Latest posts tagged with #ERNeu on Bluesky
📢Not registered yet? Don’t miss today’s session of our Thursday Webinar Series!
Join us for a session on von Willebrand factor and von Willebrand disease in ageing: mechanisms, evolving phenotypes and clinical implications.
👉Register now! eurobloodnet.eu/education/th...
#ERNs #ERNeu #VWD
Register now for the 5th session of the "ERN-EuroBloodNet Topic in Focus: Inherited Platelet Function Disorders"!
🔗More info & registrations: eurobloodnet.eu/education/to...
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
🔔 Don’t miss tomorrow’s ERN-EuroBloodNet Thursdays Webinar!
Join us for an insightful session on Newborn Screening for Sickle Cell Disease #SCD with prof Gulbis Béatrice.
👉 Register now and secure your spot: eurobloodnet.eu/education/th...
#ERNs #ERNeu #hematology #SCD #SickleCellDisease #EU
📣Registrations are open for #ECRD2026, taking place on 3–4 June 2026 in Prague and online. Join the rare disease community in discussions shaping future priorities for rare diseases in Europe.
📝Secure your place with early-bird registration: eurobloodnet.eu/news/698/reg...
#ERNs #ERNeu
🚀Register now for the 3rd session of the ERN-EuroBloodNet Topic on Focus on Inherited Platelet Function Disorders!
🗣️Speaker: Paolo Gresele
🕓 17/12/2025 at 17:00
ℹ️More details and registrations: eurobloodnet.eu/education/to...
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
📤Are you ready for the last webinars of 2025? The EDU Blood Academy Newsletter is out now!
Discover the webinars scheduled for December and stay up to date with the latest news. Subscribe to our Newsletter here: eurobloodnet.eu/edu-blood-ac...
#ERNeu #ERNs #HealthUnion
🎥New video! Building bridges for better transitions in Sickle Cell Disease
How can we ensure that young people living with rare diseases move safely from paediatric to adult care without losing access, confidence, or hope?
🎬Watch now: youtu.be/POEBC0YEMgM?...
#ERNs #ERNeu
📢Not yet registered? Don't miss the next Thursday webinar in three days!
The #ThursdayWebinars are an accredited European online educational program, certified by the European Board for Accreditation in Hematology (EBAH).
👉 Register here: lnkd.in/dFCJVT2R
#ERNeu #ERNs #hematology
🌍Members, Affiliated Partners & Patient Organisations: Get ready for the 7th ERN-EuroBloodNet Progress Meeting!
🗓 Thursday, 6th November | 💻 Online
Take a look at the provisional agenda and register here: eurobloodnet.eu/news/678/ern...
#ERNeu #ERNs #HealthUnion #EU4Health
✅ Day 1 | ERN-EuroBloodNet & @radeep.bsky.social – #SCD Patients Session at #ASCAT2025 !
Sexual Health Program for Patients with Sickle Cell Disease
🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health
#ERNs #hematology #RADeep #ERNeu #ASCAT2025
📢Are you involved in the care of patients with rare diseases? Your insights are crucial to improving continuity of care and shaping future strategies for rare disease patients across Europe!
👉 bit.ly/46JYtGW
#ERNeu #ERNs @ec.europa.eu @jardinjointaction.bsky.social @euonehealth.bsky.social
📣Have you registered yet? Join us on 𝗠𝗼𝗻𝗱𝗮𝘆 𝘁𝗵𝗲 𝟭𝟱𝘁𝗵 𝗮𝘁 𝟱:𝟬𝟬 𝗣𝗠 for the ERN-EuroBloodNet Patients Webinar: Gene Therapy for Pyruvate Kinase Deficiency and Congenital Dyserythropoietic Anemia Type II.
📝Register now! bit.ly/3IdP6G0
#ERNeu #ERNs #hematology #HealthUnion @ec.europa.eu
🚨Hiring alert! We are looking for an experienced, motivated and committed Scientific delivery coordinator to join our dynamic team at Vall d’Hebron Institute of Research, Barcelona!
✒️Apply now: jobs.vhir.org/jobs/5909298...
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
🟣 JARDIN’s Midterm Review brought WP leaders to Vienna this week to assess progress and plan ahead.
JARDIN continues working to support the better integration of #ERNs into national healthcare systems.
Find out more here: jardin-ern.eu/new/jardin-j...
#RareDiseases #ERNEU #EU4Health #HealthUnion
💻Don't miss the ERN-EuroBloodNet #ThursdayWebinar session on "Gene therapy for Pyruvate Kinase Deficiency and Congenital Dyserythropoietic Anemia Type II”!
🗓️3rd July - 17:00h CEST.
👉Registrations: eurobloodnet.eu/education/th...
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #hematology
🔬 @mmanupe.bsky.social took the stage at the #EHA2025 Hematology-in-Focus Session with a compelling presentation on:
💻“Emergence of rare anemias using extensive sequencing techniques”
#ERNs #ERNeu #RareDiseases #CrossBorderHealth #HealthUnion
📢 #EHA2025 We’re Here!
The biggest #hematology event in Europe is kicking off today in Milan, Italy and ERN-EuroBloodNet is proud to be actively participating!
📍On-site in Milan? Visit us at our booth at the Collaboration Plaza, Allianz MiCo - Milano Convention Centre.
#ERNeu #ERNs
💻Not yet registered for this week's session? Register now and join us for the #ThursdayWebinar session on "Indication of splenectomy”!
👩🏫Provided by Maria Domenica Cappellini
👉Registrations: eurobloodnet.eu/education/th...
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology
