Latest posts tagged with #ERKReg on Bluesky
On the Road with ERKReg ๐๐ซ๐ท
At Hรดpital Necker in Paris, Yara spent two weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Paris team for the warm welcome, great teamwork, and valuable insights! ๐๐
#ERKNetOnTheRoad #RareKidneyDiseases #Paris #ERKReg
On the Road with ERKReg ๐๐ซ๐ท
At Hรดpital Femme Mรจre Enfant in Lyon, Yara spent a week supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Lyon team for the warm welcome, great teamwork, and valuable insights! ๐๐
#ERKNetOnTheRoad #RareKidneyDiseases #Lyon #ERKReg
๐ ERKNet is present at the ERA Congress 2025 in Vienna!
Come find us at booth X1.255 and learn more about our ERKNet network, the ERKReg registry, and the exciting projects we're working on.
Weโd love to meet you! ๐ฌ๐ #ERA2025 #ERKNet #RareKidneyDiseases #ERKReg #Networking #Vienna
Interesting update from Prof Franz Schaefer on #ERKReg. Take home message: #genetic diseases have fast track towards kidney failure (right side of chart) #ARPKD #ADPKD @pkdinternational.bsky.social
๐ข๐๐๐ฐ ๐๐ฎ๐๐ฅ๐ข๐๐๐ญ๐ข๐จ๐ง ๐๐ฅ๐๐ซ๐ญ๐ข
Weโre proud to share that this retrospective #CohortStudy, five years in the making and based on data from the #ERKReg, has just been published in #eClinicalMedicine ๐
A huge thank you and congratulations to everyone involved for their amazing work!๐
๐ tinyurl.com/yhmzjyv5
Insights from ADPedKD, #ERKReg and RaDaR registries provide a multi-national perspective on the presentation of childhood autosomal dominant polycystic kidney disease in high- and middle-income countries
doi.org/10.1016/j.kint.2025.02.026
#NephSky #MedSky #ADPKD #PedNeph #SkyNeph
๐ข Learn more about ERKReg Training Sessions! ๐ฉบ๐
Join our training sessions to master data entry, best practices & registry updates. Open to ERKNet members & nephrology professionals worldwide!
๐ Sign up now: www.erknet.org/databases/er...
#ERKReg #Nephrology #MedicalTraining #ERKNet #StayInformed
๐ERKReg Basic Training Session
On Monday, March 3rd, we host our #ERKReg training session again๐.
40 min - Basic info, entering a patient, Do's and Dont's
20 min - Q&A
๐Register here: www.erknet.org/databases/er...
#ERKNet
๐ERKReg Basic Training Session
On Monday, February 10th, we host our #ERKReg training session again๐.
40 min - Basic info, entering a patient, Do's and Dont's
20 min - Q&A
๐Register here: www.erknet.org/databases/erkreg-trainin...
#ERKNet
