Excerpt from my interview with CBS 17 in May 2024 before the 2024 Special Olympics North Carolina Summer Games.
#CBS17 #SpecialOlympics #SONCSG
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#CBS17
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Photos from my interview with CBS 17 before the Opening Ceremony of the 2024 Special Olympics North Carolina Summer Games in May 2024.
#CBS17 #TVInterview #NorthCarolina #SONCSG #SpecialOlympics
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Komparic: ‘equity and fairness’ are also considered substantive values in pharm policy, but used interchangeably w/out def or nuance #CBS17
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Komparic’s analysis of pharmacare policies indicates that normative concepts are central, but rarely made explicit #CBS17
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Komparic: there is almost no focused ethics analysis on pharmacare debate in Canada. IMO, this seems like a massive oversight #CBS17
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The Canadian Pharmacare debate goes back to the 1940s #CBS17
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Anna Kompaic from @UofTPharmacy on a normative analysis of the national pharmacare policy debate in Canada #CBS17
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Only two tools in @ShankerRuby’s review of MAID capacity tools included measures to explore/measure/ psychosocial context #CBS17
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Thompson suggests that it is not clear if Frank would consider narrative incapacity (i.e. intolerable suffering) as a moral failing. #CBS17
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Frank: chaos narratives are colonized by medicine and made into a restorative narrative; e.g. suffering has a physiology #CBS17
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Frank says that where there is no meaning there is no story. #CBS17
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Thompson reading a participant quote: “[suffering is] intolerable when we have no meaning attached to it.” #CBS17
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Thompson: Art Frank suggests it is impossible to communicate intolerable suffering; suffering is subjective and defies language #CBS17
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Thompson frames suffering re MAID as a problem of narrative ethics via the work of Arthur Frank, Cassell, and Levinas #CBS17
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Dr Ali Thompson from @UofTPharmacy @utjcb @UofT_dlsph on MAID, suffering, capacity, and narrative #CBS17
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Putting the final touches on my 1pm presentation on task-shifting, naloxone, and stigma co-authored with Aaron Orkin from @SREMI_MSH #CBS17
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Dawn @utjcb MHSc student presenting her great work on capacity evals and healthcare provider #proudsupervisor #CBS17
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Tennenbaum: waitlist encourages trust in the system: i) those waiting know they have a chance & ii) trust encourages live donation #CBS17
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Jed Gross tells the story of the Essex Crew (inspired Moby Dick) to illustrate some of the ethical issues re sharing in liver tx #CBS17
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The word ‘vulnerability’, the conference theme, comes from the Latin to wound; to injure. Interesting etymology. #CBS17
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Thank you for live tweeting my talk, @socdf ! #rarediseases #bioethics #advocacy #CBS17
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I’m honoured to be presenting on behalf of @AnitaHoEthics and team fine work on supportive decision-making models at 3pm. #CBS17
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“As individuals, we assume we are ethical entities” @BrynWJones on conflicts of interest #CBS17
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Stop me if you've heard this before, b/c it may be old: "When you hear hoofbeats, think of horses not zebras" #cbs17 #raredisease #diagnosis
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Come learn about #rarediseases tomorrow @CBS_SCB17 #cbs17. An important #bioethics topic starting to get lots of attention, esp b/c #crispr
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Join me @ #CBS17 @ 3pm, May 24 in Montreal for my talk: How Rare Disease Patients Have Been Forgotten @raredisorders
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