.
#ALKpositive #LCSM #ESMO25
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It’s #NationalDAFDay! Turn your DAF into life-extending impact.
Each grant powers ALK-positive research and patient programs—giving families more time.
Give today: thegivingblock.com/donate/alk-p...
#MoreResearchMoreTime #ALKPositive #LCAM
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My most recent CT scan and MRI show no recurrent or new metastatic disease! 🙌🏻🙌🏻🙌🏻 #lungcancer #nsclc #alkpositive #cancer #stageiv
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🌍 The 2025 ALK+ Summit brought together our community from 30 countries — united in one mission: accelerating research and supporting ALK-positive lives.
💙 Together, we are stronger.
👉 Stay connected for ALK Summit 2026: mailchi.mp/alkpositive/...
#ALKPositive #StrongerTogether
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This is an interesting article to read. With my cancer diagnosis last year, I couldn't figure out why my otherwise healthy body would attack itself in this fashion. Thanks to more targeted therapy coming out, there is hope to suppress and manage these types of cancer growths. #Cancer #ALKPositive
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Honored to join the @IASLC Lung Cancer Considered Podcast highlighting the 2025 ALK+ Summit. 🎧 Hear our board members share how advocacy & community shape the future of ALK+ research.
🔗 soundcloud.com/lungcancerco...
#ALKPositive #LungCancer #PatientAdvocacy
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🎨 The August Healing Arts Calendar is live!
These free 60-min creative sessions are a space to exhale—where ALK+ patients & caregivers feel seen, supported & understood.
Come to one or all. We’d love to have you.
alkpositive.org/living-with-...
#HealingArts #ALKPositive #YouAreNotAlone
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We're gearing up for next week's #ALKSummit2025 and want to thank our incredible sponsors. Your support brings knowledge, connection, and hope to the ALK+ community. We can’t wait for everyone to experience what you’ve made possible. 💙
#ALKPositive #PatientAdvocacy #ThankYou
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📅 Coming up Sunday, June 29 @ 7PM ET:
Join ALKtALK w/ Dr. Stephen Liu to explore how metastasis is managed in ALK+ cancer—from treatment changes to next steps after progression.
Zoom in to feel informed, empowered, and prepared.
🔗 alkpositive.org/alktalk
#ALKPositive #ALKtALK
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💪 “I just wanted to feel strong again.”
After her ALK+ diagnosis, Michele turned to movement—and community. She raised nearly $5K for research. This is what patient-powered looks like. 💛
🔗 alkpositive.org/blog/stronge...
#PoweredByPatients #ALKPositive #StrongerTogethe
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We’re here because of love, hope, and the power of community.
We’re #PoweredByPatients like Leslie, Heather, Liz & Susan—sharing their voices to drive awareness this #ALKPositive Awareness Month.
🧬 Every gift doubled thru June 30—up to $262K.
Donate now: secure.qgiv.com/event/alkpos...
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Jarushka Naidoo Shares Duncan Preece’s Patient-Focused Insights from ALK Positive Canada
@drjnaidoo.bsky.social
oncodaily.com/blog/jarushk...
#ALKPositive #Cancer #LungHealthCheckIreland #OncoDaily #Oncology
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This #APAM, we’re spotlighting Natalie, Bob, Debbie & Trish—each powered by family, friendship & a fierce drive to fuel ALK+ research.
We're raising $500K to push progress forward. Every dollar doubled.
💙 Join us: secure.qgiv.com/event/alkpos...
#PoweredByPatients #ALKPositive
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About 70K people in the U.S. are living with ALK+ lung cancer—most diagnosed at Stage IV.
🎯 Early detection + targeted therapy = longer lives.
Now’s the time: Every gift is DOUBLED to fuel research.
Join us: secure.qgiv.com/event/alkpos...
#PoweredByPatients #ALKPositive #APAM2025
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Amy, Seth, Amanda & Nancy are powered by faith, family & the fight for more research.
This #ALKPositive Awareness Month, they’re taking action to raise $500K for lifesaving breakthroughs.
Join the #PoweredByPatients movement 👉 secure.qgiv.com/event/alkpos... #APAM
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This #ALKPositive Awareness Month, we’re highlighting the incredible difference our community makes. We’re #PoweredByPatients — like Marc, Michele, and Pat—who are helping us raise $500k to advance life-saving treatments.
What powers you?
👉 secure.qgiv.com/event/alkposit…
#APAM
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The power to create change is in our hands. 💪
This #ALKPositive Awareness Month, we're #PoweredByPatients—like Laura, Suzanne, Randy, and Cathy, who are helping to raise $500K for life-saving research.
What powers you?
👉 secure.qgiv.com/event/alkpos...
#APAM
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