#ImmunityPulse

IPOPI

@ipopi.bsky.social

5 months ago

🎙️ New episode of Immunity Pulse!

What’s it like to join a clinical trial when you have an ultra-rare disease with few treatment options?

🎧 Listen now on Spotify: open.spotify.com/episode/5p1y...

#ImmunityPulse #Podcast #aPAP #ClinicalTrials #RareDiseases #PatientStories

IPOPI

@ipopi.bsky.social

6 months ago

🎙️ On this new #ImmunityPulse podcast episode, we are joined by Kelsea Arford, a patient who shares powerful insights on Autoimmune Pulmonary Alveolar Proteinosis.

👉 Tune in to the full conversation here: open.spotify.com/episode/6Wme...

#PatientVoices #RareDiseases #Podcast

IPOPI

@ipopi.bsky.social

6 months ago

🎙️ Ever heard of a procedure that “washes” the lungs? 💧🫁
This week, we dive into the fascinating world of whole lung lavage — a rare but vital treatment for autoimmune pulmonary alveolar proteinosis.

💥 Listen now: open.spotify.com/episode/6Wme...

#ImmunityPulse #RareDiseases #PatientStories #aPAP

IPOPI

@ipopi.bsky.social

7 months ago

🎙️ New #podcast! Meet #ImmunityPulse — from IPOPI, sharing real patient stories & expert insights on PID and related conditions.

💥 Ep. 1: When a secondary immune deficiency (SID) hides a PID — the hidden links, missed diagnoses & why awareness matters.

🎧 Listen now: open.spotify.com/show/0XwNb3H...