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#FuelingHope

Latest posts tagged with #FuelingHope on Bluesky

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Posts tagged #FuelingHope

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Thank you to the BC Cancer & #BCCancerFoundation teams for driving breakthroughs in #CancerResearch, accelerating access to cutting-edge #CancerCare & #FuelingHope for the 80k people who rely on #BCCancer each year.

@paulchoibc.bsky.social @stevemorissette.bsky.social @bcndpcaucus.bsky.social #BC

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ACD Newsletter: Walk, Run, Ruck, Raise Awareness!

Did you catch ACD’s March newsletter? 💌 It’s full of updates on newborn screening, Walk for Strength, upcoming events, and a big thank-you to Heidi for 10 years with ACD!

👉 Read or watch: tr.ee/6KvwKh | Subscribe: tr.ee/gU6RHq

#FuelingHope #RareDisease

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Did you catch our March newsletter? 💌 It’s full of updates on newborn screening, Walk for Strength, upcoming events, and a big thank-you to Heidi for 10 years with ACD!

👉 Read or watch: tr.ee/6KvwKh | Subscribe: tr.ee/gU6RHq

#FuelingHope #RareDisease

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Thinking of hosting or gearing up for another year? We’ve got you covered!

📅 Friday, March 14
⏰ 6 PM EST (Virtual)

✅ Walk checklist
✅ Host tips
✅ FAQ & more!

Join us & make this year’s event bigger than ever!

📢 Register now: tr.ee/lvMOIW

#WalkForStrength #FuelingHope #RareDiseaseAwareness

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Jeff Allen is making strides—literally—on his mission to cure CTD! So far: 212 miles of his 365 mile #Ruck4Rare journey & $116,592 raised for CCDS research. Donate & leave a supportive note at www.ruck4rare.com. He reads these live daily! 💙 #FuelingHope #RareDisease

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📢 Community Chat!
🗓 Friday, March 7th | 3 PM EST
Topic: Creatine Deficiency - Diagnosis, Inheritance, & Mosaicism - Your Questions Answered
Speakers: Dr. Sarah Young & Jenny Goldstein

📌 Register: creatineinfo.org/chat-series

#FuelingHope #CreatineInfo #CreatineResearch #ACDResearch #RareDisease

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Save the Date!
ACD’s annual Walk for Strength is back on June 21, 2025.

🚨 Start your team today! It’s easy-we’ll support you every step of the way from now until June. Sign up here: www.creatineinfo.org/walk

#FuelingHope #CreatineHeroes #CreatineResearch #ACDResearch #RareDisease #WalkForStrength

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CCDS Day 2025 Our Hopes for a Treatment. Our hope is that a treatment for Xavier would allow him to bathe and use the toilet independently, so he could do more activities that typical teens can do.

CCDS Day 2025 Our Hopes for a Treatment. Our hope is that a treatment for Xavier would allow him to bathe and use the toilet independently, so he could do more activities that typical teens can do.

#CCDSDay #FuelingHope #CreatineDeficiencyResearch #CreatineHeroes #CreatineInfo #CreatineResearch #ACDResearch #RareDiseaseAwareness #RareDisease

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