Today is #WorldCancerDay
Do you #knowyournormal ?
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#KnowYourNormal
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Posts tagged #KnowYourNormal
Tip #1: Know your normal.
We’re not doctors - but we do know that too many people ignore the early signs.
If something feels off, don’t wait.
Get it checked. Talk to your GP.
Early detection isn’t just a slogan - it’s survival.
#CheckYourself #BreastCancerAwareness #TherapyOnWheels #KnowYourNormal
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October is #BreastCancerAwarenessMonth so we wanted to re-share our Looking After Your Breasts resource, with lots of helpful information and tips.
Read the full resource here: groundswell.org.uk/wpdm-package...
#BreastScreening #KnowYourNormal
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Taking charge of your health? What? Like it’s hard?💅🏼💖
Here’s to the survivors, the fighters, the families, and the healthcare workers this #Pinktober.
#BreastCancerAwareness #PinkOctober #ThinkPink #RuralHealth #CancerScreening #GetScreened #ElleWoods #LegallyBlonde #KnowYourNormal #OntarioHealth
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Help a #BreastCancer survivor. Most of us find #Pinktober triggering. Want to make it bearable? Tell us that you scheduled your annual check ups.
#KnowYourNormal
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A collage of 9 photos of members of the SPAGN board and team wearing yellow for sarcoma. In the center is a blue square that says "Thank you!" The caption at the bottom says "Sarcoma Awareness Month 2025" with the SPAGN logo.
#SarcomaAwarenessMonth ends today. Thank you to all who participated in this year's #KnowYourNormal campaign! Making videos, sharing graphics, telling your story, and sharing your knowledge brings our global sarcoma community together. We look forward to planning for next year!
- The team at SPAGN
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In our final video from the #KnowYourNormal series: Maggie Cameron of The EHE Foundation tells her story of how her sarcoma diagnosis was discovered while undergoing routine scans for a different medical condition!
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
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Namuwonge's first symptom was an unexplained swelling on her right leg. She had never heard of sarcoma before her diagnosis. Hear her story and follow the Uganda Alliance of Patients’ Organizations(UAPO) for more!
#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
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Kamil of the Polish Sarcoma and Melanoma Patients Association was lucky. His doctor immediately recognized the warning signs in his x-ray, and referred him to an oncologist straight away. He was diagnosed with sarcoma 2 weeks later.
#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
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Annie of the National Leiomyosarcoma Foundation (NLMSF) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee.
#KnowYourNormal #SarcomaAwarenessMonth2025
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Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story.
#KnowYourNormal #SarcomaAwarenessMonth2025
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Brazil still faces serious challenges in sarcoma care. But global collaboration is helping close the gap.
For patients and families, it’s also a reminder:
Sarcoma may be rare, but you are not alone.
Our latest blog: bit.ly/SPAGNblog_Br...
#SarcomaAwarenessMonth #KnowYourNormal
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A graphic featuring a word cloud with common symptoms of sarcoma. The largest words are: PAIN, Fatigue, Lump or swelling, followed by Loss of mobility, Weight loss, Bladder or bowel problems, then Nausea, Fever, Paralysis / numbness, Headaches, problems with vision, fracture. The caption reads: "Most common initial symptoms reported by sarcoma patients are pain and/or unexplained lump or swelling. The data comes from the Global Sarcoma Diagnosis Pathway Survey."
We asked #sarcoma patients worldwide what first tipped them off, and two answers stood out: PAIN, and an unexplained, fast-growing lump or swelling. Don't downplay the discomfort. Listen to your body and #KnowYourNormal.
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Sandeep is a Ewing Sarcoma patient whose first symptoms appeared at age 12. It took him 3 years and multiple physicians to get a correct diagnosis. Today he has transformed sarcoma diagnosis and care for rural patients in India. Learn more at: digiswasthya.org
#KnowYourNormal #SarcomaAwarenessMonth
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Leg pain. Misdiagnoses. A journey of over 1,500 km.
A rural sarcoma survivor in India turned his 3-year search for a diagnosis into a mission to change the system.
Read his story: bit.ly/SPAGNblog_DF
#SarcomaAwarenessMonth #KnowYourNormal #BreakingBarriers #SPAGN
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Wilker is an #LMS patient from Brazil, an oncology pharmacist and an advocate w/Sarcomunicandonos America Latina. Today he shares the story of his journey to his diagnosis and the emotional toll that led him into patient advocacy.
#SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday
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💜 LMS patients, share your story:
When did you first sense something was wrong?
Who helped you keep pushing for answers?
What do you wish every newly diagnosed patient knew about LMS?
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #KnowYourNormal #PatientAdvocate #Sarcoma
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A graphic promoting LMS Awareness Day, July 15th. The image includes a large purple ribbon, the color of LMS. The caption reads: "Sarcoma Awareness Month 2025" and the website awareness.sarcoma-patients.org.
LMS begins in smooth-muscle tissue, often in the uterus, abdomen, or limbs. Common symptoms include vague pain/fullness, a lump, heavy menstrual flow or other bleeding. #KnowYourNormal: If something feels off, ask for imaging + a referral to a sarcoma specialist.
#LMSAwarenessDay
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Together we can shorten the road from “Something’s wrong” to an accurate diagnosis—and open the door to timely life-saving treatment.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #PatientAdvocate #Sarcoma #KnowYourNormal
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Christina's son Dylan told her his shoulder hurt after falling down at school. They went straight to the ER for an evaluation. That evening, she got a really unusual call from the doctor. Hear her story.
#SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma
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Tasha of @curesarcoma.bsky.social had a sore throat that refused to go away. They ruled out COVID and strep before a lump began to grow. Guess how many doctors she had to see before she got a diagnosis? Watch and find out.
#SarcomaAwarenessMonth2025 #KnowYourNormal #rhabdomyosarcoma
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Most of these signs have many possible causes but if they don’t go away, get checked out. Early diagnosis is key. #PEComa is rare. But people living with it deserve answers, treatment, and support. Don’t ignore strange symptoms. You deserve to be heard.
#KnowYourNormal #SarcomaAwarenessMonth
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A graphic with a compilation of 4 black and white images. Pictured clockwise from the top left: A child with cancer is seated on a sofa. An older male patient lying in a bed looks out of a window. A woman lying in a hospital bed speaks to a man in hospital scrubs seated next to her. A doctor speaks with a patient. The caption reads: "You have a right to CLEAR answers. Know YOUR normal."
Ever had a doctor tell you “It’s nothing”? What did you do? Seek a second opinion; keep a diary of symptoms; or bring a partner to your next appointment? Share how you made yourself heard.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #KnowYourNormal
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Lakshay of Sachin Sarcoma Society developed extreme pain in his leg while doing sports at university. The pain kept him up at night, so he went to the doctor. It took several doctors to get to the bottom of it. This is his story.
#SarcomaAwarenessMonth2025
#KnowYourNormal
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The first sign of #sarcoma isn't always obvious. Carol Haslam of Sarcoma Cancer Ireland said she noticed "a bit of an ache" in her hand. When she sought care, she was referred to a specialist who discovered she had #SynovialSarcoma.
#SarcomaAwarenessMonth2025
#SarcomaSignsAndSymptoms
#KnowYourNormal
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A graphic with an image of a man clutching the side of his abdomen in pain. The caption reads: "Know YOUR normal. When something feels off, get it checked!"
Share the moment you first thought, “This isn’t normal.”
Maybe you found a painless lump, noticed night‑time bone pain, or something was simply *off*. What made you trust your instincts & seek answers. Your story could save others months of uncertainty.
#SarcomaAwarenessMonth2025 #KnowYourNormal
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Dr. Mitch of National Leiomyosarcoma Foundation was having a normal day until the sudden onset of his symptoms after working out. A rush to the ER led to a biopsy that revealed #leiomyosarcoma. You #KnowYourNormal, if something is wrong don't brush it off. Get it checked!
#SarcomaAwarenessMonth2025
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Sarah's first clue that something wasn't right was finding a lump on her arm after a camping trip. Listen to your body. You #KnowYourNormal, and you can insist on answers.
#SarcomaAwarenessMonth2025
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A graphic promoting statistics from a recent survey. 57% of patients see their general physician FIRST for initial symptoms. However only 7.7% of general physicians were the first doctor to suspect sarcoma for the concerned patient.
The first place you go when something isn't "normal" is usually your family doctor. But few Primary Care Providers can recognize the signs of sarcomas. #KnowYourNormal: Even if your doctor doesn’t suspect a serious illness, listen to your body & insist on clear answers.
#SarcomaAwarenessMonth2025
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We have lots of stories to share this month! Here's a sneak peek of what's to come. Hear their stories, share your own, and spread the word!
#SarcomaAwarenessMonth2025
#KnowYourNormal
#SarcomaSignsAndSymptoms
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