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Confidential health records from UK BioBank project exposed online Exclusive: Guardian investigation finds data from flagship medical research leaked dozens of times

Confidential health records from UK BioBank project exposed online

www.theguardian.com/science/2026...
#Genetics
#Biobank

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Biobanking Gap Analysis Survey Turn data collection into an experience with Typeform. Create beautiful online forms, surveys, quizzes, and so much more. Try it for FREE.

People working in wildlife conservation, biobanking, cryobiology, genomics, zoological and museum collections, and related fields are invited to participate in a global survey on wildlife biobanking practices, capacity, gaps, and priorities.

Survey: form.typeform.com/to/xmo3OoLa

#biobank #science

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Original post on mastodon.social

@jik I declined to join the UK Biobank project, which I'd otherwise have been keen to do, because at the time the UK government was having a round of UNCONDITIONALLY GIVE US ALL YOUR DATA MWHAHAHAHA authoritarian wobbles. I wonder if anyone bothers to think about the long-lasting (medical [โ€ฆ]

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It'll probably be elective participation. I was part of original #BioBank set up 2006/7 and I still get occasional pings of updates on where the research is reaching. I can halt it anytime I like.

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Unique Canadian fungus 'bank' with thousands of specimens saved by family foundation | CBC News A unique collection of microscopic fungi used for Canadian medical and biodiversity research has been saved from being shipped overseas.

This will surely be of interest to โ€œfun-guysโ€ and โ€œfun-galsโ€!! #fungus #fungi #mushrooms ๐Ÿ„โ€๐ŸŸซ #biobank #science #MedicalResearch #biodiversity

www.cbc.ca/news/science...

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MeMed Secures $2 Million Grant for Innovative Acute Care Biobank Initiative MeMed receives a $2 million grant to create a pioneering acute care digital and physical biobank, enhancing diagnostics for critical patients.

MeMed Secures $2 Million Grant for Innovative Acute Care Biobank Initiative #Israel #Haifa #MeMed #AIVD #Biobank

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Two individuals in protective gear spraying pesticides across a field of crops. 
Image credit: Shutterstock/NataliAlba.

Two individuals in protective gear spraying pesticides across a field of crops. Image credit: Shutterstock/NataliAlba.

Can we measure how countless #EnvironmentalExposures shape our health? After 20 years, #exposomics is poised to untangle how #pesticides, #pollution, #wildfires, and more interact to drive #disease. A PNAS News Feature: https://ow.ly/IbwG50XU6Jz

#biobank #genomics #PublicHealth

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Two individuals in protective gear spraying pesticides across a field of crops.
Image credit: Shutterstock/NataliAlba.

Two individuals in protective gear spraying pesticides across a field of crops. Image credit: Shutterstock/NataliAlba.

Twenty years on, #exposomics is revealing how #pesticides, #pollution, and #wildfires interact to drive #disease. Read the PNAS News Feature: https://ow.ly/JRJL50XR9xq

#biobank #genomics #PublicHealth #EnvironmentalHealthScience

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Two individuals in protective gear spraying pesticides across a field of crops
Image credit: Shutterstock/NataliAlba.

Two individuals in protective gear spraying pesticides across a field of crops Image credit: Shutterstock/NataliAlba.

#Exposome research comes of age: After 20 years, the field of #exposomics is poised to reveal the complex, interacting drivers of #disease. A PNAS News Feature: https://ow.ly/9QOg50XPn5J

#exposure #pesticides #pollution #wildfires #biobank #genomics #PublicHealth

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Spain Biobanking Market Size, Share, Trends, Forecast 2035 Spain Biobanking Market share register 1130.89 USD Million in 2024, projected to grow 4.19 % CAGR to reach USD Million 1776 during the forecast period 2025 - 2035.

๐Ÿ‡ช๐Ÿ‡ธ๐Ÿงซ Spain Biobanking Market outlook ๐Ÿ‘‰ www.marketresearchfuture.com/reports/spai... #Biobank #SpainHealthcare #Research

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#Nociplastic #pain is associated with worse #executivefunction in a cross-sectional study using the UK #Biobank

www.bjanaesthesia.org/article/S0007-0912(25)00...

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A patient is having their blood pressure checked

A patient is having their blood pressure checked

Chronic pain in adults may increase their risk of high blood pressure, and this is partly explained by inflammation and depression.

New study led by Prof Jill Pell.
More โžก๏ธ www.gla.ac.uk/news/headlin...

@fredho42.bsky.social @uofgmvls.bsky.social

#Biobank #Hypertension #ChronicPain

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CoLab is funding $770,000 for two biobanks - Monash Childrenโ€™s Cancer Biobank & the Hudson Institute Living Biobank, helping researchers access high-quality samples and develop safer treatments.
Read story here - tinyurl.com/banking-on-a...
@hudsonresearch.bsky.social
#ChildrensCancer #Biobank

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Generous post-mortem donations spark international collaborationย  | Mark Hughes Foundation We have a very unique asset in the Mark Hughes Foundation Biobank โ€“ a post-mortem collection from patient-donors. Funded through the generosity of the Mark Hughes Foundation this one-of-a-kind asset c...

Gregory lab #PhD student, Lauren Whaley's work on post-mortem samples from patient-donors, in partnership with the #MarkHughesFoundation

Thank you #MHF for your generosity! ๐Ÿง ๐Ÿงฌ

markhughesfoundation.com.au/latest-resea...

#BrainTumors #GBM #Biobank #Glioblastoma #SpatialOmics

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Role of genetics in the age-related testosterone decline in men: a UK Biobank study AbstractObjective. Age-related decline in circulating testosterone (T) levels in men varies significantly and is often linked to comorbidities such as Type

Role of Genetics in the Age-Related Testosterone Decline in Men: A UK Biobank Study by Lynn Ogoniak et al

EJE Volume 193, Issue 2, August 2025
๐Ÿ‘‰ doi.org/10.1093/ejen...
ESE Members free via ๐Ÿ‘‰ my.ese-hormones.org

#endocrinology #biobank #testosterone

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๐๐ข๐จ๐›๐š๐ง๐ค.๐ซ๐จ: ๐ญ๐ก๐ž ๐Ÿ๐ข๐ซ๐ฌ๐ญ ๐จ๐Ÿ ๐ข๐ญ๐ฌ ๐ค๐ข๐ง๐ ๐ข๐ง ๐„๐š๐ฌ๐ญ๐ž๐ซ๐ง ๐„๐ฎ๐ซ๐จ๐ฉ๐ž, a ๐œ๐š๐ญ๐š๐ฅ๐ฒ๐ฌ๐ญ ๐ข๐ง #๐›๐ข๐จ๐ฆ๐ž๐๐ข๐œ๐š๐ฅ #๐ข๐ง๐ง๐จ๐ฏ๐š๐ญ๐ข๐จ๐ง: Romania's first private #biobank, built on a #federated #data #network and a #privacy-by-design architecture, empowering fast, collaborative #research with a primary focus on #rare and #autoimmune #diseases.

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Graphic has a blue-tone photograph of the Paterson Building on the right-hand side, with a dark blue background and white text on the left

Text says:

We Are Recruiting New Group Leaders
Join us in Manchester / Develop bold, innovative, & high-impact research programmes
Salary ยฃ58,000 โ€“ ยฃ65,000 (dependent upon experience/clinical work)
Job ID MI/25/54
Apply by 2nd November 2025

Graphic has a blue-tone photograph of the Paterson Building on the right-hand side, with a dark blue background and white text on the left Text says: We Are Recruiting New Group Leaders Join us in Manchester / Develop bold, innovative, & high-impact research programmes Salary ยฃ58,000 โ€“ ยฃ65,000 (dependent upon experience/clinical work) Job ID MI/25/54 Apply by 2nd November 2025

Interested in establishing your own research group?
Our support package for new Group Leaders includes:

๐Ÿฅผ2 #Postdocs, a technician & 2 PhD students + lab costs
๐Ÿ”ฌFull access to core facilities
๐ŸงชAccess to the MCRC #Biobank
โœ”๏ธMentorship, #grant advice & more

www.cruk.manchester.ac.uk/career/new-g...

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Trained on data from 400,000 people in the #UK #Biobank, the results were remarkable.

For most of the 1,258 diseases, Delphi-2Mโ€™s predictions matched or even exceeded the accuracy of existing specialized models.

"It worked astonishingly well," says #Gerstung.
#AIinHealthcare

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Improving biobank cost calculation GBN has developed a biobank service catalogue with a cost calculation tool. This enables biobanks to transparently plan costs of third-party funded projects.

Are biobank costs properly recognised? ๐Ÿงฌ๐Ÿ’ฐ

GBNโ€™s new catalogue & cost tool makes planning easier, costs transparent & biobanks more sustainable. ๐Ÿ’ช

๐Ÿ‘‰ Available via the Biobank โ€œStarter Kitโ€: tinyurl.com/yc3jhmn9

#Biobank #Biobanking #ResearchFunding

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Largest-ever human imaging study completed UK Biobank hits 100,000 scan milestone, as data reveals early disease signatures and new biological aging insights across organ systems.

UK Biobank hits 100,000 scan milestone, as data reveals early disease signatures and new biological #aging insights across organ systems.

#agingresearch #diseaseprevention #prevention #earlydetection #patientsafety #biobank

longevity.technology/news/largest...

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Interior of Hannover Unified Biobank - liquid nitrogen tanks visible.

Interior of Hannover Unified Biobank - liquid nitrogen tanks visible.

๐Ÿ“บ HUB Hanover, part of the German Biobank Network, was featured on TV!

๐ŸงฌSupporting the "MoReHealth" project, HUB provides key biosamples for multi-omics research in personalised medicine.

Watch in German: tinyurl.com/45xvvv5f

#Biobank #Biobanking #PersonalisedMedicine #InfectionResearch

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๐Ÿ—“๏ธ The 13th National #Biobank Symposium will take place on 22โ€“23 September 2025 in Berlin, featuring a GBN session on quality assurance, education, sustainable financing and tissue biobanking in #PersonalisedMedicine: buff.ly/3p84r8z

๐Ÿงต2/6

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Whole-genome sequencing of 490,640 UK Biobank participants - Nature A study reports whole-genome sequences for 490,640 participants from the UK Biobank and combines these data with phenotypic data to provide new insights into the relationship between human variation a...

This is huge!

Whole-genome sequencing of 490,640 UK Biobank participants

#genomics #genome #biobank ๐Ÿงช

doi.org/10.1038/s415...

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Excited to share my commentary on integrating #transancestry #polygenic risk scores and family history for predicting #psychiatric disorders in #Taiwan #Biobank - now online in Biological Psychiatry

๐Ÿ‘‰ authors.elsevier.com/a/1lduY1S07x...

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Ever wondered what happens after you donate a sample to research?

Our new patient info sheet explains how your contribution helps build a better future for people with asbestos-related diseases.

๐Ÿ”— drive.google.com/file/d/10_tr...

#NCARDresearch #AsbestosRelatedDiseases #Biobank

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Your Gift, Their Hope: NCARD Biobank Donors Drive Lifesaving Discoveries โ€“ NCARD More than 3,000 donors and their families have helped shape new tests, treatments and hope for the future.

30 years. 3,000+ donors. 50+ research projects. Countless lives impacted.

The NCARD Biobank transforms generous donations into real medical breakthroughs.

Every sample tells a story of hope. ๐Ÿ’™

Learn more: ncard.org.au/your-gift-th...

#NCARDresearch #Biobank #MedicalResearch

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A square image with a blue-green gradient background reading: "4 Reasons to join the Biobank Brasil Summit in Sao Paolo on 9 September 2025.

A square image with a blue-green gradient background reading: "4 Reasons to join the Biobank Brasil Summit in Sao Paolo on 9 September 2025.

๐Ÿ“ข Big event coming up:

๐Ÿค Join the #Biobank #Brasil #Summit 2025 #BBS "From storage to strategy" in Sรฃo Paulo.

๐Ÿ“† 9 Sept, 2025
๐Ÿ“ Sรฃo Paulo, Brazil
๐Ÿ”— biobankbrasil.com.br

โ—๏ธHere are the top 4 reasons to join the event ๐Ÿ‘‡

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๐Ÿ“š Congratulations to Dr Sarah Yeo, lead author of TRACKER Biobank's first peer-reviewed publication, which explores the challenges and future directions for lung cancer biobanking in Australia.

Read the review here: ow.ly/jlvA50Wze5Y

#LungCancerResearch #CancerResearch #Biobank #ONJCRI

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Neue Technologien entwickeln: Hightech Agenda Deutschland - BMBF

We're delighted that GBN as part of the Network of University Medicine (NUM) has been recognised in the 'High-Tech Agenda' of the Federal Ministry of Research, Technology & Space. It is also exciting to see the long-term continuation of the NUM mentioned tinyurl.com/mrxnadt3 ๐Ÿ‘
#Biobanking #Biobank

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Fresh out of press and available open access - www.routledge.com/9781032619927 #biobank #ELSI #AI @bbmrieric.bsky.social @routledgebooks.bsky.social

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