Latest posts tagged with #LetsTalkAboutNETs on Bluesky
Learn from NEN patients what it feels like to be participating in a NEN clinical trial.
📌Hear advice from Marie-Therese from the Netherlands, Cecilia from Mexico, Craig from UK and Anne from Australia: incalliance.org/patient-insi...
#LetsTalkAboutNETs
👏Kudos to Net Italy ETS for partnering with Sant’Andrea University Hospital in Rome in an innovative event on NENs. Experts and patients discussed diagnosis and personalized therapies.
✅Find out more in English and Italian: incalliance.org/net-italy-ro...
#LetsTalkAboutNETs
📌ENETS-INCA educational webinars gather NEN experts, NEN nurses and NEN patient advocates to provide valuable information on NEN patient journey in a patient-friendly language.
📱Watch all videos here: incalliance.org/net-educatio...
#LetsTalkAboutNETs
Neuroendocrine neoplasms (NENs) are often misdiagnosed.
We call on #PrimaryCarePhysicians to learn to detect them early.
Join the FREE Think NENs 60-min course
• CME-accredited
• 7 languages
• Endorsed by leading NEN societies
✅Start learning today: incalliance.org/think-nens/
#LetsTalkAboutNETs
High-grade NENs are represented by NET Grade 3 (Ki67 is above 20%,the cells are well-differentiated) and NEC Grade (Ki67 is above 20%, the cells are poorly-differentiated).
Early diagnosis is crucial.
✅We help HCPs to know NENs in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
NEN patient advocates can prevent burnout with self-care strategies.
📱Watch a video with structured advice and practical strategies from Amanda Stork, Specialist NET Counsellor, NeuroEndocrine Cancer Australia: incalliance.org/self-care/
#LetsTalkAboutNETs
📢Listen to the voices of the NEN patients!
📌Leslie from USA went through genetic testing as part of her breast cancer journey - early paraganglioma diagnosis helped for timely treatment.
✅Watch Leslie’s story: incalliance.org/stories/lesl...
#LetsTalkAboutNETs
📌AI contributes to efficiency in NEN research and clinical care but responsible use is needed – this was the overall conclusion at the INCA-ENETS Symposium 2026 on March 5th.
✅Read the news report on the INCA-ENETS session:
incalliance.org/inca-enets-s...
#LetsTalkAboutNETs #ENETS2026
📌Here is a new resource helping NEN patients prepare for clinical trials:
✅Check out the questions you should ask while considering a clinical trial: incalliance.org/support-pati...
✅Find a NEN clinical trial: incalliance.org/find-a-trial/
#LetsTalkAboutNETs
📢Don’t miss the new webinar from NCF: Novel Targeted Therapies in Neuroendocrine Cancers on March 9th, 2026, from 8:30 am Pacific.
✅Read more and register: incalliance.org/novel-target...
#LetsTalkAboutNETs
Primary care professionals play a critical role in the early diagnosis of NENs.
#ThinkNENs Program is here to help – and it's completely FREE.
✔ 60-minute CME-accredited module
✔ 7 languages
✔ Endorsed by leading NEN societies
Explore here: incalliance.org/think-nens/
#LetsTalkAboutNETs
📌An opportunity to enhance your advocacy skills for making successful NEN awareness campaigns!
📱Watch a video on “Keys to Media Outreach & Advocacy” with best practice sharing from NeuroEndocrine Cancer Australia: incalliance.org/advocacy-ski...
#LetsTalkAboutNETs
👍Here we are at #ENETS2026 - meet us at INCA information booth at the ground floor of ICE Congress Centre!
📌Join @enets.org and INCA for the special session on AI and NEN care on March 5th:https://incalliance.org/inca-enets-symposium-2026/
#LetsTalkAboutNETs
📢2 days away: On March 5th, 2025, from 16:45 CET, in Krakow, INCA and ENETS @enets.org will discuss a very intriguing topic – the role of AI in NEN research and patient care.
✅Look at the agenda: incalliance.org/inca-enets-s...
#LetsTalkAboutNETs
High-grade NETs with a Ki-67 index of more than 20% are classified as grade 3. Poorly differentiated Grade 3 tumors are NECs. These tumors are aggressive and are treated differently than lower-grade NETs.
📌We help HCPs know NENs in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
📌Today is #RareDiseaseDay! NENs are more common than you think. The prevalence is up at around about 30 or 30+ per 100 000 population. In the UK, for example, around 6,000 people are diagnosed with NENs every year.
✅We help HCPs to be aware: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
📢COMING SOON: On March 5th, 2025, from 16:45 CET, in Krakow, INCA and ENETS @enets.org will discuss a very intriguing topic – the role of AI in NEN research and patient care.
✅Look at the agenda: incalliance.org/inca-enets-s...
#LetsTalkAboutNETs
👏Kudos to AMEND @amenduk.bsky.social for advocacy in action – a big step towards early detection of genetic NETs.
👉AMEND has helped that MEN2B, will be added to the Genomics England’s Generation Study from March 2026.
✅Find out more: incalliance.org/men2b-added-...
#LetsTalkAboutNETs
📢Stay ahead in #PrimaryCare: Free CME credit.
Try #ThinkNENs – designed for busy GPs.
• FREE online learning in just 60 minutes
• Available in 7 languages
• Endorsed by leading NEN medical societies
• 13 videos on specific NENs
✅Start learning today: incalliance.org/think-nens/
#LetsTalkAboutNETs
NEN patient advocates also need to take care of themselves in this challenging work.
📌Find a new insightful video with valuable advice on self-care for patient advocates from Amanda Stork, Specialist NET Counsellor, NeuroEndocrine Cancer Australia: incalliance.org/self-care/
#LetsTalkAboutNETs
Secondary NEN may be present at the time that the primary NEN is discovered – indeed this is quite common and true for more than half of those diagnosed.
✅We need more HCPs to be aware of NENs – download a #NETInfo in your language: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
📢Listen to the voices of NEN patients!
📌Annita from the Netherlands was lucky to meet clinicians who got her a quick referral and an early diagnosis of pancreatic NET, which allowed for successful surgery.
✅Read Annita’s story: incalliance.org/stories/anni...
#LetsTalkAboutNETs
#RareDiseaseDay is on February 28th!
📌NENs are easily missed due to being often disguised by common symptoms. Globally, it takes 5 years to actual diagnosis.
📌More HCPs being aware of NENs will help.
✅Information on NENs in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
Translational NEN research bridges basic laboratory findings with clinical applications to improve patient outcomes.
📱Watch what Dr. Mauro Cives has to say about the latest innovations in NEN translational research:
incalliance.org/dr-mauro-civ... #LetsTalkAboutNETs
📢New INCA President: Stephanie Alband, President from Feb 2024 to Feb 2026, officially passed the baton over to Meredith Cummins, CEO of NeuroEndocrine Cancer Australia.
👏A BIG THANK YOU to Stephanie!
👏Welcome, Meredith!
✅Find out more: incalliance.org/new-inca-pre...
#LetsTalkAboutNETs
#RareDiseaseDay is on February 28th! Multidisciplinary medical team care is essential to ensure the best possible outcomes for NEN patients. Less than a third of NEN patients globally use MDT care.
✅Information on NEN care in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
👏Congrats to @neuroendo-can-uk.bsky.social Neuroendocrine Cancer UK for the active participation in multidisciplinary education event for HCPs from all over UK on improving care for patients with broncho-pulmonary carcinoids (BPCs).
✅Read more: incalliance.org/ncuk-broncho...
#LetsTalkAboutNETs
📱Discover the video collection of @enets.org ENETS-INCA educational webinars on treatments of NETs, NEC, genetic NEN syndromes: incalliance.org/net-educatio...
You can watch the videos at your own pace and get informed. #LetsTalkAboutNETs
Designed for busy primary care physicians.
The #ThinkNENs program delivers expert education on neuroendocrine neoplasms in short, practical videos:
• Free and CME-accredited
• 7 languages
✅Learn more to support earlier diagnosis: incalliance.org/think-nens/
#LetsTalkAboutNETs
There is no cure for secondary neuroendocrine cancer. No cure is NOT the same as ‘terminal’, and many people with secondary NENs are living long and well.
📢Let’s help more HCPs to be aware of NENs.
✅Download a #NETInfo in your language: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
